Anyone with Fibro also have MS?

Discussion in 'Fibromyalgia Main Forum' started by monica33flowers, Feb 17, 2009.

  1. monica33flowers

    monica33flowers New Member

    I'm just curious if anyone who has fibro also has MS?

    I've done a few Google searches but I really haven't found anything significant about MS. I'm asking because I've had a few episodes where I fall and sometimes I'm OK others times lots of bruises and flares. I've also had lots of episodes of numbness but I think it is coming from other cervical discs that are bulging and also bone spurs.

    What doctor would you see to be tested for MS? I really hope it isn't my neurosurgeon. Just because he doesn't believe in fibro in the first place.

    It doesn't appear their is a magic test for MS, is that correct?

    Maybe what I'm feeling is just more fibro related issues and I'm being paranoid.
  2. Janalynn

    Janalynn New Member

    There are many more tests available now to help confirm an MS diagnosis. As mentioned a spinal tap is one of them - also an MRI will/can show lesions on the brain.
    I would see neurologist. Hopefully they can rule out MS for you.
    Keep us posted!
  3. kat0465

    kat0465 New Member

    just a few months ago, my Doc did an Mri, some muscle testing to rule out MS.i have the numbness and burning pains down my legs. they found leisions on my Brain, but said they were from Migrains, also 2 bulging disks in my back & my spine has arthritis.said No MS, just plain old fibro. If your worried ask your doc to do some testing, just to be on the safe side & put your mind at ease.
  4. ladybugmandy

    ladybugmandy Member

    yup....MRI and spinal tap, but there can be a false negative. sometimes they can only tell on autopsy if you had MS.

    interesting because HHV6 seems to be a problem in MS and CFS/FM.
  5. Among a ton of other things...

    I know of ONE woman, at my old MS chat site, (No longer exists), that at least, was diagnosed* with THREE big hitters- a major* triple whammy- MS, Lupus, AND fibro.

    One of my closest friends, in NY has fibro, MS, & systemic Scleroderma (also, like most of us, after many yrs of illness, about 20 other illnesses, diseases, diagnosis)

    I was diagnosed with fibro, 3 mos. later, CFS, and 2-3 yrs later, then again in May 2004 with MS, but, I don't even worry about it, my MRI's have had some 'minor' changes, in the 6+ yrs, I've been seeing my neuro. Our biggest hurdle has been treating my Trigeminal Neuralgia (surgically, and pharmaceutically,)..

    I was... 23-24?? 25 when dx'd.. but, like I said, IF it is MS, it's honestly the least of my worries, annoying, but, not the worst I'm dealing with.

    My MEDS can confuse MS, as well as the fibro, sometimes, YOU KNOW what's MS, but, a lot of times.. at least *I* just shrug. (and check my medications side effects again, especially if any have changed, or even dosages have changed)..

    Along with MRI, & Spinal tap, there are a ton of other tests Neurologists/MS Specialists can (do) order, to either diagnose, or rule out MS, Evoked Potentials, EMG, ENG, (there are 3-4 'types' of Evoked potentials tests)... SSER, BAER (I think),

    Also, repeated, repeated, repeated (lol) clinical exams, to monitor your strength in all 4 limbs, your reflexes (equal, unequal, present at all, or not, hyper, or hypo... etc), walking, pinwheel test, eye tests, hoffman's sign tests, allll kinds of stuff, an educated neuro (should) do..

    On the MS boards, chat, etc... you would find at least 3-5 people, probably - ***at any given time,*** with fibro as well.

    All together, in the same room polled- I couldn't guess, how many "MS'ers" have the dual diagnosis of fibro/MS..

    hope this helps, I am rambling, sleep deprived & in pain.

    Take care,

  6. Nanie46

    Nanie46 Moderator


    I wondered if you have heard that some patients with FM, CFS and MS have been misdiagnosed and have lyme disease.

    There is a huge overlap in symptoms, so Dr's may not recognize lyme.

    I will send you a couple links. There are many articles and cases of misdiagnosis.

    The largest problem is the 99.9% of Dr's do not know how to recognize symptoms of lyme, let alone how to test and diagnose it, and then treat it properly.

    Both lyme and MS can cause demyelination, and plaques in the brain on MRI.

    I also suggest that you go to this link and do the symptom checklist on pages 9-11. If you have numerous symptoms, you should be suspicious. There are people who present with more of FM symptoms, some with more of CFS symptoms or both, some mimic MS, ALS, RA, ADHD, autism, Alzheimer's, etc. :

    Here are a couple links about lyme and MS:

    Almost half way down the essay this next link will lead you to, read the paragraph that starts, "Many patients are told they have MS because of brain MRI findings or a spinal tap was positive for oligoclonal bands(OCB) or myelin basic protein........

    Also, here is another link:

    Doesn't it make sense that your symptoms had to have come from an infectious cause. Lyme is an infection by the bacteria borrelia burdorferi. Ticks also carry many other coinfections like bartonella, babesia, ehrlichia, anaplasma, etc.

    After having a FM diagnosis I found out through my own research and persistance, that my symptoms are caused by lyme. 3 Dr's told me that I didn't have lyme. Now that I've done alot of research, it seems obvious.

    Lyme is a clinical diagnosis based on history, symptoms and supported by labwork. Less than 50% of people remember a tick bite or rash. there is no test that is 100% accurate.

    I had an Igenex western blot IgG and IgM. I got a copy of the results, which said the overall intrpretation was "negative"...that's all a Dr looks at.

    I knew however, from reading the western blot info on page 7 of Dr Burrascano's guidelines (in the first link above) that my results were significant. I compared them band by band to his info.

    Then I called a lyme literate MD and got an appt. He confirmed that I do have lyme. I am awaiting coinfection test results. I have started treatment after 21 years of suffering.

    My lyme Dr actually says I have FMS/CFS caused by lyme.

    Lyme tests that most Dr's use are worthless and so inaccurate that it's a waste of time and money. They almost always show negative results and they do not test for all bands.

    A person can have lyme even if all their labs are negative.

    If I were you, I would insist that my Dr order an Igenex western blot(you have to prepay and then send it in to insurance....$200) and I would get a copy, and I would see a lyme literate MD.

    Good luck!

[ advertisement ]