Anything close to a definitive "marker" or test?

Discussion in 'Fibromyalgia Main Forum' started by gcalex, Feb 22, 2003.

  1. gcalex

    gcalex New Member

    I have read so much about so many possible "markers" for CFIDS and much of it is contradictory and confusing. For example, Dr. Cheney says almost everyone shows evidence of vestibular dysfunction -- flunks the Romberg augmented tandem stance -- and has at least some cognitive dysfunction. There is the new thing about ciguatera. I have read about ANA, low molecular weight RNA, various viral titres, excess lactic acid. Then I read Dr. Komaroff saying only about 2 percent of people with chronic fatigue truly have chronic fatigue syndrome. So how do I even get to step one, which is to know whether I have it or not?
  2. klutzo

    klutzo New Member

    My dx is FMS, not CFS, but I believe seeing a good infectious disease specialist would be your first move, since they are the most qualified to dx and treat CFS and seperate it out from other possibilities.
    As far as the Rhomberg, I flunked that, and I have FMS, not CFS. I think the problem with many of these markers is that they are not necessarily exclusive to CFS. I also have brain damage for example, which is why the doc says I flunk the Rhomberg. Does everyone with brain damage have CFS? Of course not. The RNA abnormality may prove useful, but it's too early yet to know for sure.
    The Neuropsychologist who did the tests to determine my brain damage, told me that he can dx a CFS patient just from the results of Neuropsychological testing, without knowing anything else about the patient. He says the pattern of brain damage in CFS is so distinct, and exactly the same in all patients, that it cannot be mistaken for any other illness, and that is why he is sure I do not have CFS. So, this may be a possiblity for you. Neuropsychological testing is usually paid for my insurance as long as you get a referral from a doctor, ususally a Neurologist.
    Best wishes,
    Klutzo
  3. gcalex

    gcalex New Member

    I wonder, is the notion of a distinctive pattern for CFS on neuro-psychological testing something that is generally accepted, and if so, where can I get more information about it?
  4. klutzo

    klutzo New Member

    ....I'm pretty sure the Neuropsychologist I saw would take your call and talk to you about it. His name is Alexander Gimon, PhD. His phone number is 727-584-1551.
    Most Neuropsychologists are much more up to date on this stuff than regular psychologists, so you might call one near you if you don't want to spend $ on long distance.
    Klutzo