appointment with memory/concentration doctor anyone...

Discussion in 'Fibromyalgia Main Forum' started by Bippy, May 26, 2006.

  1. Bippy

    Bippy New Member

    ....just wondering how many have had this type of appointment. I applied for disability a few months back and this is the first doctor's appointment that I have to go to. They said that they are scheduling this while they are still waiting for a few more of my medical records to get to them.

    If anyone has had an appointment with this type of doctor, I was just wondering what it was like.....

    Thanks everyone,

    Bippy
  2. BlueSky555

    BlueSky555 New Member

    Hi Bibby,

    I have not heard of this kind of Dr. but giving you a bump and maybe someone else can help you.

    Good Luck,

    BlueSky555
  3. Bippy

    Bippy New Member

    i will let everyone know how this doctor's appointment goes. it's not one that i made, it's one that disability is sending me to.....

    Bippy
  4. getfitat40

    getfitat40 New Member

    Hi-
    I had been having a lot of problem finding words, finishing thoughts, and typing the wrong word too. My rheumatologist had me go through cognitive testing to make sure there nothing going on besides the fibro fog.

    The doctor was a physcologist and it was very interesting. I think it took about 2 hours and he did all types of memory tests and cognitive tests - from reading a list of words and then having me repeat them back to him to doing pattern like tests where he would say a group of words and wanted me to say the second word followed by adding numbers together.

    There were a lot of different ones and he returned back to certain tests and asked me to repeat them. Basically, when all was said and done, he determined that like many FMS patients my memory and cognitive skills are not impaired normally but when I was faced with distractions or being very tired I became confused and flustered because I was unable to concentrate.

    I have been compensating at work by always have music on to drown out my noisy neighbors at work. I guess in a way it is like ADHD in a way - my rheumy and this doc wrote an article on this - I posted a while back - but here it is again:

    Memory Loss
    Wednesday, August 31 2005 @ 11:35 AM CST
    Contributed by: FLeavitt
    Readers may be interested in a new websidte entitled:
    DISTRACTION: Shedding Light on the Cognitive Underpinnings of Fibromyalgia Memory Loss.

    Found at: http://www.webspawner.com/users/distraction2/index.html

    DISTRACTION: Shedding Light on the Cognitive Underpinnings of Fibromyalgia Memory Loss.

    Poor memory in fibromyalgia is probably one of its least recognized, but most disruptive of its symptoms. It profoundly affects the way people with fibromyalgia live their lives. It adds stress whether they are in a conversation, answering a phone, working on a project, making a bed, checking email, or traveling by car. Poor memory is often central to why the lives of people with FMS go out of control.

    Neuropsychological testing is frequently ordered to provide an accurate evaluation of the cognitive complaint; however, test results often land people painfully troubled by memory disruptions in a paradoxical quagmire. Too often, cognitive testing fails to affirm cognitive decline. Normality of cognitive findings is common place and often marshaled to brush aside patient symptoms, because it is taken to mean that their perceptions are in error. The logic is flawed because it does not account fully for the many ways memory failures arise and overlooks shortcomings in the testing process. The alleged normality on examination may be an artifact of neglected coverage because people with fibromyalgia bring to the examination process a particular type of deficit that is not taken into account by the neuropsychological testing.

    A clue to unraveling the discrepancy between patient conviction and neuropsychological findings may be to consider the flaw as not residing in the patient’s complaint. Instead, the flaw may be an artifact of the methods used. Perhaps, the standardized measures administered are tapping the wrong processes, thereby holding patients to the wrong standards. .An inappropriately constituted test battery can produce results that can misrepresent an individual's actual functional ability.

    Work on-going in patients with fibromyalgia has identified a very uneven memory profile in cases presenting with memory loss. They have many areas of cognitive strength, and selected areas of cognitive weakness. Patients with fibromyalgia behave essential normally on the highly structured neuropsychological tests of memory that eliminate distractions. By contrast, adding a source of distraction serious reduces their ability to remember. The differences in impaired rate between the two types of measures are substantial, and reflect the importance of a source of distraction in assessing memory problems in fibromyalgia.

    Most tests at the disposal of neuropsychologists operate as attention-directed tasks free of distraction and are administered in distraction-reduced environments. A classic example of a test insensitive to distraction is the Wechsler Memory Scale (WMS). This task is generally viewed as the single best measure of memory functioning. Testing narrative verbal memory with Paragraphs from the Wechsler Memory Scale, we found 86% of patients with fibromyalgia behave essentially normally on this measure of memory that is attention directed and free of distraction.

    By contrast, large size deficits in memory skills arose when a distracting source of information was added to simple measures of memory. For example, the Auditory Consonant Trigram (ACT) tracks memory for a small amount of information following distraction periods of either 9, 18 or 36 seconds. With no distraction on the ACT, a small file of information was fully remembered. However, following a distraction of 9 seconds, the loss of information was disproportionately large. The 9 second distraction erased almost 58% of the same information suggesting that even limited distraction harms recall of new information. In fact, people with fibromyalgia lost simple information at a rate that was almost three times greater than the normative sample.

    In the aggregate, psychometric based evidence of memory abnormality was found in 82.6% of the cases employing the ACT, providing robust cognitive documentation of psychometric based cognitive loss in a large majority of fibromyalgia patients. Inability to filter the effects of distraction may be one reason why new information erodes so quickly in real life situations. These findings might be taken to indicate that the ability to handle the distractions of daily living may be weakened in FMS. Deficits of this magnitude can translate into large adverse effects on the ability to function in daily living.

    Distractions are more than a nuisance variable that cause the mind to wander. They are a vital part of life and central to an understanding of the cognitive underpinning of why people with fibromyalgia do not remember, and why neuropsychologists must take distractions from competing tasks into account in their examination. Tests batteries, if not appropriately constituted, may miss the processes that cause memory to falter in fibromyalgia.

    A close examination of test usage among neuropsychologists in the U.S documents the neglect of distraction in neuropsychological measures of memory. In two recent surveys, not a single neuropsychological test listed in the top 50 measures popularly employed by neuropsychologists measures the interplay between memory and a source of distraction that diverts attention away from the primary task for a period of time. The Auditory Consonant Trigram was not ranked in the top 50 in either survey. In both surveys, the Wechsler Memory Scale was the measure most widely used by neuropsychologists to assess memory functioning in fibromyalgia. Unfortunately, it is also a measure with serious shortcomings for assessing memory complaints in fibromyalgia. It entirely eliminates sources of distraction, which are so prominent in daily recall of information. Instead, it taps cognitive skills in FMS that are largely working adequately, thereby obscuring the very cognitive deficiencies that are salient to their complaints. People can have excellent memory when isolated in a distraction free environment, and extremely poor memory when they must address a source of distraction that divides attention.

    Our on-going research shows that cognitive tests free of distraction do not paint a full picture of memory functioning and helps to dispel doubts about memory complaints in fibromyalgia patients. It suggests that the typical neuropsychological battery does not involve a fair measure of the ability to remember in fibromyalgia. When appropriate cognitive tests are administered, FMS patients with memory problems display substantial psychometric based evidence of impairment. Rather than being at odds with FMS complaints, the findings compliment self-reports and show FMS appreciation of failing memory has a legitimate basis. When measures focus on “real life” memory skills, memory complaints and psychometric based evidence align nicely. It is only by employing measures that assess more representative obstacles to remembering that we can hope to farily address the cognitive complaints of fibromyalgia patients.

    Reference:
    Leavitt F, Katz RS. Distraction as a Key Determinant of Impaired Memory in Fibromyalgia. Journal of Rheumatology (In Press).
  5. mainerose

    mainerose New Member

    i ahve fibro-fog bad. if you look back a few days you will see a very bad experince i had with a comunity support worker. i see a psc. every 6 weeks and we have touched on the fibro-fog.
    i donot know what they will do with you, but with me it waas general questions. like how many times in a week do have this problem; what type of things do you forget. that is general, but that is what they did with me
  6. elliespad

    elliespad Member

    My sister went to one for years. I believe he was a PsychoNeurologist. He concentrated on her Hypoglycemia, helps a bit.

    I just posted a response to a post on memory. I will cut and paste it here for you.

    Lots of things to help memory, 05/26/06 10:05 PM

    Fish oils, Pregnenolone, ground flaxseed, lecithin, Phospholipids (phosphatidylcholine, Phosphatidylinositol or Phosphatidylserine), Magnesium, Vit-E, HIGH level Antioxidants (many sources)(blueberries, Gingko, Green Tea, Resveratrol, any antioxidant is good)

    I use all of these on a rotational basis for past 4 or 5 years, (except for the Resveratrol) and my brain has improved dramatically. Picking one will not likely do much, if anything. It takes SEVERAL approaches, and must be mainstreamed longterm. Hope this give you someplace to start.

    OH, and move this to #1: Stop consuming Artificial sweetners. They are NOTORIOUS for causing brain problems, especially memory and migraine.



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