Discussion in 'Fibromyalgia Main Forum' started by Adl123, Feb 22, 2006.

  1. Adl123

    Adl123 New Member

    Hello All,
    I just started going to a Rheumy. Here are some things that have happened. Please tell me if you think these are warning signs and I should drop him? Or, maybe I'm expecting too much . . . .

    He prescribed Sulfasalazin, which is described in the lieterature as an anti-inflammtory. It also says that it can cause bleeding and that people with affected kidneys shouldn't take it.

    Now, I'm VERY sensitive to non-steroidal anti-inflammatories. They make me hemorrage, usually in the area of the head.
    My kidneys are leaking proetin, and are in beginning kidney failure.

    When I mentioned this to the Dr., he said not to worry, yet he has ordered monthly tests to monitor me while I take this medicataion!

    I'm very sensitive to meds.(I'm allergic to 50 at this time), and am really afraid to take this.

    Also, when I asked for copies of my lab tests, all I got was a written evaluation. This bothers me. Why wouldn't he give me copies of the lab reports? (I haven't had a chance to ask him yet, but , of course, I shouldn't have to, now, should I?).

    Please tell me what you think.
  2. PVLady

    PVLady New Member

    He may not be the right doctor for you. It seems every doctor has different styles. My doctor always gives me copies of the actual lab results, even a updated complete copy of my medical records each year.

    If you are not comfortable with him, it may not get better. I believe if you have doubts about a med, don't take it.

    My doctor has been trying to get me on Statin drugs for years. I just don't want to take them. I have read the side effects am also afraid.

    Sometimes we need to follow our instincts...
  3. Jeanne-in-Canada

    Jeanne-in-Canada New Member

    Totally go w/ your instincts, I'm sure they are right. And that doctor isn't very good if he isn't hearing you, and not including you in your own darn medical treatment.

    Giving you copies of lab reports should be protocol. Sounds like buddy has a god complex. I hate doctors like that.

  4. neen85

    neen85 New Member

    or not. It was about new doctor saying my lyme disease was a mental illness. Anyway,I had a bad feeling about this guy,but after discussing it with my MSW,she convinced me to keep seeing him because he was giving me the prescriptions I needed,even though it was a chore.

    I did,against my "gut" feeling. He ended up being dishonest about doing a necessary blood clotting factor test that he said he would do. He knew it was important because my Mother had just passed away because of a blood clot and I had already tested positive once and needed a repeat test "just to be sure".

    He also knew that I suffered horribly because of fibroids and a cyst on my ovary and could not take any treatment hormone-wise until I got on some type of anticoagulant.

    This jerk did all kinds of insignificant testing for "new patient" workup and somehow just didn't have enough blood left to do the important test. I say go with your gut. The rest of the conversation was far worse......I held my own,remained composed and shot him down with medical facts before I left. I think he violated my HIPPA rights,so I may go that way also. Daneen

  5. CinCA

    CinCA New Member

    About the advice to go with your gut. I've seen a few doctors who tried to prescribe more meds to deal with the side-effects (some major) of others. All they did was so overload my liver, etc. that my CFS really became full-bore and was finally diagnosed by a naturopath I now see.

    I learned over a long time of searching for health care to not ignore my intuitive sense. Hopefully you can find another doctor who is more "your speed". Good luck, and it's great you are questioning things. You ultimately have to take charge of your own health these days.
  6. Cromwell

    Cromwell New Member

    the phatmacist and get mopre info re this drug. Then, armed woith that, call the doctor and tell him straight this drug could place you in jeopardy.

    He is not listening, I don't like the sounds of it.

    My own doc, a family friend, keps trying to give me Neutontin I must have told him five times, I have allergy to it, remember?

    Good for you foe being on top of this. He needs to treta the whole person.

    Love Anne C
  7. JLH

    JLH New Member

    If you are actually in the beginning stage of kidney failure, you need to immediately make you an appointment with a nephrologist, who is a higher kidney specialist than a urologist. Put what the Rheumy told you "on hold."

    My father WAS in kidney failure and on kidney dialysis for 18 months. When you start going into kidney failure, the nephrologists will usually assume all of your doctoring, so they know exactly what is going into your system and how it will affect your kidneys.

    I know this is an absolute must after your kidneys fail and you're on dialysis. The nephrologist will take care of you when you have a headache, a cold, pneumonia, etc.--everything in the world that is wrong with you.

    If you are in beginning kidney failure, the nephrologist will probably also want you to eat certain foods and check the chemicals in your blood frequently (potassium, sodium, phosphorus, etc.)

    If you are not already going to one, why not give one a call and explain your kidney health, and ask if you are at the stage where you should be seen by them.

    I'm really concerned for you.

    Much love,
  8. Adl123

    Adl123 New Member

    for your imput .

    I don't know why I feel so strongly about this one. I think I was torn because I like the Dr., and even though this med. was for Rheumatoid Arthritis, I still really don't feel I should take it.

    Also - when I was little, I had some kind of extremely bad reaction to Sulfa drugs. My dad (who was a medical student at the time) told me that I was jaundiced and extremely ill. He thought I was going to die. He made the nurse tell him what they had given me (they weren't supposed to, in those days - the early 1940's) and when he found out, he picked me up and took me home, and got me well, himself. I wish one of my parents was still alive, so I could ask if it was a true allergy or not.

    I have decided to go to an acupuncturist. My Dr. told me that western medicine can't help me with my bone marrow infections (the triggers of my CFIDS/Fibro), because I can't take antibiotics.He said I need Acupuncture. I have found a well trained one - one who is also a Chinese doctor, so I have decided to try him. He will give me some herbs, too.

    Thanks to you all, for everything.

    Big hugs,

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