Are you also out of breath a lot?

Discussion in 'Fibromyalgia Main Forum' started by barb144, Jun 25, 2006.

  1. barb144

    barb144 New Member

    I have chronic fatigue but a lady I know with heart problems keeps telling me it's probably my heart. Most people don't understand chronic fatigue. I've had it for years but seem to be out of breath easily too, but it seems that if I exert myself any I would naturally be out of breath if I'm so exhausted. anyone know anything about being out of breath easily?

    Bending has always tired me out more than anything & I have a new job where I need to bend a lot and feel like I'm getting more tired all the time, and this week I've missed work because of being so super tired. any ideas?
  2. KMD90603

    KMD90603 New Member

    I also have CFIDS and notice I get winded very easily. I'm fairly active as I have a family to take care of and I work in healthcare. So, I'm constantly on the go. However, I notice even just climbing a flight of stairs can have me feeling short of breath. It seems to happen even more when I'm in a flare.

    The other night my best friend and I went out dancing. I knew it probably wasn't a good idea, but I'm one of those people who refuses to let this disease stop me. And many times that means I overdo it. So anyway, I got home that night and laid on the couch. Normally after any kind of physical activity, your heart rate should return to normal within minutes. However, my heart continued to race for almost an hour. It had me feel extremely short of breath, and everytime I'd start to doze off, I'd wake up feeling like I was choking. It was extremely scary.

    So now that I've written a book, I can definitely relate to this scary symptom. However, if it's anything new for you, make sure you call your doctor.

    Gentle hugs,
  3. Empower

    Empower New Member

    Hmmm, funny you should mention that, because I notice I am out of breath alot, like climbing a flight of stairs

    It is more prominent for me in the mornings

    Oh, I have CFS and FMS
  4. gymmbabe

    gymmbabe New Member

    I'm out of breath alot too. I was diagnosed with asthma a few years ago. I saw a lung specialist a couple of months ago. He says that I don't have asthma, that shortness of breath is a symptom of FM.

    When I have shortness of breath I massage a trigger point in my relieves the symptom.

  5. mrstyedawg

    mrstyedawg Member

    This is one of my most horrible symptoms. It is almost constant with me. What trigger point do you massage?

  6. Golde58

    Golde58 New Member

    I have CFS and I have shortness of breath most of the time. I was diagnosed with stress related asthma a few years ago, so I keep an inhaler on hand, BUT that shortness of breath feels totally different than this daily type. It seems to be much worse whenever I've totally exhausted myself or whenever I have a flare. I had gotten to the point with the CFS that I would work parttime (it took about two years to get to that point) and now the last 8 months I have been unable to work again. I'm lucky if I have 2 - 3 good hours per day.

    I also have heard that shortness of breath can be heart related and sometimes I wonder "what if" its not the CFS??? Thanks for the good post and I'm anxious to see what other CFS persons say about it.

    Take Care-

  7. JLH

    JLH New Member


    Don't always think that all of your symptoms and problems are related to your CFS, because they may NOT be!

    Shortness of breath may be attributed to your weight, IF you are overweight; it may be a problem with your lungs, such as asthma, or some other lung blockage or problem; or you could have a heart problem, something like congestive heart failure.

    Please make an appointment ASAP with the appropriate doctors to get your lungs and heart evaluated. Then, if you receive a clean bill of health from them, you can rest assured that your shortness of breath is due to your CFS.

  8. kholmes

    kholmes New Member

    I, too, have difficutly breathing--a feeling of tightness in my chest. It doesn't feel like deconditioning or a bronchial/asthmatic problem. It worsens when I overdo (for me, that means walking more than about 40 feet). I sort of feel it all day. A pulmonologist said my lungs checked out fine.

    Neurological problems can cause difficulty breathing (in fact, if I remember right, the Canadian definition of CFIDS includes neurological complications and possible breathing problems).

    But we should definitely request that our doctors refer us to cardiologists for an EKG, Echo, or a stress test. I haven't done a stress test, but the first two didn't show any heart problems. Still, I am a bit concerned about heart problems, too.

    Let's keep sharing information on this.

  9. bpmwriter

    bpmwriter New Member

    i get this too so i'll be tracking this thread. for me, it doesn't feel like true shortness of breath but more like a sack of bricks laying on my chest. i had a normal ekg then it went away for a several months after i got on lexapro but it's returned recently. since the lexapro seemed to helped i figured it was neuromuscular problem, possible anxiety-related, but now that it's back, i don't know what to think. i had it particularly bad yesterday along with allergy problems so i wonder if it's histamine-related? just read the cheney article so it could also be cardio myopathy?? so frustrating.
  10. serenety

    serenety New Member

    I get out of breath just from talking to people, climbing the stairs is like climbing a mountain. Fms has left me disabled & i also suffer from severe exhaustion. All this & i`m only 38 yrs old.
  11. mrstyedawg

    mrstyedawg Member

    Thanks for the advice about the TP. I, too, have had my heart checked, lungs, and every other organ in my body. All my tests were normal. When I had a pulmonary test done and it turned out normal, I broke down in front of the doctor and could not quit crying. I wanted something to be abnormal. The doctor walked out of his office and left me sitting there by myself.

    I agree that you should get your heart and lungs checked to make sure that everything is OK.
  12. BlueSky555

    BlueSky555 New Member

    I agree with jlh (Janet) about going to get it checked out. I have been giving out of breath very easy and also just fall asleep all of the time, no matter where I am; sitting down, standing up, or even trying to respond to this board sometimes.

    My Rheumy did some tests to find that I am anemic with some possible serious bleeding going on somewhere. Needless to say, the problems are just beginning.

    So, go to your Dr. and be safe, not sorry.

    I hope all goes well for you,

  13. RENA0909

    RENA0909 New Member

    I have had shortness of breath problems for quite a while now and the doctor gave me an inhaler but I dont think I have asthma and so I just put it down to my fibro.

    But lately I knew that there was something more going on because I just FELT alot worse than usual.I was just SSSSOOOOO tired after any kind of movement and had absolutlely No energy at all.It was not like fibro exaustion but as if I could not get any breath into my lungs.

    So when I went to docs again he did my blood pressure and it was high.I got it done again a few times over next 3 weeks and it high ALL the time!!
    So now I am on meds for it but I am glad I went with my instincts cos we have a history of heart problems in my family and 3 of my siblings are on meds for high cholestrol(which I also have)and so I would advise you to go get everything checked just to rule these things out.

    Good luck
  14. vickiw

    vickiw Member

    something to consider if everything checks out OK (no heart problem, asthma, etc)- people with pain and/or fatigue tend to breathe too shallow. It's an unconscious reaction to the fatigue/pain that can lead to a feeling of being short of breath or air-hunger.

    I had this problem too and had to take "breathing lessons." Ha ha, you think I'd know how to breathe at my age. But it worked out pretty well for me.

    You can search on this site for breathing exercises. There are all different types. The one I do is simple:

    breathe in for count of 3, hold for count of six, exhale for count of 3. Do 4 times in a row. When breathing in, be sure to fill the lower part of your lungs. You can tell you're doing it if your abdomen baloons out, rather than your upper chest.

    Do the set of four, 4 times each day (before getting up in the morning, before lunch, before dinner, before going to sleep).

    I've been doing it for a year and intend to keep it up because it has helped so much. I have CFS and there are times I just don't have the energy. Or sometimes it's too hard to hold for a full count of six. But most days I get in at least 3 rounds.

    You can do affirmations along with the exercise (instead of counting, you can say something like "I'm inhaling oxygen and peace, I am sending oxygen and peace to every cell of my body, I'm exhaling toxins and worry." That might be too new-agey for some, but I find it calming.

    [This Message was Edited on 06/28/2006]
  15. jole

    jole Member

    This makes me sad. Really! Because my shortness of breath is more from the constant fatigue - like I just don't have the energy to take another breath, and I don't think that's what the rest of you are talking about.

    As someone said, the fatigue makes it hard to talk, and for me hard to breathe - no pain, pressure, just sometimes feel the need to concentrate to take a deep breath.

    Anyone else like me or am I alone with this???

    Friends -
  16. mrstyedawg

    mrstyedawg Member

    You are not alone in this. I feel the way you do. Sometimes, it is like I have to make myself breathe. I get really scared sometimes, like I am just going to quit breathing and die. I've noticed that this problem has gotten steadily worse over the years.


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