Arm/Leg Weakness w/FMS?

Discussion in 'Fibromyalgia Main Forum' started by ScooterD, Dec 4, 2005.

  1. ScooterD

    ScooterD New Member

    To those of you w/Fibro - does anyone experience extreme leg and arm weakness most of the time?
    I have occassional pains in my limbs, however the weakness has gotten so bad it's hard for me to walk any distance at all.

    I have also experienced paralysis in my left leg - 4 different occassions in the last 8 months. No signs/symptoms beforehand...just BAM! Lasts about 20 minutes or so. Then I slowly start to get the use of my leg back. Weird - and of course a doc has yet to figure that one out.

    Thoughts or experiences??
    Thanks so much - Brenda
  2. jbennett2

    jbennett2 New Member

    I have leg problems, mostly the left leg. If I sit too long, I have to tell my legs to move, or I land on the floor.

    The only thing that has helped is when I was also diagnosed with Lyme. That was the first symptom to leave when I was put on antibiotics. Now I have to stop the abx because of yeast infection and the pain/numbness/weakness is back.
  3. lovethesun

    lovethesun New Member

    Some days I can't get out of bed,Several of us here use canes and wheelchairs.It doesn't mean it's going to happen to you,There are different stages of fibro.Some only have it mildly.Linda
  4. diny77

    diny77 New Member

    Hi Brenda,

    Yes, I too experience the weakness or as I call it "extreme muscle fatigue" on a daily basis. It really hurts too & I feel like I could just fall down in a heap. I hate it & it worries me too. I keep thinking, is this just going to stay the same or will it keep progressing, becoming more frequent or more intense. How long has this been going on for you & how long have you had the paralysis? It really frustrates & angers me how the medical profession(like my Dr.)simply dismisses it, after they have diagnosed it. Sometimes I feel like I just can't go on. I start seeing a counselor next week & am hoping that will help one aspect of this illness.

    Dianne
  5. rbecca47

    rbecca47 New Member

    My legs and arms feel like i have 100lb. wieghts on them. just walking to the kitchen is a job. My left side gets so bad i can't even move arm and leg. have to move slow or end up on the floor. Doc has run many test, says it is from fibro. but she has me seeing a heart specialist tomorrow. because being in the left arm, she is worried. had alot of heart test down and things look ok. but yes it is very frustrating, it is like i can't plan to do anything, until i know i can move with out weakness.
    I will keep you in my prayers,
    becca
  6. darude

    darude New Member

    Leg pain and weakness. Pain in them ALL time. Strange thing is can walk for about an hour but can stand for more than a few minutes. This is interesting and think we should keep this thread going to see if anyone found cause yet!!!!!
  7. ScooterD

    ScooterD New Member

    I feel so fortunate to be able to come to all of you with my concerns! As I'm sure you all have experienced, I feel comforted to know I'm not alone and it's part of the DD yet at the same time I'm frustrated because it's just one more problem with this progressive DD.(yes, I think FM is progressive!)

    I do use a cane when needed but for longer distances (like in a mall the rare occassion I go out) I need to rent a wheelchair. Of course the whole time I'm thinking about my initial diagnosis from the Mayo Clinic: "You do NOT need any type of assistance to walk! You are and will continue to be normal (yes, he said "normal") in the society." That visit is a whole 'nother story.

    I've done the heart tests along with every other exam/test and no conclusion "so it must be from the fibro." Or in my head as the neurologist told me - I wonder if I was the only patient that walked out of his office. That visit is a whole 'nother story. LOL

    Bless all of you. I'm off to Sister Kinney Rehab Clinic in Minneapolis for my 2nd visit on Dec 12 and one of the doc's there told me he would re-visit all of my symptoms to be sure there isn't something else underlying.

    I need to come here more often....this helps :>)

    Brenda
  8. kellygirl

    kellygirl Member

    I didn't know what was wrong with me. I journaled and actually thought I was dying. This was in the 1980's. I had mono and the weakness was awful. I can remember even having difficulty speaking and the leg being too tired to drive.

    Today, I do have the symptom occasionally. But, I can work through it. At the mall, I may have to use a shopping cart and stay at one store, I know if I can walk the mall or not. I try to gauge it that day.

    I have ended up with mostly pain now and tendonitis. When I am moving from a sitting position, my left leg muscle will grab me at the hip and I have to walk it out. People always ask, "are you all right?" CFS/FMS may never leave me completely, but I am functioning now. It's a day-to-day journey.
  9. lauralisa

    lauralisa New Member

    Dear ScotterD,

    I have found this arm/leg weakness to get very bad when I sleep for too long on one side of my body. I hate sleeping on my back, but it seems to help this arm/leg weakness which prevents me from walking. One night a couple of weeks ago, it took me two hours to get out of bed, the whole right side of my bed was in pain and numb. I couldn't stand on my leg at all for about two hours. It was awful. I thought I had a stroke for a few minutes but I realized since my face and fingers I probably didn't have a stroke. Thank God. I don't know if you sleep on one side but try minimizing and see if this helps. Just a thought. Hope it gets better.

    Take care,
    Laura
  10. AnaLi

    AnaLi New Member

    Dear Elliespad,

    DO NOT! repeat DO NOT! feel embarassed to use a wheelchair.

    A couple of years ago I had just about given up on doing my Christmas shopping (the only time I like to shop). When I did go shopping it was to one store in one asle! Whatever I found there - that is what I bought. It was so bad a couple of years ago that I had put off going to buy gifts which had to be shipped (ususally had these by Thanksgiving), and only had about a week to go before Xmas.

    My hubby (who has been a godsend through all of this)took me to the mall of all places to go shopping. He pulled up to the valet parking (free for the handicapped) and I hobbled into the mall. There, right in front of us was a place to get wheelchairs - electric ones!

    Just that short walk into the mall had put me in agony, but I was determined to get the shopping done, so I got one of the electric chairs. It was wonderful!

    The next day I hauled my daughter to the mall with me and I finished all my Xmas Shopping! Now we do this every year and have made it a great family outing! It is especially fun to hid behind the clothes racks where family members can't see you. Great hide and seek fun!

    It has become a new "family tradition". As long as you can hobble to get the chair - use it - that is what they are their for - it gives you a wonderful sense of freedom!

    Try it and have a great holiday!
  11. hartogold

    hartogold New Member

    Hi Brenda;
    I haven't been here for awhile, but when I signed in, your post was the first one that caught my eye.

    I have actually been avoiding anything having to do with my FMS/OA. I have been so depressed and having suicidal thoughts for the last couple of months. My wonderful psychiatrist of 8 years and I work together to come up with tools to help prevent major depression, but this time around they don't seem to be working. I feel like I just don't care anymore.

    Anyway, sorry to go there, kinda got off topic. My arms, legs, hands and feet are at some pain level 99% of the time and the pain level averages about 7...never below a 5. It's like having a toothache all over my body. This, of course contributes to the weakness. I think the only way I can make people understand what it feels like is Popeye without his spinach or Superman sitting next to kryptonite but with lots of pain.

    I was diagnosed about three years ago, but I'm sure I've had FMS much longer. It bothered me, but NEVER like it has this year. I have been in so much pain and so weak for the last three months and NOTHING works. I have done everything I've learned to do for relief including advice from docs, friends, you wonderful people here, etc.

    I take 40mgs oxycontin twice a day and percocet for break-through pain. It takes the edge off, but as I said...the pain is enough to drive a person insane. And sometimes the medical community is good at doing that too(though that's another saga).

    I will be posting in awhile. I need to and you'll see why afterwards. I'm normally a Pollyanna, cheerleader, motivator, etc., but I've just about given up. I don't care whether I live any longer. I know I'm suicidal when I reach the stage of "not caring" and not being afraid to die.

    I pray for all of us. And it's good to know I'm not nuts because I have the pain and weakness in my limbs. I thought that was just me, and all in my head. It's pretty bad when you have to plan and strategize getting out of bed to go to the bathroom. Bless you all.
    Sandy