Article From The NFA Newsletter...

Discussion in 'Fibromyalgia Main Forum' started by FibroPainSufferer, Apr 19, 2007.

  1. FibroPainSufferer

    FibroPainSufferer New Member

    I just jumped on to check my email & there was this email from NFA's newsletter. I'm too tired to read it to get up early for work, but I thought I'd share it with everyone.

    Good Night!!!

    20 April 2007

    National Fibromyalgia Association Epidemiological Study Results Released

    The largest online survey gives “snapshot’ of over 3,000 fibromyalgia patients

    ORANGE, Calif.--- Morning stiffness, fatigue, non-restorative sleep, pain, low back pain, concentration, and memory “fog” were among the most common problems reported by people with fibromyalgia (FM), according to the results of an internet survey conducted by the National Fibromyalgia Association (NFA) in which over 3,000 people with fibromyalgia responded in less than 3 days.

    The survey also reported that when it came to out-of-pocket expenses related to the management of their fibromyalgia symptoms, 74% of responders spend between $100 and $500 per month on over-the-counter products; 61% spend between $100 and $500 per month on prescription medications.

    The survey is the first of its kind, giving a “snapshot” of people with fibromyalgia. Experts say the results can be used to identify significant issues for further research. “The dramatic response to this survey highlights a great need for more in-depth research to improve the diagnosis and treatment options for people with fibromyalgia,” said Lynne Matallana, president and founder of the National Fibromyalgia Association, the largest FM nonprofit organization in the world; its mission is to develop and execute programs dedicated to improving the quality of life for people with FM.

    Approximately 6 to 10 million people are afflicted with fibromyalgia in the U.S., with a female to male ratio of about 9:1, according to the National Fibromyalgia Association.

    A vast majority of the respones from the survey were from the U.S.;46 responses came from 12 countries outside the U.S. The respondents were predominantly middle-aged Caucasian females, 75 percent of whom had experienced FM symptoms for more than 4 years. Only 3.2 percent of the responders were male. The age rage of all responders were between 17 to 77 years old.

    Other survey results included:

    64% were currently married
    13.6 % had a household income of less than $20,000
    21.7 % had a household income of over $80,000
    63% reported lower back pain
    47% reported recurrent headaches
    40% reported chronic fatigue

    Symptom management interventions perceived to be most effective included:

    Heat modalities
    Prescription pain medications
    Prescription antidepressants
    Prescription sleep medications
    Pool therapy

    Written by the study’s principal authors and investigators: Robert Benett, M.D.; Jessie Jones, PhD, FACSM; Dennis Turk, PhD; I. Jon Russell, M.D.; and Lynne Matallana, the complete results were published in the March 2007 issue of BMC Musculoskeletal Disorders, an open-access journal publishing original peer-reviewed research articles on all aspects of the prevention, diagnosis and management of musculoskeletal and associated disorders, as well as related molecular genetics, pathophysiology, and epidemiology.

    About the National Fibromyalgia Association

    The National Fibromyalgia Association is a non-profit 501(c)(3) organization whose mission is to develop and execute programs dedicated to improving the quality of life for people with fibromyalgia by increasing the awareness of the public, media, government and medical communities. The NFA publishes a quarterly magazine, Fibromyalgia AWARE, and hosts an award-winning website.

    For more information about the National Fibromyalgia Association, including the upcoming National Fibromyalgia Awareness Day on May 12 co-hosted by the NFA and California State University, Fullerton, call 714-921-0150.


    Corin Walson, APR
    Access Media Group, Inc.

    [This Message was Edited on 04/19/2007]
  2. Fmandy

    Fmandy New Member

    "We" did well, he he he. No, I didn't take part in the survey, but I am very proud of all that did. I think this is good PR for us. Especially all the out of pocket expenses. I bought $80 worth of the latest designer supplements today, lol. I don't think I'll be taking one of them though. I took 50 mg of 5-htp today for the second day in a row. Felt ok yesterday but today have felt very bad.

    I think I overdosed on the very potent prescription potassium today. I took 30 meq. I don't know why I took that much. I am only supposed to take 20meq with 40 mg of Lasix. The thought that I was kind of low on K just ran through my head and I tossed down too much. (hyperkalemia can be lethal) The 5-htp has had nothing to do with my "flu" and wacky heart beat. I think baking soda will help lower potassium (K) in an emergency...

    Get a good night's rest Mrs. FPS :)
    Don't slave at the salt mine tomorrow either, lol.

    Andy (the potassium addict)
  3. FibroPainSufferer

    FibroPainSufferer New Member

    Oh, Please be careful!!! I know when I first started taking all my medicines, which is about enough to open my own pharmacy :) I finally had to get one of those pill reminders that lists the days of the week & I put my medicines in there now. I’m on so many medicines that I had to buy another one just to hold all of them. I’m 37 years old yet I feel & act like I'm 90 :)

    Please let me know that you are okay!!! By the way, work was horrible today, it felt like the day would NEVER end!!!

[ advertisement ]