Attend the March 12-15, 2009 IACFS/ME Conference

Discussion in 'Fibromyalgia Main Forum' started by mindblower, Dec 18, 2008.

  1. mindblower

    mindblower New Member

    Hi, Everyone.

    These conferences tend to always be an opportunity to gain new knowledge, develop new partners and deepen the commitment to conquering this condition. Who here now plans on attending or at least is willing to consider attending, well-being allowing, this upcoming ME/CFS conference section for ME/CFS patients?:

    9th International IACFS/ME
    Research and Clinical Conference
    March 12-15, 2009 - Peppermill Resort, Reno, Nevada

    Thursday, March 12 - Patient Meeting

    9:30am - 9:45am
    Welcome & Introduction
    Nancy Klimas, M.D
    Board Member IACFS/ME, President

    9:45am - 10:45am New Developments in Possible Causes of ME/CFS
    Daniel Peterson, M.D.
    Anthony L. Komaroff, M.D.
    Simcox-Clifford -Higby Professor of Medicine, Harvard Medical School
    10:45am - 11:00am Break
    11:00am - 12:00pm New Research on What Helps People Cope with ME/CFS

    Fred Friedberg, PhD
    Board Member IACFS/ME, Treasurer
    Assistant Professor, Stony Brook University, Stony Brook, NY

    Leonard Jason, Ph.D.
    Board Member IACFS/ME,
    Vice President Professor,
    Clinical and Community Psychology, DePaul University, Chicago, IL

    12:00pm - 1:30pm Lunch Break
    1:30pm - 2:30pm Latest Research on the Pathophysiology of ME/CFS

    Board Member IACFS/ME
    Hirohito Kuratsune, M.D., D. Med. Sci
    Professor, Faculty of Health Science for Welfare, Kansai University of Welfare
    Visiting Professor, Clinical Center for Fatigue Science, Osaka City University
    Medical School

    Kenneth J. Friedman, Ph.D.
    Board Member IACFS/ME
    Associate Professor of Pharmacology and Physiology, New Jersey Medical School,
    University of Medicine and Dentistry of NJ

    2:30pm - 3:30pm Assessing ME/CFS Brain Functioning
    Gudrun Lange, Ph.D.
    Clinical Neuropsychologist -Professor, UMDNJ-New Jersey Medical School
    War Related Illness and Injury Study Center, DVA NJ Health Care System An
    overview about assessment of cognitive function in CFS/ME. Utility and
    pitfalls of neuropsychological testing and neuroimaging will be discussed.
    Questions are encouraged.
    3:30pm - 3:45pm Break
    3:45pm - 4:45pm New Developments in Pharmacologic Treatments
    Nancy Klimas, M.D.
    Board Member IACFS/ME, President
    4:45pm - 5:30pm Panel Question & Answer Session (questions written out)
    Nancy Klimas, M.D.
    Dan Peterson, M.D.
    Anthony L. Komaroff, M.D.
    Fred Friedberg, Ph.D.
    Lenard Jason, Ph.D.
    Hirohito Kuratsune, M.D., D. Med. Sci
    Kenneth Friedman, Ph.D.
    Gudrun Lange, Ph.D
    5:30pm Patient Meeting Concludes


    [This Message was Edited on 12/18/2008]
  2. bjsmit1

    bjsmit1 New Member

    I am planning on attending, health permitting.

    It's great when so many brilliant minds are brought together to work on CFS. I've never been to an IACFS/ME conference, so I'm not sure what to expect, but I'm always optimistic.

    Brian Smith
  3. AuntTammie

    AuntTammie New Member

    Please report back here about the conference. I would so love to be able to go, but there is no way I am physically up for it, nor would I be able to afford it.
  4. DeborahLynn

    DeborahLynn Member

    I'd love to go; my health is very poor due to these diseases, and I can't work, so finances are really skinny right now, but if the Lord provides a way, I'll be there with bells on! I love to do anything I can to support research and learn about CFS/ME, as well as meet others who have these diseases to support one another. I really hope I can go, but right now, I'm having a hard time even getting up in the mornings... I really wish I could meet some of these great ME/CFS researchers I've read about! The Lord knows, and He will provide if it's His will...

    My love to all, and Merry Christmas, all! Debbie
  5. mindblower

    mindblower New Member

  6. mindblower

    mindblower New Member

  7. SolSerenade

    SolSerenade New Member

    my health is crap - but i've looked into attending; will depend on last-minute assessment of health and flights to Reno.

    has anyone been to Reno, specifically the hotel where the conference is held? Am interested in hearing any info. or opinions on the place -- kinda taking into account the whole scene experienced by a very ill me/cfs person.

    the fact that it's a "gambling town" - is it a "me-sufferer nightmare" in terms of noise, lights, and drunken revelry?

    i can appreciate a lake and mountains; don't get me wrong ........... just curious about the general environment and it's "m.e. friendliness"

    thank you!
  8. labrat

    labrat New Member

    I am thinking about attending, but will wait to see if airfares go down closer to the date.
  9. SolSerenade

    SolSerenade New Member

    i'll do my best - it's not "a sure thing" until i'm actually there. (i have heard in the interim that Reno is "way more tolerable than Vegas" for ill people")

    I plan to find a reliable voice-recorder so i will have the entire "patient day" presentations recorded. (as i'm certain it will be information-overload)
  10. star273

    star273 New Member

    I live about an hour and 15 mins away and I would love to go. Please let me know if anyone is planning on attending. Seems like it would be a long day but I would love to be there.. Does anyone know how much it is??
  11. SolSerenade

    SolSerenade New Member

    is $50 if you are a member of IACFS/ME and $75 if not (includes year membership, which is $25).
  12. gotdirt

    gotdirt New Member

    yes I stayed at the peppermill in august and again in nov. much nicer than the atlantis casino. the rooms are very luxurious. and priced very reasonable. better than anything you can get in los angeles. and the service is great. everyone is very friendly. if you don't want to stay in a casino than the quality inn is just down the street. at Virgina st and plumb lane. if you have allergy's then you might notice it more because of the sagebrush and pine trees. I do everytime I go. the airport is only 5 to 6 miles away. so not such a big problem.
  13. mindblower

    mindblower New Member

    I may attend the first few days of the conference too, a long sought after breakthrough in my chronic headache by then allowing. And bellow is a description of the Peppermill Hotel along with contact info and room pricing, but for those who a picture or video is worth more than words can offer and the feel the visuals a destination gives you sways your decision to go, here is a link to a video tour:

    Peppermill Resort

    2707 South Virginia St, Reno, NV 89502
    775-826-2121 or 866-821-9996

    The Peppermill is Reno's premier hotel-casino resort, where you will be treated to the most luxurious accommodations offered in any Reno hotel. With 1,635 of the most award-winning rooms in Reno, including 720 beautifully appointed suites, the most in Reno, the Peppermill is the pinnacle of Reno hotels and resorts.

    With stunning panoramic views of snow-capped mountains and the city lights of Reno the Peppermill's luxury amenities and attention to personal service set the standard for accomodations in Reno. The Peppermill boasts ten of the most celebrated restaurants in Reno, and each restaurant is a visual and culinary treat. The Spa Toscana is a full-service salon for your relaxation and enjoyment.

    The Peppermill is conveniently located to all the major Reno attractions. Downtown Reno is two miles away and the Reno-Tahoe International Airport and the Reno-Sparks Convention Center are nearby as well. The Resort offers a convenient complimentary airport shuttle service.

    To reserve your hotel room please call 800-282-2444 or 775-826-2121 and be sure to mention that you are attending the IACFS/ME Conference.

    Discounted Room Rates:

    Montego Bay Wing - $89 per night
    Peppermill Tower - $99 per night
    Tuscany Tower Suites - $159 per night


    [This Message was Edited on 01/12/2009]
  14. pluis

    pluis New Member

    Hi Cat and everyone else,

    I am also almost certain that I will be attending the patient conference.

    I think that I will also attend the other days but then only the afternoons. Please consider to sign up for the banquet as well (Saturday evening) b/c I have heard that is a good time to meet with the experts and other patients.

    Mariska Pluister
  15. SolSerenade

    SolSerenade New Member

    my understanding after reading the conference info. (many times) is that there is ONE day for patients and the rest, including the banquet, is *not open* to patients.

    if I attend, it will certainly be for the whole week, but it seems to read as if "non-doctors/specialists" are excluded from everything except the "patient meeting", i.e. one day.

    another thought: the *45 minute* Q and A strikes me as WAY too short; an insult, almost.
  16. labrat

    labrat New Member

    On the patient registration form, you can sign up for one day or all 4 days of the conference and can sign up to attend the banquet also. So even though it says "Professional" patients can attend those meetings according to the registration form.

    I did attend the professional sessions at the conference in 2004 or 2005 in Wisconsin, and it was very exhausting for me. My brain was fried, I do have a bachelor's degree in Biology, but lots of it was way over my head. Think I'll pass on the scientific sessions this yr and just go to the patient conference.


    An additional note:
    Just a note on the room rates. I checked the Peppermill website and if you're staying during the week, the Montego bay rooms are $60 which is cheaper than the conference special rate. The rooms do cost more on Fri and weekend nights though.[This Message was Edited on 01/16/2009]
    [This Message was Edited on 01/16/2009]
  17. SolSerenade

    SolSerenade New Member