Attention TWINS!

Discussion in 'Chit Chat' started by Elisa, Oct 5, 2011.

  1. Elisa

    Elisa Member

    --Saw this on Facebook from Dr. Enlander---

    Posting this for all my ME/CFS Twin friends:

    Derek Enlander The Mount Sinai ME/CFS Research and Treatment Center will immediately initiate its first research cohort . This will be in ME/CFS genetic research. We are seeking patients who are twins, if you are a twin or know of a ME/CFS patient who is a twin I would like you to contact me on my email

    Take Care & Love,


  2. spacee

    spacee Member

    Will look into it. I'm not sure he would want us since she had CFS and recovered. AND I don't think she wants to be involved. She would love to never hear of CFS again and put the 7 years
    of hell behind her.

    I know the NIH asked for our brother's blood but what they did with it, have no idea unless it
    was to test the T-cell count.

  3. Elisa

    Elisa Member

    Hi Spacee,

    Thanks for responding!!!!

    I saw this on Facebook from Dr Enlander and thought I should post it here. There's always heavy pressure on twins for these genetic studies...that's for sure.

    Hope you are well my Garnett Hill PJ Friend!



  4. spacee

    spacee Member

    I think the selection this year isn't so great but I still got some (pjs).
    I got the ones with the trees. Not quite as cute as the poka dots of
    last year...imho.

    I have not heard back from Dr. Enlander. Perhaps he didn't know about
    the other Twin Study and wanted to check on what he could find from

    Your sweet!