Back from docs appoint jenni4736 (and anyone else interested)

Discussion in 'Fibromyalgia Main Forum' started by valleyann, May 19, 2006.

  1. valleyann

    valleyann New Member

    Hey,

    I am being referred to a liver specialist, probably get in after 5/6 months. Where they are most likely going to perform a liver biopsy on me.

    My liver enzymes (ALT) has been elevated for over 2 years now...just this last year in october the count was 45 and now it has jumped up to over 90 (twice of a normal person)!

    I am getting a little nervous because I was checking out various liver diseases and some of my symptoms seem to match up... I don't want to think about it too much because it'll drive me crazy.

    I was wondering if anyone has any knowledge in this area? Has anyone had a biopsy?

    Thanks.

    Valleyann
  2. valleyann

    valleyann New Member

  3. BabiCati

    BabiCati New Member

    Mine were elevated for a while and the doctor thought it could be autoimmune hepatitis because my ANA was positive. Then the ANA was suddenly negative and the liver tests were fine when the BC pill I was taking was changed. They can sometimes cause a false positive. I came close to the biopsy but didn't need it. Good luck! I am sure everything will be fine, don't worry about it until you know what you have or don't have.
  4. jenni4736

    jenni4736 New Member

    It's jenni...

    I am so sorry you are having so much trouble getting a firm answer. It makes it hard when you have to wait and wonder for so long.

    I have been doing the same thing with Lupus, until today. I too Doc today, the internist/Rheumy. Her office was great...they had a FULL lab right there.

    She put puzzle pieces together from years ago that no one had figured out. The rash, severe fatigue, new joints involved, etc. were from the Lupus all this time. What is worse...my PCP (who I do love) has been asked several times about it. Every time he says...no

    Well, he got trumped by labs and the internist today. I don't like the answer, but atleast I got one. I hate that you still don't ...it is so frustrating!

    Try not to let it stress you out. I know it's easier said than done, but I don't want you to end up in a worse flair because of it.

    The internet is a great place to get info, but sometimes, we get too much. Kep researching...but don't get too sucked in until you KNOW what you are dealing with.

    Is there no other doctor like a primary care one that could make things happen faster? At least if they could start some of the tests....

    Take care... I'll be praying for you...and thinking of you.....wishing you well

    jenni
  5. valleyann

    valleyann New Member

    I'm ok with waiting for my liver results...I mean I have been wondering for a few years now so I'm used to waiting.
    I'm pretty sure I have to wait for a liver specialist to get any results, my family doc didn't seem to know much about what else to do.

    I guess whatever happens, happens right? Whatever is in God's plans for me I will accept and make the best of.

    I'm glad that you got your answers that you have been searching for...even if nobody wants a disease whether it be Lupus, FM, or any other disease, it's better to know about it so you can start treating it.

    I know what you mean about the internet...it's almost adicting to be able to go online and find a mountain of information on pretty much anything. And then you can get really caught up in everything. I don't want to do that, so I promised myself to just ignore my liver for now and focus on educating myself on FM and start trying to get better.

    How are you doing? Are you feeling ok?

    Valleyann
  6. valleyann

    valleyann New Member

  7. jenni4736

    jenni4736 New Member

    Thanks for asking...

    I'm doing pretty good today. I guesss it fells good to finally have some firm answers. She gave my some Lidocaine patches to wear. Those have helped the spasms in the shoulders and neck, so that 's good.

    It's hot here in Texas (about 97* today)so it has wipped me out a bit. My little one had his last baseball game today. I'm glad the season is over, getting too hot.

    I hate you are going to have to wait for the liver test so long...but I agree with you on putting it aside until you can get some answers. You really can get to an "OBSESSIVE" place searching for info all the time.

    How are you doing? Are you finding some books and good info?

    I am reading a book called "chronic Fatigue Syndrome, Fibromyalgia and Other Invisible Illnesses". The author is Doctor Katrina Berne. She has FMS and CFS so she knows both sides ...being the doc. and the patient. It has tons of info on tests, cpoing skills, family issues, etc. Therea re losts of quotes that ring true too.

    I really liked it, thought you might see if you could get it too. It might help get some answers. I also like that it has an index in the back so you can go bcak to it when you have question and want to reference back to an issue.

    Talk to you soon, HUGS

    jenni