Bad day today, need some encouragement

Discussion in 'Fibromyalgia Main Forum' started by cristine04, Mar 31, 2003.

  1. cristine04

    cristine04 New Member

    After all this suffering my internist calls today and says "you know you should just try some antidepressants." I am fighting back tears. Can't decide what to feel more sadness or anger. He said "you are a picture of health--perfect labs, no clinical signs for trouble, you are just a good kid and everything will be ok." I was stunned. I haven't seen him since November (been seeing the rheumatologist and infectious disease specialist). Our conversation today was a basic "touch base" type but I can say that it will definitely be our last. Here I am at age 22 hoping to begin my graduate studies after serving as Student Body President at a major university and he thinks I enjoy this? I have willed this? I feel like I have now experienced the rite of passage for those who have a "make believe" illness/virus/bacteria. And it feels horrible.
  2. CPRN911

    CPRN911 New Member

    I am "new" to this board...and just read your note...I am in the "medical profession"...have been for over 25 yrs...am an ER nurse...and I can SOOOOO appreciate how you feel....such "pat" responses are soooo common....has been my experience that often times unless the docs can actually "see" the problem...it's so easy to placate us with...something "trite"...like what you were told...and I have to tell you...I have seen MANY MANY patients over the years in the ER with fibro/EBV/CfS and they are CONSISTENTLY blown off by the docs and alot of nurses as "not having a REAL problem and just "drug seeking"...my advice to you...you KNOW this is REAL..how you feel...continue to research for ways that help YOU...and find a DR. that "LISTENS" to you...no matter how long that takes!!! THIS IS NOT MAKE BELIEVE....your "rite of passage" is yet another example of our illustrious health care system and it's "empathetic and understanding" caretakers...
  3. Bellesmom

    Bellesmom New Member

    I just hate to see someone your age suffering like this - it just makes me cry as I type this. I was very sick with something like mono when I was your age and then I had an inflamed breastbone - that's what they said it was. I suffered intensely for a few years in there as the "hangover" from all of it carried on and then pretty much got over it. But I've never been real strong and then got hit at age 59 with FMS/CFIDS.

    I sincerely hope you find a doctor(s) that realizes what you're going thru (I'm even still looking for that and I am trying for SSDI) and I KNOW you will find good support on this website.

    My heart just cries for you. None of us asked to be here but we are and so keep in touch, let us know how your tomorrows are because we really care.

    Love
    Pam
  4. Msagn

    Msagn New Member

    Hello Cristine, I guess I should consider myself lucky as my bout with FM didn't start till I was in my late 60's. Getting progressively worse. I looked for years, scans, x-rays, all kinds of blood test. Same as you I'm sure.
    I happened onto a pain clinic for arthritis but they had some luck with FM. Our bodies produce hydro cortisone naturally, but for some reason... heredity, lifestyle, for what ever reason it stops producing the correct amount.

    Many here on the board have gone on prednisone "a man made substitute" only problem it's seven times stronger than what your body use to produce. And can lead to complications if taken in excess.

    The program I am on take into account, age,sex,weight, activity levels ect. They run this through a computer and come up with the amount of hydro-cortisone your body whould normally make, and they put you on a "self" medicating dose

    Not everyone in the group that started when I did got results. But if you do, there within 2 weeks. It was nothing short of amazing for me personally.

    Do a search on Microdose therapy, you would have to come to your own conclusions about it. I can only relate my own experience.

    Best of luck, I've been there too. Not anymore.

    msagn
  5. OHELPME

    OHELPME New Member

    I'M SO SORRY YOUR HAVING A HARD TIME WITH YOUR DR. THEY ARE HARD TO COME BY AT LEAST ONES WHO WILL TAKE THE TIME TO ACTULLY LISTIN I KNOW ALL TO WELL ESPECIALLY BECAUSE OF YOUR AGE.I WAS 17 WHEN I FIRST GOT SICK AND BACK THEN CFS WAS CALLED THE YUPPY FLU AND I DIDNT FIT THE AGE GROUP ECT, BUT THANK GOD FOR MY MOM WHO PUSHED TH DR.S FOR ANSWERS I FINALLY GOT TO SEE THE AT THAT TIME THE ONE DR. IN PORTLAND WHO SPECIALIZED IN CFS.ANYWAY I'M NOW ALMOST 34 AND ALSO HAVE FIBRO.BUT BACK TO YOU I TOTALLY FEEL FOR YOU ,DO YOU HAVE ANOTHER DR. YET? DON'T GIVE UP HOPE ON FINDING ONE YOU MAY HAVE TO WEED THROUGH SEVERAL BEFORE YOU FIND THE RIGHT ONE AND I KNOW IT SOUNDS LIKE HARD WORK BUT ITS WORTH IT IN THE END.YOU WILL ALWAYS FIND ALOTS OF HELP HERE IT'S BEEN A BLESSING FOR ME.HANG IN THERE AND DON'T BE TO HARD ON YOURSELF ABOUT SCHOOL, STRESSING OUT CAN MAKE THIS WORST ,JUST TAKE ONE DAY AT A TIME FOR NOW.HANG IN THERE LET ME KNOW HOW YOUR DOING.TAKE CARE STASHA
  6. pam_d

    pam_d New Member

    ...I feel for you, to be going through this at any age, let alone such a young age. What is it about doctors that they feel we WANT this horrible illness, that we CRAVE attention through our symptoms? What kind of a sick world do they live in that they think WE somehow enjoy feeling this way??? I know a lot of doctors react the way yours did, I've seen them, too, but I will never get used to that kind of response! I know it's so hard, but never see that doctor again, and keep trying to find someone out there who's better, not an easy task I know from experience....it's so difficult to find a really good one, I'm still going to doctors who are "passable" but not great....

    Keep trying, though, and communicate with us here any time; we may not always have any answers here, but we are good supportive listeners, & that can help, too.

    Hugs,
    Pam
  7. bejo

    bejo New Member

    Drs.that act like that make me so mad.If they think this disease is fun they should try it a while.I had trouble finding a new Dr. when mine moved out of state.When I had an appointment with a new Dr.the first thing I asked when I saw them was if they were willing to work with me on fibro.Just keep trying,there are some good ones out there.I feel for you bacuase you're so young.I was in my late 40s when I started having symptoms.This is definatly real and any Dr. that doesn't believe that should go back to medical school.We'll all be here to support you and give what help we can.(((((hugs for you))))) bejo
  8. kmelodyg

    kmelodyg New Member

    Christine,

    Well, I am 24, and I definantly can relate with you. I am just about the same level as you. My doctor does not want to believe that anything is wrong with me. I think it is a major disadvantage being so young and dealing with these people. They just think that we are overexaggerating or trying to get attention. Well that's bull!!!! You need to speak up for yourself, and don't let anyone push you around. Someone on this board gave me really good advice. The past few times that I have talked to my doctor, I had burst out crying. And that got me nowhere fast. So I took their advice, restrained my emotions, and spoke clearly and to-the-point with him. And I ended up getting him to listen to me. Mabye that will help you. But definatly try to find a new doctor. I am looking for a new one too. I will be calling around first to see if each one TREATS fibro/CFS. That should save me alot of time and agony. I can't imagine being in school right now with these symptoms. I can't even hardly leave the house!! Hang in there honey. You can talk to us anytime you need to. Good luck!

    Warm hugs,
    Kathryn
  9. LisaMay

    LisaMay New Member

    I can certainly understand where you are coming from. It such a shame that the medical profession can't see outside the box. I'm sure they would feel and treat us differently if the shoe was on the other foot! You have a lot of years ahead of you. Stick with the Rheumy and IDS. Get rid of the negative. Surround yourself with the positive.

    In the beginning it was very hard for me to understand what was happening to my body. I thought I was becoming the biggest hypocondriac on the face of the earth. I finally found this board and was thrilled. As said "we may not have all the answers, but we are very good listeners". I hope the tables turn for you soon. Lisa
  10. cristine04

    cristine04 New Member

    Thank you for all the support and advice. I am doing much better now as I am realizing how ignorant this doctor was. I can't waste time thinking how bad the situation is, just move on and find other help. I got the name of a lyme literate doctor out here in Northern CA but I am #181 on the waiting list to see him. So I need to find someone else! I am very confused right now as to if this is or is not lyme or an extended reaction to the flu shot. (I got the shot when I had dealt with a bad cold the days before and this is apparently not a good time to get a vaccination). So, I will be looking around for more MD's today! Keep the suggestions coming..so many ofyou have been at this for way longer than myself.

    p.s. i am also wondering if after a week on doxycycline I should be experiencing some major "herx" reactions. it seems that if one has the lyme bacteria they experience more than just extraordinary fatigue
  11. Mewsley

    Mewsley New Member

    I have been suffering for some time but really got worse this past November. I have a doctor who wants me to go to a phychiatrist and a daughter who is an er nurse who thinks I should just take some paxil and forget about it. This is a very lonely life at times as no one seems to understand. It is sad that this is happening to you especially being so young but hang in there. I find self educating yourself is how I am handling this and take it one day at a time. Best Wishes.
  12. jka

    jka New Member

    it took me 2 yrs before i finally got diagnosed. i went into my doc and said -this is what i think ihave.then he agreed.i love my internest and he has done wonders for my lupus- but my rhumy has done the most for my fibro.maybe that's who you should go see. find one that knows something about this dd.my daughter is only 19 and she has it,too. i can only feel for you.starting out your life with this. but it can get better. mine has. all i can say is read all you can and get a good rhumy who will do something.
    i'm thinking of you
    kathy c