Bad news at the dr today......

Discussion in 'Fibromyalgia Main Forum' started by Aghllw, Oct 24, 2006.

  1. Aghllw

    Aghllw New Member

    I had an MRI last week to see why my right arm (shoulders, elbow and hand) and fingers were numb. The initial report said that there were "no cervical HNP".

    This hit me kinda funny, cause 5 years ago, there were 2 herniations at C5-6 & c7 with a uncinate spur present at c5-6. I also have a 4 mm herniation at the T4-5 region on the current MRI as well as the MRI from 2001.

    I went to my pain management dr today for a follow up and took the actual MRI films with me. I heard a lot of loud talking outside the door and then my dr, and the 2 other dr's in his office came into my exam room. My dr. proceeded to tell me that the neuroradiologist that signed my MRI report was NUTS!!

    I have a large 5mm cervical herniation at C4-5, 3 mm ones at C5-6 and C6-7 and a large bone spur at c5-6. Can you believe this?? And, here I thought I was losing my mind with trying to figure out where the pain was coming from if my neck was miraculously fine.

    Don't get me wrong, I believe in miracles...but BONE SPURS DON'T usually disappear!

    I have to see a neurosurgeon this week for a second opinion.... The moral of the story is, always pick up the films and take them with you for a follow up. The report could be wrong!!!

    I will keep you posted on what the surgeon says.

    God Bless and have a great day!
  2. lenasvn

    lenasvn New Member

    Yepp, I've heard blunders about incorrect readings of x-rays, MRI, CT's etc. I asked for my x-rays, they said I couldn't get the films, just the reports. I had more important things to battle at the time,but I am going after those films in the future.
  3. Aghllw

    Aghllw New Member

    Ain't it the truth. Thanks for the well wishes!
  4. Aghllw

    Aghllw New Member

    Those are YOUR films and I think they have to release them to you. There may be a small charge(usually only for paper medical info) and each facility has a time limit for how long it will take to copy them, but they are yours. I would most definitly pursue it. Just like my dr told me today, it is a good thing that I kept the films and reports from 5 years ago...otherwise I wouldn't have known to go and get the new MRI for him to look at.

    Take care of youself!
  5. caffey

    caffey New Member

    20 years ago I had xrays of my knee. 6 people looked at them and said there was nothing there. Saw an ortho surgeon who put them up on the board and immediatley said I had a shadow on my femur. Turns out it was only a bone infection but with my family history of the big C you can imagine how I felt. Makes you wonder where these guys went to school.
  6. Aghllw

    Aghllw New Member

    WOW! How are you doing today? Goodness, now that is gross negligence!!!!
  7. Marta608

    Marta608 Member

    ... you're now getting somewhere!

    It's so frustrating when you trust a doctor and they don't know what they're talking about!

    Good luck with the surgeon.

  8. Aghllw

    Aghllw New Member

    Ain't it the truth!!! Fortunatly, my daughter's volleyball coach is a radiologist. Would you believe that he just told me to bring my MRI to practice tonight and he would even take a look. That will REALLY make me feel better!!

    Sometimes it isn't what you know, BUT who!

    Thanks for the well wishes Marta!
  9. ephemera

    ephemera New Member

    Always get a second opinion on the readings.

    My spine MRI said I had a rupture on the right side. Oh no, said the surgeon, it's backwards & it's on the left. Go figure... I certainly will not use that hospital again for any testing...
  10. boltchik

    boltchik New Member

    Hi, like so many others have said-always get a second opinion! I am going to go get my lab results read by another dr. tomorrow. I am sorry that you are in such pain. I am hopeful for you though, since you now have everything set in motion to get yourself some help. I read your profile, like so many of us, you certainly don't look sick! Nice photo! I will say a prayer for you to get the help you need to rid you of your neck pain. Kim :)
  11. abcanada

    abcanada New Member

    I have an MRI this Monday, and that doesn't leave me with a great feeling. Here in good old Canada where the health care is free our docs don't usually get ANY source of film. They only recieve a report. I'm going to have a chat with my doc, and have her get them somehow!!! I already had CT Scan -normal. Now have waited 6 months for MRI and they better have someone on thier toes there that night. You know I'mm going to ask to meet the tech first tooo. That will get em on his toes. Wishing You Good Health, Laura
  12. Aghllw

    Aghllw New Member

    Thank you for your well wishes! You have a very nice photo on your profile too!! The thing about this DD and pain in general is that it doesn't discriminate. All people from all walks of life are affected.

    If you could have seen me yesterday, you wouldn't think that I DIDN'T look sick!! I had a really bad day yesterday. This photo was taken on a "good" day. I have those occasionally, thank the LORD!!!

    Have a great day!
  13. Aghllw

    Aghllw New Member


    I would encourage you to obtain your films somehow. Radiologists are drs, however, they are simply offering their "interpretation" on what they see. Makes me wonder how many of the other 7 MRIs that I have had in the last 10 years were read correctly?? I will let you guys know what happens after I see the neurosurgeon. He will know what is wrong.

    Have a great day and thanks again for your well wishes. We all do what we have to do to make it through another day. For me, my 9 year old daughter gives me hope and a reason. {:)

  14. Aghllw

    Aghllw New Member

    Thank you! I have to take this opportunity to tell you that you inspire me. Your knowledge and spirit is never ending and means so much to me and all of our friends here! The website that you put together is packed full of info for us and it is so easy to understand!!!!

    God Bless you Prickles!!!

    BTW - I am praying for your classes in Germany. I read your post yesterday about them and want you to know that I feel in my heart that you will do GREAT!!!

  15. KelB

    KelB New Member

    So glad you caught this in time Lisa.

    Many years ago, a Rheumatologist failed to spot a dislocation in one bone in my right thumb (I'm right-handed). According to him, "women imagine this sort of pain". I even had a full bone scan done.

    Five years later, the by-now badly dislocated thumb had to be reconstructed by a very unimpressed plastic surgeon. I now face losing the use of it in a few years.
  16. Aghllw

    Aghllw New Member

    Please believe me when I say, I FEEL YOUR PAIN!! That has/had to be the most horrible 5 years for you. And, you know...the worst part about it is that you feel like you are losing your mind cause you know you have the pain, you can feel it. Then, they tell you that there is nothing wrong with you.... I know I wanted to be checked into a mental hospital right on the spot!!

    I hope that the extensive surgery to your thumb has helped...let me know!

  17. Aghllw

    Aghllw New Member

    No that would really make me mad!!! Can you imagine your dr's face when they try to open a disc with that many images??? I would quit right there.

    My dr told me that the radiologist would be in some serious trouble. I usually go to independent MRI facilities here in Dallas. Have only had 1 MRI at a hospital. I have all of my the dr's request. I was looking through them last night as matter of fact.

    The reason that dr's want to see the actual films (most of the time) is to check and see if anything was missed or if they agree with the findings. Ironically, the lady at my pain dr's office told me it wasn't necessary to bring them, that Dr. East had the report. BUT, something inside me told me to go and get them....cause bone spurs just don't disappear...and if they do it is rare. Thank goodness I had those feelings, or I would be miserable thinking I was just crazy.

    Thanks for your reply! I love the site and all of you. Everyone's opinions mean so much to me.

    Have a great day!!

    FYI - ESI has kicked in some and I am really feeling much better today...despite the rainy, yucky weather her in the Big D!!
  18. Aghllw

    Aghllw New Member

    The pituitary it gone? What is the status of that?

    I am praying for you!!

  19. razorqueen

    razorqueen Member

    My daughter Jerica has Crohns. Her GI is in the capital city of our province, about 90 miles away. She has had most of her tests here at home. It is totally un beleiveable how they are interpeted here!

    Here, at home, they said her ultrasound showed no evidence of disease in her terminal ileum. The radiologist at her GI's said there IS evidence of disease.

    Here, at home, they said the results from her barium xray showed acid reflux, at her GI's they said there is a thickening in her terminal ileum!

    This really doesn't make you want to trust the diagnosis of the local drs, and all the more reason to be treated by specialists!

  20. Aghllw

    Aghllw New Member

    SINUS SURGERY did wonders for me! I didn't have a tumor (GOD BLESS YOU) but did have some anatomical issues. I have been fabulous since. Had in March of this year.

    I will keep you in my prayers. That is a lot to deal with and I can't imagine anything like that on top of all that you are going through.

    God Bless you,

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