Barbara Walters 20/20 DID do a show on CFS

Discussion in 'Fibromyalgia Main Forum' started by Rene, Jun 15, 2003.

  1. Rene

    Rene New Member

    The show and advertisement was "a Cure For Chronic Fatigue Syndrome" and after the show you could chat with a neurologist. Maybe she'll do one on the view too.
    Oh just incase you did not see the 20/20 show that was on it was about surgery on your neck could cure CFS and a dr Sam Houston?? got the surgery and he was 90% better in 2 weeks after being sick for 5 yrs.
  2. teller7

    teller7 New Member

    When was this show on? I didn't see it. Darn
  3. Mikie

    Mikie Moderator

    Unfortunately, not everyone with CFIDS has this problem. I believe it's called chiari (sp?). Surgery has been successful for at least one of our members here. Seems a physical condition in the upper spine can cause a type of CFIDS. One of the problems is that this may lead people to believe that curing CFIDS is as simple as getting the surgery.

    Love, Mikie
  4. Susan07

    Susan07 New Member

    There was a good special on this surgery several years ago. I taped it and took it to my dr. I then had an MRI on my head/neck and it was not where my problem lies.

    The surgery opens up the lower opening of the skull if it is too small and is pinching the nerves.

    There is good information on a web-site if you search for Chiari Syndrome.
    [This Message was Edited on 06/15/2003]
  5. Rene

    Rene New Member


    Can Surgery Cure Chronic Fatigue?
    Neurosurgery May Help Some
    Chronic Fatigue Syndrome and Fibromyalgia Sufferers
    Dr. Tim Johnson shares a medical breakthrough: Many people who are diagnosed with chronic fatigue syndrome may in fact be able to have their condition corrected by surgery.
    By Dr. Timothy Johnson
    March 10 — Tonight on 20/20 I am reporting on a fascinating cutting edge development in medicine that has the potential to affect millions of people.
         I refer to the truly radical — and controversial — suggestion that some of the 5 million to 10 million patients who have been labeled with chronic fatigue syndrome and/or fibromyalgia may actually have a central nervous system abnormality that can be treated with surgery.
         First some background. Chronic fatigue syndrome has been in the news for several decades as a diagnosis often applied to individuals who usually suddenly and mysteriously develop a constellation of symptoms that can include severe headaches, severe fatigue, confusion, and many other vague symptoms.
         Similarly, fibromyalgia is a diagnosis applied to people who can develop similar symptoms but whose main complaint is muscle pain, often at specific tender points throughout the body. Unfortunately, we do not know the cause — or causes — of either of these problems and therefore we do not have predictably effective treatments. Over the years many causes have been suggested — including the Epstein-Barr Virus — but nothing has been proved to be the definitive cause.
    Doctor Needs Treatment
    Several years ago, a family physician from Dothan, Ala., Dr. Sam Banner, who was himself seriously impaired by chronic fatigue syndrome, learned of a neurosurgeon at the nearby University of Alabama in Birmingham, Dr. Michael Rosner, who was operating on patients who had symptoms very similar to his own.
         However, this neurosurgeon knew nothing about chronic fatigue syndrome or fibromyalgia. He was operating on patients with the well known neurosurgical conditions called Chiari syndrome and/or cervical spinal stenosis, conditions in which narrowing of the opening at the base of the skull or in the neck were compressing the lower part of the brain or the spinal cord.
         And he was doing the standard operation for these conditions — removing bone in appropriate areas to enlarge the space for these critically important nerve tissues that are basically the pathway for all the nervous system from the brain to the rest of the body.
    Surgery Helped Doctor
    Dr. Banner ordered a MRI on himself and found that indeed he had narrowings of the same sort that Dr. Rosner was operating on. He showed them to Dr. Rosner who agreed to operate on him two days later. And that surgery led to a miraculous recovery for Dr. Banner!
         Not surprisingly, both he and Dr. Rosner became fascinated by the possibility that at least some patients who had been diagnosed with chronic fatigue or fibromyalgia indeed had the classic neurosurgical problems that neurosurgeons had been operating on for decades.
         So they started spreading the word and to make a long story short, Dr. Rosner, who now works out of Park Ridge Hospital, in Hendersonville, N.C., and Dr. Dan Heffez, a neurosurgeon in the Chicago Institute of Neurosurgery and Neuroresearch, have now operated on hundreds of patients with the diagnoses of chronic fatigue or fibromyalgia with dramatic results.
    Patients Beware
    Before anyone jumps to inappropriate conclusions, I wish to stress the following:
    1) The operations should be considered only for patients with abnormal neurological exams and abnormal findings on MRI's of the base of the skull and neck.Unfortunately, most patients with these problems are never examined neurologically — given that the party line has been that chronic fatigue and fibromyalgia are probably caused by infections or immune system disorders.
    2) This surgical treatment must definitely be considered experimental. It is too early to tell how long results will last and which patients might most benefit. The results from these neurosurgeons need to be published and examined by others. That has not yet happened.
         But having said this, I am personally excited about the possibility that this surgery might help properly selected patients. I urge those of you afflicted with either chronic fatigue syndrome or fibromyalgia to watch our report tonight and see for yourself
    BOARDS: Chronic fatigue discussion  LIVE NOW
    Related Stories
    A Chat with Dr. Dan Heffez
    20/20: Surgery for Chronic Fatigue Syndrome (Transcript)
    Web Links
    Chicago Institute of Neurosurgery and Neuroresearch
    CFIDS Association of America
    National Fibromyalgia Research Association
    World Arnold Chiari Malformation Association
    National Fibromyalgia Awareness Campaign
    National Dysautonomia Research Foundation
    More About the Procedure