Be Specific about what works ANTIVIRALS vs VALCYTE

Discussion in 'Fibromyalgia Main Forum' started by marti_zavala, Jun 6, 2008.

  1. marti_zavala

    marti_zavala Member

    Please be specific about what worked or didn't work for you .

    I keep seeing this phrase "anti-virals did a number on me" then the next sentence is about Valcyte.

    Then say "Valcyte did a number on me".

    I take Acyclovir and while not a sexy, new anti-viral, it is helping me. I would be bed-ridden without it. It may not be curing me but it is helping my symptoms.

    By trashing all anti-virals, someone here may not be getting the help they need.

    Valcyte sounds terrible, but it is not the only anti-viral.

  2. brainfoggy

    brainfoggy New Member

    Now I'm not sure if it helping one way or the other. It's hard to tell when you are taking many different things and the course of CFS naturally progresses. When I suggested Valcyte to my doc he said I was a candidate but I may not need it, although sometimes I feel as if I need some heavy duty treatment like Valcyte. I think it is good to explore other options first and make this a last resort after all the bad experiences I've read. I guess right now I'm not willing to be a guinea pig given the bad side effects. I'm already pretty set back, I can't imagine being even more miserable especially with no guarantee!

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