benzodiazepines and fibromyalgia

Discussion in 'Fibromyalgia Main Forum' started by CLRDAY, Oct 29, 2002.

  1. CLRDAY

    CLRDAY New Member

    I went to my psychiatrist today. He specializes in medications and sleep disorders. I have been taking lorazepam for about ten years for a sleep disorder. My Dr. tuned into my fibro and told me that benzodiazepines tend to block sleep stages 3 and 4 (rem sleep). The long term result is that my fibro, which requires good deep delta sleep to resolve, was getting worse and worse because I continued to take lorazepam (a benzodiazepine). So now I am trying to get off the lorazepam and I am going thru withdrawal because benzo can be addictive with long use. On top of my fibro I am a basket case with the withdrawal symptoms. Every symptom of both problems is multiplied by by the other. The only place I am comfortable in is a 93 degree swimming pool. After an hour I can finally get my muscles to relax. I have been in withdrawal since early Aug and it looks like it will be after Xmas before this can resolve. But I am risking the possibility that I can NEVER totally get off this drug because the withdrawal symptoms will never go away.
  2. CLRDAY

    CLRDAY New Member

    I went to my psychiatrist today. He specializes in medications and sleep disorders. I have been taking lorazepam for about ten years for a sleep disorder. My Dr. tuned into my fibro and told me that benzodiazepines tend to block sleep stages 3 and 4 (rem sleep). The long term result is that my fibro, which requires good deep delta sleep to resolve, was getting worse and worse because I continued to take lorazepam (a benzodiazepine). So now I am trying to get off the lorazepam and I am going thru withdrawal because benzo can be addictive with long use. On top of my fibro I am a basket case with the withdrawal symptoms. Every symptom of both problems is multiplied by by the other. The only place I am comfortable in is a 93 degree swimming pool. After an hour I can finally get my muscles to relax. I have been in withdrawal since early Aug and it looks like it will be after Xmas before this can resolve. But I am risking the possibility that I can NEVER totally get off this drug because the withdrawal symptoms will never go away.
  3. amymb74

    amymb74 New Member

    I have been taking lorazepam on & off for 1 1/2 years, steady since last Dec. I try to stop taking it but feel awful - its the only thing that seems to clear up my 'foggy head' - the only thing is since I've been taking it steady My head is foggy much more often so I take it every day & before bed. I have been careful about not upping my dose but all this talk about long term problems w/these drugs scares me into thinking maybe the sooner I stop taking it the better. Is it your feeling that the withdrawl may never go away or is that what the doc said? Would appreciate your input......AMY
  4. CLRDAY

    CLRDAY New Member

    I was taking 2 mg of lorazepam at night before bed. I NEVER increased the dosage over all these years. My
    Dr. did not talk about extended withdrawal. Rather I researched it on the Internet myself and found comments about this extended withdrawal symptoms. Some people could never get off the drug and some got off but still had the symptoms forever or maybe 1 and 1/2 years. Obviously some people got off and had no prolonged symptoms.
  5. JaciBart

    JaciBart Member

    I took them for 12 yrs, did get off, took a while, I would really love to talk to you about this, I actually got fibro near the end of my weaning off of them, please email me and let's talk on the phone if that is ok with you, I would be happy to call on my dime, I have never found anyone else with this problem, I would love to share what I have learned. You can email me at onthegreen@owt.com.

    You can do it, I swear, it was hard but it can be done, although I am not sure I would go thru it again, I sometimes wonder if I would be better off with the benzo's.

    Looking forward to hearing more,
    Jaci
  6. dd

    dd New Member

    for over 13 years now. My dr prescribed it along with an AD for post-partum depression. I also have had severe panic attacks for about 18 years. At first I was able to take it just when I needed it. I was even able to quit completely while I was pregnant with no withdrawal symptoms. I have been on Xanax daily now for about 7 or 8 years. I have tried to stop taking it but I get horrible withdrawals. I know that I am addicted to it but how does one get off of it? It has helped me thru some very bad panic attacks in the past but it does not seem to be helping with that anymore. I have noticed, like someone else mentioned, that it does help me with the brain-fog. I seem to be able to think clearer when I take it. This is just a thought, but, maybe I think clearer because my body if addicted to it and without it I start the withdrawals. I have even told my dr that I am addicted to it and asked him to give me something else but he doesn't seem to concerned about it. I am so addicted that when I get down to about 10 pills I start to get panicky. It is awful to be so dependent on a medication. I have even thought about checking myself into a clinic to get off of it but there are no such places where I live. What to do...what to do...

    Peace,

    Debbie
  7. JaciBart

    JaciBart Member

    I would love to talk to you also via telephone, I will call on my dime, I did get iff of it but it was very difficult. Please email me with your phone # at onthegreen@owt.com and I would be happy to converse.

    Look up on the net in google "protracted benzodiazepine withdrawel"

    Study that.

    Hope to talk soon,
    Jaci
  8. Mikie

    Mikie Moderator

    However, one should never stop them cold turkey because we do become physically dependent on them. There is a difference between physical dependence and psychological addiction. Withdrawing from a benzo too rapidly can cause problems and we must wean off of them.

    I take Klonopin for sleep and it does promote the deep Delta sleep needed to combat fatigue. You can read Dr. Paul Cheney's article in our library on Klonopin. It does an excellent job of describing how our brains are in a constant slight seizure state and how that keeps us from being able to go into the slight coma state needed for sleep. If I were to quit my Klonopin cold turkey, I would risk a rebound seizure.

    Love, Mikie
  9. klutzo

    klutzo New Member

    It is the only thing that eases the spasming in my muscles enough so that I can walk without assistance. I have gone off it four times, very carefully and slowly, but within 2 1/2 days of being completely off it, my muscles would start spasming again. The last time I got off was in summer of 1998, and that time I stayed off for 2 1/2 months. It was sheer torture. The withdrawl symptoms ended and I was sleeping on my own again, but the muscle pain was almost unbearable, and my balance was so bad I had to stop walking my dogs. I have tried every other possible drug over the yrs. with either no result, or it made me worse. Jaci, I think you would do a great service if you could manage to post your withdrawl protocol for all to see. I know it's sometimes hard to type a whole lot though. What I did when going off xanax was to lower the dose by 1/4 pill per day on a once every 5 days basis,and then alternate the new dose with the old for the next five days after that. I average 2 of the .25 mg. pills daily, so it takes 2 months to withdraw that way. Most people take a lot more , so it would take longer.
    Klutzo
  10. JaciBart

    JaciBart Member

    Regarding Mikie's post about sudden withdrawel, I had tried numerous times to go off of them by weaning down but never could get thru it, I finally found a psychiatrist/addiction specialist who supervised me every step of the way. It took about 6 months, I took remeron for a while to help with sleep, gained a ton of weight with that, I did get off finally on July 1. I would defintetly consider going back on just because I think it would help but I have to make sure my doc will keep on rx ing then as I have to know I will not run out, one of the scareist things in the world to have to go cold turkey, I am thinking it will halp with my extreme frontal lobe activity. I cannot shut off my mind. Never. I solve things & plan things in my sleep!!!!

    Jaci
  11. CLRDAY

    CLRDAY New Member

    WOW, you have really had a hard road. Just for your information take a look at the message posted 8/9/02 by Mia_Ayla on Herbs for the nervous system. And as for feedback, look up self-hypnosis, it's a lot less expensive. Have you tried massage? I try to get 2 a week because I sleep so much better after the massage (doesn't work now that I am trying withdrawal, but not instantaneously - I drop only 1/4th pill every two weeks, if I feel I can.
    Good Luck!!!!!!
  12. Mikie

    Mikie Moderator

    It is magnesium, zine, and vitamin B-6. It is sold here. It is important to get the right kind, so buying it here will ensure that. ZMA works synergistically with whatever you are using for sleep. I does not contain anything but the supplements, so it is safe to take with benzos, antidepressants, and sleeping meds.

    Love, Mikie
  13. TeaBisqit

    TeaBisqit Member

    Over the years, I've tried alot of stuff for sleep. Valerian, calmed me, but didn't work. Benadryl, sometimes works, sometimes doesn't. Actually, the only thing I can say worked for certain was LEM, but this website no longer sells it. They sell something called Immuplex or plus now. I don't have forty dollars to play with to give it a try. But the pure LEM regulated my sleeping for years. I tried Aterax again last night. I did get some sleep on it and I did feel calmer on it. Had alittle bit of a hang over today from it, but not like I used to get. I think I develop a very fast tolerance to drugs and I've noticed that for years. Maybe alot of us with CFIDS do. I would recommend the Aterax. I still didn't get what I would consider a full night's sleep on it. But I did get some sleep and felt alittle better from it.

    Teabisqit
  14. lease79

    lease79 New Member

    When I was pg last time around 34 weeks I got went into a hiddeous flare & virtually stopped sleeping altogether.
    When I would nod of, my body would 'shock' itself awake again. (a most unpleasant experience!)
    My neuro problems worsened & you guessed it my ever smart doc stuck me on Diazapam to 'help me sleep'
    Well from that time on I thought I was going mad, I felt delusional. It made things ten times worse. So I had to stop taking it.
    I've only taken it a couple of times since then & it has been to settle down tachycardia.

    Lease