Best medication for chronic pain

Discussion in 'Fibromyalgia Main Forum' started by VickyB, Jan 2, 2003.

  1. VickyB

    VickyB New Member

    Hi to all!! I just wanted to know what medication has worked best for fms pain. I am getting trigger point injections once a week from my doctor but he will not give any pain medication because he thinks they are addicting (even Ultram). So if anyone has any suggestions that have helped them in the past, please let me know.
    Thanks, Sleeper01
  2. lisjhn

    lisjhn New Member

    Ultram works the best for me. Tylenol, aspirin, ibuprophen, even vicodin alone don't work for my pain. Ultram is the true wonder drug for me, but now I mix it with vicodin which helps even more. 4 Ultram and 4 vicodin split through the day make my "good" days bearable now.

    My doc won't give me anything stronger either. Hopefully I won't need anything else anyway!

    By the way, my doc has gone to a couple seminars on FMS and they state that Ultram has been shown to be the best pain medicine for most people with this DD because of it's activity on Substance P, which other pain relievers don't have.

    Good luck!!!

    ~LISA
  3. Annette2

    Annette2 New Member

    Hi Vicky! I am taking Ultracet, which is a combination of Ultram and Tylenol. I was never told it is addicting, and I only take it as needed. Seems to help.

    Annette2
  4. achy

    achy New Member

    I take Oxycontin, 20mg twice a day...little to no effect. I was taking percocet 7.5 for breakthru pain, but the tylenol bugs the ol d=stomach and IBS, so it stopped it. Dr offered to up the oxy, but i hate to go mych higher so soon. I also get druggy feeling at 40mg.
    I was on ultram, no help. And the ultram does not mix wiht a lot of other meds...
    What to do besides deal wiht it? I can't for much longer, there has to be something to take this pain away at least for a few hours!
    Warm fuzzies
    Achy
  5. VickyB

    VickyB New Member

    I have Lidocain creme but it only takes the edge off the pain for an hour or so. Is there a difference with the patch? My doctor says the pharmacy doesn't have the patch.
  6. Mikie

    Mikie Moderator

    Thanks for repeating this valuable info. Lots of people, including docs, need to understand this. Thanks again.

    Love, Mikie
  7. MelG

    MelG New Member

    Each person is different, so it might take some time to find what works best for you. I am an extremely opiate tolerate individual. My family doctor used to give me shots of morphine before I was a teenager (for migraines). I never knew this until my 20's.

    I take Oxycontin 20 mg every 8 hours. For breakthrough pain I have something called Actiq, 400 mg. This is only for break through and only as needed.

    Lidoderm patches work great for my lower back and neck pain.

    I also take something called Trileptal, it's related to Tegretol but has an oxygen compound in it <don't ask me what that means>...and 10 mg Lexapro in the AM.

    Soma works best for severe muscle pain, when the spasms just won't quit. Usually, I can get them out of spasm with my TENS unit. Soma can also make you sleepy so best if taken at bedtime I think.

    Best wishes,

    MelG
    [This Message was Edited on 01/03/2003]
  8. VickyB

    VickyB New Member

    I do not think my trigger point injections are morphine. They are more like lidocaine and steroid. I have had epidural injections for nerve blocks that also contains steroids. How long do the lidocaine patches work for you. I have the creme not the patch. Maybe I am applying it wrong? I just rub into my skin and it dries in about 5 minutes. Is this right?
    Thanks, Sleeper01
  9. JP

    JP New Member

    are what is best for you.

    I have not tried many. My chronic pain includes arthritis, FM and spine injuries. I take Vicodin ES, 3-4 times a day, Elavil for insomnia and nerve pain at bedtime, Effexor for chronic pain related depression and Vioxx for my arthritis. I also use diet, exercise, concealing and walking meditation to support and improve the chemical efforts. My pain control is just okay. I am sure it could be better and I want to find a way to make it better without increasing my medication.

    Hope you find what helps you the most...Jan
  10. LisaMay

    LisaMay New Member

    as it stands today is Ultram 3x day,magnesium, glucosamine, chondroitin, and MSM. I regularly take a multi-vitamin as well as B-Complex. It took a lot of trial and error, and right now this seems to the magic potion for me, but it could change tomorrow. I also take some other prescription meds, but they are not for pain.

    Exercise is now my best friend. I started out really simple with 5 minutes of stretching and worked myself up to 15 minutes of stretching and 15 minutes of cardio. At first it was really easy to over do it, but I've learned to pace myself.

    As far as addiction goes, if you take meds as prescribed, I don't think that is addiction.

    Hope this helps. Lisa
  11. Melanie_Ann

    Melanie_Ann New Member

    Trigger points are some kind of steroids right? How well do they work for you folks? I have thought about asking my pain specialist about this. Hopefully, I can avoid back surgery.

    The shots the doc gave me as a kid were for migraines. I never knew what it was until my father told me when I was in my 20's. All I remember the doc telling me "you're going to feel like a ton of bricks", then sleeping for 6 hours. Probably wasn't a good thing to be giving a 10 year old. Whole family has history of migraines :-(

    MelG
  12. VickyB

    VickyB New Member

    Trigger points are the knots or lumps where the spasms are located. The injections are lidocaine and steriod. I am not sure if they have been helping me or not but I am trying to stick with the therapy, hoping I will do better in the long run.
    Good luck, Sleeper01
  13. debbywithfm

    debbywithfm New Member

    madwolf..... I have seen your response to several questions, only to ask myself what medical training you have?
    I was more than appalled to hear you respond about pain medication and addictions, (VickyB, 01/03/03). We, as a group of people with FMS, CFS who have been so misunderstood and told we had nothing for many years...Are now telling others that their addictions to pain medications are not REAL? How dare we!! I have found my Fibromyalgia to be very humbling and understanding to others problems. Yes pain medication is WONDERFUL, FOR SOME!! Others can take it only to have it build up in their body and make them sick or worse dead. I have taken everything for pain you have mentioned and then some for 10 years. Never once having difficulty stopping them and I did take them as prescribed! In the last month the pain medication I was taking as directed by my doctor, built up in my system nearly killing me. Ten years of no problems and now I develop one? Seems to me I am an example of good medication gone badly. I now deal with withdraws that you say I was born with or caused by misuse? Let me enlighten you, the thought of putting any pain pill in my mouth makes me sick, doing so makes me sicker. Not taking them, my FM pain is amplified!! Before you pass your option on to others, I suggest you remind yourself of the dieses we are fighting and all the things we have been told for years. You might want to try a little understanding for others problems. I'm sure we all knows what it feels like to be misunderstood!! As for pain medication, Everyone..... PLEASE listen to your body, research every side effect for ALL medication your taking, get blood work and take care of yourselfs. Addiction is a real problem, not one only caused by misuse or genes at birth. Madwolf, lets agree to disagree about addiction. In doing so we give others two sides to this story!! Words to live by: NEVER LOOK DOWN ON SOMEONE, UNLESS YOUR HELPING THEM UP!!
  14. debbywithfm

    debbywithfm New Member

    Information is empowering, for all of us here I thought that is what we are looking for. Yes I may be the exception to the rule and so could anyone reading this! I would NEVER suggest that anyone not take pain or any other medication, only be aware of what you are taking and the side effects. We all have a right to hear the other this side of pain medication? Aren’t we here for the same reason, to share what we have learned, give different options and offer HELP? Would you not want to hear or be aware of what side effects can do to you? I took them for 10 years, no I never experienced a high, and I did get pain relief. I also had a terrible experience, one that all should be aware of, not to scare you or stop you from taking anything that helps your pain. Only to inform you that things can change and what worked last week my not work next week. Just be aware of ALL side affects. You are your own best doctor; you know what helps and how you feel. Not all medical personal spend enough time telling you what to look for. Ask yourselves; does your doctor explain everything about the medication he just wrote for you? Ask questions, research and do what you feel is best for YOU!!
  15. blondieangel

    blondieangel New Member

    I haven't been around for awhile due to pain/exhaustion.
    I read your post, and , not knowing you or how severe your FM is, it is hard to tell another what to do. I can only tell you my experience. I am disabled by FM/CMP. Without strong pain medication I'd either be dead by now (suicide?) or in the hospital ER screaming for relief. I have actually almost blacked out from the pain w/o prescribed pain medication. IMHO ANY doctor who REFUSES pain relief for his/her patient is cold, indifferent and cruel. I would suggest seeing a doctor who is somewhat educated about FM or is willing to become so.

    I found the 2nd article on the home page of this site in concurrance w/ what my SSD attorney, who had just attended the 2-day FM Conferance in LA, told my SSD judge at my Hearing. Lucky for me, my Neurologist, who specializes in Pain Mgmt. has 2 colleagues w/ FM, and the SSD JUDGE had an experience over 5 years with a colleague with FM!

    It is my belief that NO ONE should have to suffer physical pain, (mine is torturous). I see several different doc's, take my supplements, etc....YOU must be your own medical advocate!!! NO ONE is going to do it for you!

    Do the injections relieve your pain? I am curious...if so, for how long? Do you got total relief? What is in a triggerpoint injection? Since you are getting triggerpoint injections, do you have Chronic Myofascial Pain in addition to FM? Because they are 2 seperate things causing different pain. There's the muscle disease, and then the soft tissue pain of FM.

    I hope you reply - I'm curious! BTW, I take (fibrofog - can't remember - UGH!;-) UMMM (had to go look! LOL!) Norco (basically Vicodin)Roxicodone and xanax. Also anti-depressant and sleep med, time-released magnesium, B-6, Future Perfect protein drink which stabilizes blood sugar!

    Love, *Blondieangel*
  16. blondieangel

    blondieangel New Member

    Just read your bio ~ guess I did things backwards - oops!

    So sorry to hear about your family! May I suggest you print out the 'Letter To Normals' for them to read? Also print out articles and get the Fibromyalgia Advocate book and leave them lying around for them to read! LOL!!!!! (I have no support either 'cept my husband, and even HE gets annoyed/sick of me being sick, sweethart that he is!;-)AND He gets no support from HIS family, which makes me feel bad!
    *blondieangel*
  17. VickyB

    VickyB New Member

    I am going to try the trigger point injections one more time (I usually get about 20 injections at a time-neck, shoulders and back (injection contains lidocaine and steroid) My doctor is very good at doing this and I have seen studies that say the injections can help. I am also going to ask to go on Neurotin- I took this medicine before about 4 years ago. My doctor is excellant, he just does not like to prescribe pain medication for chronic pain. I also have taken some pain medication in the past and have had rebound pain that was even worse than the original pain.
    I am sorry I have gotten so many people upset, I did not mean to start arguments. I have learned something from everyone of you that responded. THANK YOU!!