Birthday Girl needs help in Texas!

Discussion in 'Fibromyalgia Main Forum' started by aeparkertx, Feb 13, 2006.

  1. aeparkertx

    aeparkertx New Member

    I am new to the group and I need serious help finding a doctor or therapist that understands and cares about CFS. I'm not even certain I have it, but from everything I've researched and read it fits my symptoms to a tee. I am so tired of being sent home with yet another antibiotic and a "get some rest." All I ever do is rest!

    So today is my 30th birthday and I've decided to take action. I've been progressively more sick and tired for about 4-5 years. Its impacted my personal life and now its taking its toll on my career. But the docs just keep telling me I'm too young and healthy to have anything seriously wrong. Don't they get it? I AM TOO YOUNG and HEALTHY to feel this bad all the time!! That's the problem. I've heard them say that CFS is a myth, that I just have allergies, that I'm depressed, etc.... They'd be depressed too if they were missing out on life because they're too exhausted to do anything, right? And why is it that none of the treatments for these things is helping? Clearly there's something bigger going on.

    I'm sure many of you have been through the same thing. I don't like being looked at by the docs like I'm crazy and by my peers like I'm a wimp. I have a serious problem and I need serious help! I welcome your advice and if anyone from the Dallas/Fort Worth area has any suggestions or recommendations, I would be so grateful! From what I've seen on this site, this is a wonderfully supportive group and I look forward to learning from you all.

    Best wishes y'all,
    the Birthday Girl
  2. Crispangel66

    Crispangel66 New Member

    Hi, it is good to hear from someone who lives pretty close to where I live.

    I live in Gladewater Texas.

    Which is really close to Tyler.

    I don't know of any good dr's who know about fibro or cfs there in that area but my dr believes in it and I know a few others who do in Gladewater and Longview.

    I know that is a little way to travel but it sounds like you aren't having much luck finding a good dr there.

    The sad thing is you are not too young, I was about your age when I was diagnosed with fibro, well a little younger.

    I is hard for people to accept at first , but now my husband is very accepting and understanding.

    He does so much around the house.

    The laundry, dishes, cooking, cleaning anything I can't handle doing.

    Which is nearly everything.

    But if you are interested in finding out more about those dr's let me know.

    Good luck {{{{{{hugs}}}}} Pamela
  3. Cromwell

    Cromwell New Member


    I FEEL SO BADLY FOR YOU YOUNGER WOMEN WHO ARE HAVING SUCH PAIN.

    WHAT A WAY TO SPEND YOUR 30th

    HAVE YOU BEEN PROPERLY TESTED FOR LYME? i ALWAYS SUSPECT THIS WHEN I SEE YOUNGER WOMEN, THOUGH MY SON, WHO IS 11 HAS SOME FM.

    I THINK TAKING A STAND IS A WONDERFUL PRESENT TO YOURSELF.

    I STARTED THE GUAI THERAPY AND IT SEEMED TO HELP ALTHOUGH I DON'T DO THE FULL PROTOCOL, EVEN SO, IT DOES HELP WITH THE INFLAMATION.

    GOOD LUCK AND FEEL BETTER SOON.

    LOVE ANNE
  4. Kinsie

    Kinsie New Member

    Happy Birthday. (Mine was yesterday.) I'm from East Texas.

    Glad to have you on the board. You will find a lot of information and good friends here.

    Kinsie
  5. neen85

    neen85 New Member

    Happy Birthday to you from Kansas! Daneen
  6. snooker11

    snooker11 New Member

    totally know what you mean. not sure exactly difference between FMS and CF is, but the 2 women i know personally who have RECOVERED completely from CFS have had strong support systems, were under 30, began eating healthfully (organic, lots or fruits and vegetables), did some form of light excercise, and tried to keep stress down as much as possible. In essence, did everything to keep themselves as happy and healthy as possible given the circumstances. It robbed a chunk of their lives (approx 3-6 years) but they both feel "normal" now. they both did try conventional meds at one point, but it did not work for them. this is the best advice i can give you.

    Personally, I have taken up restorative yoga and swimming and walking. Massages twice a month. I also take some meds, and have found them to be somewhat helpful. Find a doctor (doesn't have to be an expert - they are no CFS/FM experts b/c nobody knows what the hell it is) who is patient, open-minded, and willing to help you get better and not run a thousand tests. Or, find a naturopath if you'd like to go the natural route. I have not come across any convincing evidence of antibiotics helping CFS/FM.

  7. Kacjac

    Kacjac New Member

    I noticed your in Ft. Worth, my neice lives there and is a nurse, I'll see what she can find out!
    ummmm..... I noticed your single, go read my Child support thread, about my son....LOLLOL Just kidding, you don't have too.
    Well see if I can help you find a Dr.
    Happy Birthday!
    Take Care, Karen
  8. aeparkertx

    aeparkertx New Member

    So nice to meet such a supportive group of people! Thanks for all of your advice. I really appreciate it - gives me some great new ideas for how to approach this!

  9. Kat_in_Texas

    Kat_in_Texas New Member

    Welcome to the board, although I'm sorry you're ill. You'll find lots of support and caring here, as well as good tips and advice.

    I don't have CFS but I do have FM. I recently started seeing a neurologist in Richardson. I got his name from one of the members here. I have only been to see him once but was very impressed with him and felt very at ease. He seems to really know his stuff and he was very thorough and informative. You might want to call and see if he also treats CFS.

    John H. Harney, M.D.
    Neurology
    375 Municipal Drive, Suite 222
    Richardson, Texas 75080
    (972)783-8900

    One warning - he is difficult to get in to see as a first time patient, I believe I called in mid-October to make an appointment and finally saw him at the end of January.

    I hope this information helps!

    Feel better,
    Kat
  10. Kat_in_Texas

    Kat_in_Texas New Member

    Just realized from your user name that you must be in Parker? We bought a new home on the Richardson/Plano line last year but we really wanted to move out to Parker ... so much land and some beautiful homes ... but we decided to stay a bit closer in to help with commutes to work. (I work in Plano and I'm just four miles from the office so I'm very spoiled!)

    Anyway just wanted to bump this up so you'll see Dr. Harney's info. And also to tell you that I realized AFTER I hit post on my last entry that today (2/17) is not your birthday ... sorry I missed your post on the 13th! Happy Belated Birthday anyway!

    Kat
  11. Kat_in_Texas

    Kat_in_Texas New Member

  12. forfink

    forfink New Member

    I have had Fibro for 20+years and have tried everything. Since moving to Plano 5 years ago I've been going to a Dr. that has many Fibro patients. Dr. Joseph Bolin, 75 and Park (Plano). He's a young enthusiastic Dr. very willing to help all of us in pain. He listens and is genuinly compassionate, studies all the newest research and is willing to do what ever it takes to make you feel better! Every 3 weeks I go for shots of Magnesium, Adenosine Phosphate, Gamma Globulin,and kutapressin.I'm doing much better, and feel well cared for. If you want a sympathetic general internist I'd highly recommend him.
    I also take Cymbalta (just started), Ultram, and Lunesta for sleep. Just started to take a 1/4 tablet of Provigil and I have more energy with no side effects, it's great! Just takes a while to find a few medications that will work. I know we would all prefer to take nothing at all, but that's not always possible when you feel this lousy. Good luck to you, in your quest for a good doctor. Jennifer (forfink)
    [This Message was Edited on 02/18/2006]
  13. sarahann61

    sarahann61 New Member

    Hope you had a good day , and will find a good Dr.. I live close to Abilene and there is not any Rheum. around here. I just go to my M.D, and he sends me to a specialist once in awhile.

    I would think the DFW area would be full of them, but know you would like to find one that is recommended..

    I hope you find exactly what your problem is, I have a son in Ft. Worth, and one in Arlington. He is 33 and single, you might have passed by them, at some time, or another........

    My oldest son works with computers, the younger one is a electrician... His ankle swelled up on him recently and is still swollen .. I am afraid he is following in his Mom's footsteps.... I have FMS,OA, RA, , Asthma & GERD...
  14. Maribelle

    Maribelle New Member

    I live in Dallas and I just recently started seeing Dr.
    Andrew Phan, Internist (off North Central Expwy & Walnut Hill)
    next to Presbyterian Hospital. He diagnosed me over a year
    ago, but I didn't REALLY believe I had this illness. So
    I ignored it and it got worse! I don't miss anymore appts.
    I was in such pain, fatique, depression, sleep deprived this last time that I went. He prescribed Cymbalta which has helped me sooooo much! He also gave me something to help me sleep...but he really wants me to start exercising, i.e. yoga, walking etc. I have started doing
    some stretching and hope to start walking soon.

    At any rate, I know that this board is also a life saver!
    You will get many answers and unconditional love and support. We also have fun on this board which is very important to our well being. I did not have this until I joined this board. THANK GOD FOR IT!

    FEEL BETTER!

    MARIBELLE
  15. aeparkertx

    aeparkertx New Member

    I never dreamed I'd get so much help from one little post! I would like to ask about Dr. Bolin, FFC/Dallas and the other DFW Dr's metnioned in this thread. Do they all treat CFS or only FM? Want to find the best fit for me and am so excited about this info! I am fortunate in that I do not have much physical pain (at least not yet), just extreme fatigue and a lot of illnesses. As I battle another round of sinusitis, strep throat and an ear infection this week (always in 3's for me it seems), I am so hopeful that thanks to the great info from everyone here I will find help soon!
  16. forfink

    forfink New Member

    Glad some of us are able to help you. I'm sure if you called Dr. Bolin's office, Monica the receptionist, could answer your questions. A check up and blood work is always a great start. I was just there Friday and know he is going skiing on Wednesday thru Sunday, but will be back on Monday. Hopefully, he can find out why you are feeling so awful. Like I said he is very sympathetic. Best to you and hope better health is on the way. Your qustion was if he only treats FM or CFS. He is a general practioner/internest and has patients with everything.....just that he is very intune with sleep disorders, pain, fatigue, most of the stuff that all of us have. My husband goes to him for severe allergies, problems with ADD, and high blood pressure. And he's doing wonderful now. So you just have to feel like you can communicate with your doctor.[This Message was Edited on 02/20/2006]