Blood in Urine FM

Discussion in 'Fibromyalgia Main Forum' started by mermaid01, Dec 27, 2007.

  1. mermaid01

    mermaid01 New Member

    Even asking this question seems to me to be ludicrous! I'll make this as short as I can. I thought I had a bladder infection, saw a nurse practitioner and the test came back normal, no infection, but had a lot of blood in urine. I've always had some but the nurse and then a doctor from the clinic both called and insisted I see a specialist-urologist. I had a cystectomy (camera inserted so doc can look at the bladder: test normal. He then had an ultra-sound done: test normal. The specialist had his nurse call and tell me the test results and that was that. I got mad and faxed him about the lack of eye contact, he asked me very few questions, and then he has his nurse call and tell me the results of the test and dismissed me like I had no symptoms. It seemed to me that he felt if my tests were normal then he had done his job; I had two test, is that what a urolgist does, just give up looking for the cause of my symptoms after two tests?. Arg....still have symptoms and blood in my urine. That doc called me 5 minutes after I sent him a fax and we talked a few minutes about what might be going on. He didn't know what was causing my symptoms but said F M could have something to do with the blood in urine. Is that a cop-out?

    Has anyone had the same experience? If so, please let me know what your experience was.

    Happy New Year, yes I am happy, test showed no cancer, but would like to know why I am having so many symptoms (full bladder, blood, and now it hurts to walk) I'm 63 next week, in fairly good condition (lots of pain) not overweight. I get up 3 times at night to go to the bathroom. Well, enough about that stuff. Any help would be greatly appreciated.
  2. happycanuk

    happycanuk New Member

    I really don't see how FM could be the cause of blood in the urine. That just seems like a ridiculous thing to say! Did he check for a kidney infection? Also, a friend of mine is just going through the same thing. The Urologist had a look at the bladder and all was well. She said she had also been spotting, so he had a look in the Vagina and she has a tumor on the cervix!!! She has had this problem since 2004. Thank goodness it is not malignant. So now, it is just a matter of treatment.

    Hope you can find an answer.
  3. Bluebottle

    Bluebottle New Member

    I have IC too, it often occurs with fibro. Go to the IC Network forum for help, there's lots of different treatments.I'm now on slow release Oxybutynin as well as following the low acid IC diet and drinking only still water.

    I also had large kidney stones that caused loads of blood! I've just had them surgically removed.
  4. sleepyinlalaland

    sleepyinlalaland New Member

    blood in my urine some months ago.

    It lasted a day, I felt some stinging upon urination and didn't look down to notice the "red stream" until that eveing.. Big freakout, yes.

    I went to the doctor the next morning although by then the visible blood was gone. She was able to detect blood microscopically so at least I didn't feel I'd imagined it! She was confident it was a bladder infection. When the test came back from that the next day NO infection was found and doctor really encouraged me to undergo further testing.

    I felt pretty strongly that it was just "another one of those things", and declined those rather invasive-sounding tests with a promise to undergo them should it happen again. It never happened again, and no microscopic blood seen either.

    I also have always had irritable bladder and take way too many trips to the lou. Don't know if that's related or not. I have had several internal inflamations that "rear up" and go away mysteriously, without antibiotics.

    Sorry to hear you are still experiencing pain, that would sure make me more concerned...hope you get it figured out.

    Oh, also...when I had this attack I googled it a lot on the web and was surprised to read (according to various message boards) that it was not as unusual as I would have guessed to have visible urine in the blood (for years sometimes) and to find no discernable reason. Perplexing for sure.
  5. TigerLilea

    TigerLilea Active Member

    Did your doctor do an ultrasound test? A friend of mine had symptoms of a bladder infection for over three years and it was finally discovered that she had ovarian cancer. You might want to get a complete pelvic exam to rule out anything else.
  6. mermaid01

    mermaid01 New Member

    Jam338, you really helped me feel better about the urologist, even though his bedside manner was the worst, not quite as bad as "House" (TV show)! I am going to make another appointment with him and list some of the problems that you and others mentioned including the ovaries! I still don't think that the urologist should have sent me on my merry way until he had exhausted other possibilities. He didn't take blood; I thought that was odd, am I wrong do you think?

    I'm still having lots of problems, I feel like going to the bathroom all the time. I told you all that so won't repeat.

    This is a great group, I believe that we learn from each other, in my case you have calmed me down considerably.

    Happy and healthy New Year
  7. mermaid01

    mermaid01 New Member

    I think I have that right, there seems to be two types of blood in urine that is caused by something going on in the bladder or kidneys. Gross blood means you can see it in your urine; in my case I could see it when taking a urine sample. The other is "microscopic" blood; that is when you see blood only under a microscope. Mine was +2, know one told me if that is a lot of blood or not, the nurse practitioner told me it was a lot; I really don't know but would like to understand this better.

  8. mermaid01

    mermaid01 New Member

    After reading your post I was left wondering what tests you had done and what the results were. Have you followed up thoroughly trying to find out what is wrong?

    Good luck to you and thank you for your kind post; it is always nice to get someone else's take on things.

    Happy and healthy New Year everyone!
  9. Mikie

    Mikie Moderator

    It wouldn't hurt to see a gyno too. Make sure all your test results are faxed to the docs before you see them. Good luck to you.

    Love, Mikie
  10. asmom15

    asmom15 New Member

    I read your message board, and would like to say that maybe you have a kidney stone. I have fm and I have had a kidney stone. First signs are blood in the urine. Might want to ask doctor about it. If the stone is small you might not feel alot of pain. Any pain on either side of your back just under your rib cage? Hope this helps.

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