blurry vision and weird head zaps...

Discussion in 'Fibromyalgia Main Forum' started by sweetbeatlvr, Jun 24, 2008.

  1. sweetbeatlvr

    sweetbeatlvr New Member

    hi everyone,<3

    i had a weird experience last night, and was wondering if anyone else has had anything similar happen?

    i was doing a puzzle and started having a hard time concentrating on it. i started seeing black spots on the page, almost as if the page were blank in spots.

    Also when i would look up, my periphial(sp?) vision was wavy, and had various colors waving in and out.

    i also was getting weird zaps in my head, like sharp little pains.

    i just felt very off kilter.

    anyone else had anything like this?

    it was kind of scary.

    thanks alot....Autumn <3
  2. sweetbeatlvr

    sweetbeatlvr New Member

    i just got done reading that post, thanks so much for bumping it. <3

    i don't really have a history with migraines. i've had one very painful one in my life.

    the episode i had last night is not the first time that has happened. since i've gotten sick, it has happened before.

    sounds alot like the aura migraine w/out headache.

    my mom died of a brain aneurysm, so it kind of makes them more scary, you know?

    i'll definately bring this up to my doctor at my next visit.

    thanks so much for replying to me. i appreciate it alot.<3
  3. erica741

    erica741 New Member

    I've had dizzy spells and periods with blurry vision, but nothing as dramatic as what you had. That sounds pretty scary, especially given what happened to your mom.

    Have you been tested for Lyme? I know that those kinds of neuorological symptoms are common with lyme.

  4. Waynesrhythm

    Waynesrhythm Member

    Hi Sweetbeatlvr,

    You may want to check out the following article in ProHealth's articles library:

    <a href="">Decompression of Craniovertebral Stenosis Leads to Improvement in Fibromyalgia and Chronic Fatigue Syndrome (CFIDS) Symptoms</a>.


    The symptoms of Chiari or spinal cord compression may include:

    Headache in the back of the head that may radiate behind the eyes and into the neck and shoulders.
    Disordered eye movements, vision changes.
    Dizziness, autonomic symptoms (orthostatic intolerance, NMH).
    Muscle weakness.
    Unsteady gait.
    Cold, numbness and tingling in the extremities.
    Chronic fatigue.
    Tinnitis (ringing, buzzing or watery sounds in the ears).
    Sleep apnea.
    Speech impairment.
    Hearing loss.
    Gastrointestinal problems, irritable bowel syndrome, frequent urination.
    Lack of gag reflex, difficulty swallowing.
    Symptoms are exacerbated by exertion, and especially by leaning the head backward or coughing.

    I was able to relieve some of my own spinal cord/cranial nerve compression by a method called Atlas Profilax. Upper cervical chiropractic has also been effective in relieving many spinal cord compression symptoms as well.

    Regards, Wayne
    <br>[<i>This Message was Edited on 06/24/2008</i>]
  5. sunflowergirl

    sunflowergirl Well-Known Member

    Lasted for about 30 min. and scared the HECK out of me. Only in one eye. I went to the eye doc. and he said I had an occular migraine but without the headache. Do a search on this. It's really nothing to worry about if that's what it is. But you do need to be checked by an eye doctor just to make sure.
  6. JuliannaG

    JuliannaG New Member

    My dad also has had it, usually when he is stressed. I also started experiencing it one day when I was under stress. I thought I was going instantly blind! After that, it sometimes happens when I bend down, or hold my head forward at an angle.

    A couple of friends have also experienced it. One, when she was sitting in a chair reading. Another elderly male friend, who worked on roofs, would sometimes have to lie down on the roof until it passed.

    What I experience is that I will notice missing pieces in my eye view. Then, after a few minutes,in my peripheral vision are zig-zag flashes, so that I can only see clearly in a small central part of my vision. It takes about 30 minutes for it to clear, from the off centre of my vision, gradually moving to the outer vision until it goes. I don't have any pain at all when it happens. It seemed to happen a lot at one time, now hardly ever.

    I have been to an eye specialist, who had never heard of it before, and couldn't find anything physically wrong.

    It started around 20 years ago.
  7. JuliannaG

    JuliannaG New Member

    I Googled ocular migraine, and it turns out that is exactly what I get!

    Disturbing, but harmless.
  8. simonedb

    simonedb Member

    I actually do have cervical stenosis but chose not to do the surgery.
    At any rate, I never had vision problems until I tried certain meds, provigil and ultram and lyrica, and maybe some ssris or snris can all give me double vision and headaches, oh yea, cymbalta too for headaches.
    anything potentially stimulating in med dept is bad for cfids, dr cheney is adamant about this and I have experienced it.
    It ifs not med related it could be migraine, cluster headache or the chiari or stenosis.
  9. simonedb

    simonedb Member

    oh it could also be a food allergy
    almonds suddenly started giving me power headaches
    food can be like adrug in the p450 system and cause similar side effects if you are intolerant to it
  10. Khalyal

    Khalyal New Member

    I found that when my dosage got bumped up I couldn't handle it. One of the "new" symptoms I had with increased Lyrica is the same kind of thing you are talking about. When I backed off on the Lyrica, the symptom went away.

    The longer I'm on Lyrica, the more I don't like it. It seems like for me, over time new side effects creep in.
  11. frosty77

    frosty77 New Member

    I've gotten brain zaps many times - always connected to meds. If I forget to take a dose or decrease a dose (or take one late), brain zaps occur.

    If you are really worried, have your doctor check it out though. But I've had these for over 10 years (and my mother almost died from a brain aneurysm - she just happened to live next to a hospital with a doctor on staff who specialized in brain surgery).

    LISALOO New Member

    i had those zaps too, I forgot what medicine I was on, but the dr said many people experience it and took me off, everything went away.
  13. sweetbeatlvr

    sweetbeatlvr New Member

    for taking the time to respond to my question.

    Khalyal... yes, as a matter of fact, i went to a new pain mangement doc last week, and she wanted me to increase my lyrica another 150 mg (total of 450 mg a day).

    i ended up calling their office the day i posted this, and explained what happened, and was told to decrease back to 2 times per day.

    i'll tell you, i don't like Lyrica either! it doesn't help with my pain at all, in fact it gives me more, and then gave that weird head thing.

    i've been trying to tell them that it gives me cramps in my legs, but my nurse practioner asked me to keep trying it, so i have (because i really like her, and she's been the only one to try and help me so far).

    she also asked me to try this pain management doctor, and keep an open mind.

    so i go to this pain management doctor, who asked me if the Lryica was working, and i tell her no, in fact it gives me more cramps in my legs. so she tells me, i'm too young to be on pain meds, and just to increase my Lyrica.

    luckily, my NP said she will not let me just be in pain, and is continuing to help me w/ other meds. hopefully, she doesn't just turn me over to this other doc exclusivly, because it sounds like she may not be too willing to help me.

    too young to be on pain meds? i'm too young to feel like i'm 80 years old too.=(

    oops, got a little off topic there, sorry.=)

    thanks again everyone.....autumn <3
    <br>[<i>This Message was Edited on 06/27/2008</i>]
  14. simonedb

    simonedb Member

    It might be good to give some of those explanations of what its like to have this stuff in an upper thread to that doc. ooh it makes me so mad when they are ignorant like that.
    a pain management specialist to boot, they should know better.I wonder if she has a superior you could write a letter to but then you run the risk of them thinking you're a crank, dang.
  15. sweetbeatlvr

    sweetbeatlvr New Member

    it is very sad how some doctors are.=(

    i go back to see her in a few weeks. i'm going to give her the benefit of the doubt, that she may just have to get to know me better.

    hopefully then, she will realize that i really am in pain, and that i've tried many, many, many meds already that havn't helped, and she will be willing to help me.
  16. Kiffy

    Kiffy New Member

    hi sweetbeatlvr
    It is such a relief to hear someone else say they have had this sensation. i get it just when I am dropping off to sleep, usually because I am very tired. I usually describe it as feeling like an electric shock inside my head. At times it can be quite painful and is so sharp it makes me jump.
    Thank You
  17. marti_zavala

    marti_zavala Member

    it sounds like yours is sleep myoclonus or myclonus.

    Brain zaps as you fall asleep. Google it as I dont want to give you wrong information.

    I think it is a result of an overactive CNS.

  18. ChrissieJean

    ChrissieJean New Member

    I had that a few times. One most scary was riding on the back of my husband motorcycle. It felt like it was going for awhile. But probably just a min or two max Another time I was swimming in my cousin's pool. I told her about it and she thought blood pressure. I'm like ummm who knows. &lt;BR&gt;
    if it's the first time, just mention it to your Dr. I have a list of what I'm bringing to mine and that is a very HIGH priority for it. There were other times, but those were the scariest!
  19. rockgor

    rockgor Well-Known Member

    are pretty old. Sweetbeatlvr hasn't posted for several months.&lt;BR&gt;