Brain "jolts" and startling when trying to sleep??

Discussion in 'Fibromyalgia Main Forum' started by shazz, Jun 12, 2003.

  1. shazz

    shazz New Member

    Ok, hard to explain this one, when I am trying to doze off I get something like a jolt or shock sensation in my brain, or in my head.
    I think I actually "hear" it, something like a bass guitar string being plucked? No I am not nuts, I am just at a loss for words on how to describe this thing that happens.
    I feel it all the way down to my chest, probably because it scares me and my heart jumps. Then I am awake for quite awhile.
    I also have noticed I get startled very easily latey, at unexpected noises, even someone talking to me suddenly.
    If someone else has the same thing, or something like it, I would love to hear your thoughts.
    Other than that, maybe someone SHOULD call the guys in white to come and get me. I swear I am losing it sometimes,
    but seriously I am not imagining this sensation, it's very real.

  2. ladybird1

    ladybird1 New Member

    I want to tell before I started getting treatment for
    fibro and taking meds so I can sleep, I would attempt
    to drift off then I would get these little sensations
    in my head or arm that would startle me awake.
    It's probably part of the FMS/central nervous system
  3. AnnG

    AnnG New Member

    I literally jump when it happens. I usually average about 10-15 jumps before I fall asleep. My MVP is much worse at bedtime too. I have to lay on my right side (allows more blood flow to heart)and fall asleep that way.
  4. judywhit

    judywhit New Member

    Mikie said it was the sensory overload that we have with fms. also a part of the racing brain thing. she takes clonopin for it. I asked doc for this and he would not give it. what a weird thing to have...I hate the sleeping problems the most with this dd.
  5. 2girls

    2girls New Member

    If the guys in white coats are coming you better warn them to bring a truck load for all of us! I get this when flaring, only to me it sounds like a loud door slam - I practically jump out of my skin.

    Judywhit is right on - sensory overload. Unfortunatly many of us have docs who refuse to prescribe Klonepin.

  6. kerrymygirl

    kerrymygirl New Member

    Happened when trying to sleep. Think this goes back to this being a seizure type of disorder.Know just what you are saying.

    My mvp / heart feel like it stops. This may be part of dysautonomia/readjusting positions and body readjustment. It is rather complicated to explain since I am brain dead right now. You can look up dysautomomia.

    You are not crazy it is real, real upsetting at times.Take care Shazz, I know your having a tuff time, I am too right now, so try to do the best you can to take care yourself.


    [This Message was Edited on 06/12/2003]
  7. catgal

    catgal New Member

    Hi Shazz~~I didn't have this until I started taking oxycontin and percocet. I would lightly drift off to sleep, then feel jolted up and as though I had quit breathing--it was like my abdomen would jerk.

    I had heard about klonopin from Mikie on this Board and how good she said it was. I looked it up, and it is basically a seizure med, but also used for restless leg syndrome.

    At my next doctor's appointment, I told my physician I had difficulty getting quality sleep because I had restless, aching legs that kept me awake all night. He looked at me and said he could take care of that with klonopin. He started me out on .5mg which not only helped with the RLS, but relaxed my body, did away with any anxiety or tension, and gave me a good night's sleep for once.

    Because of the meds I am taking--oxycontin, percocet, soma, and bextra for my degenerative disc disease (ddd) and other back problems, he wanted a routine consult from a Pain Specialist just to back up his documentation for the meds--the Pain Specialist increased my klonopin to 1mg and my soma to 3x's a day without me saying anything. After he examined me, he told me I had nerve damage and just started upping my meds. The 1mg really worked better, and he told me to pinch off a fourth or a half during the day to try and keep my back relaxed so I didn't have so many muscle spasms. It works great along with the added bonus that it really reduced my daily anxiety--anxiety that you don't even realize you have until you experience what it is not to have it.

    Since I am on alot of powerful medications for my ddd, 3 kinds of arthritis including RA, and severe asthma--I was afraid if I just walked in his office and asked him for klonopin out of the blue that he wouldn't give it to me. So, I didn't ask. I just presented him with symptoms that I researched klonopin was used for. And he came up with the klonopin.

    Hope you are feeling better. Blessings, Carol....
  8. shazz

    shazz New Member

    I never, ever imagined anybody would even get my description let alone have the same thing.
    Guess my ability to communicate is doing better than I thought.
    I tried klonopin for sleep a couple of times but it hung me over pretty badly the next day. I was taking 1 mg though to start so maybe I will try a half of one and see what happens.
    Maybe it is the lortab I am taking, it is weaker than oxy, but same class. I am much relieved because I was conjuring up images of a brain tumor or something very wrong neurologically.
    Not that I am a misery loves company type of person, but I am very relieved to hear that it is all just part of this fibrocrap. Yes I have been in a flare (at least I think that's what's been up) lately, very weak, exhausted and above all sleepy all day and then awake much of the night, but unable to get any quality sleep at all. I am very thankful though that at least the pain has been pretty minimal, I have pretty achey neck, upper back and shoulders after working all day, but I have been only taking one lortab each evening lately.
    Once again, I must thank all you amazing people. I hope we all get better soon.


  9. mycatprint

    mycatprint New Member

    I call them the "zaps." I hear them as well as feel them in head. I don't have the zaps ALL the time, but more often than not. They accompany bad fibrofog days and flares, even when I am awake and sitting at my computer. Most times I only notice them when I am going to sleep or waking up. My Dr says she has never heard of them, but I've read a couple of articles which mentioned them, so they must be pretty common. I tried klonopin to sleep and it screwed up my balance for 2 days! I take big doses of benedryl to get to sleep instead.
  10. taylorat

    taylorat New Member

    I can be laying in bed trying to go to sleep and all of a sudden I hear a loud nose like a heavy door slamming it drives me crazy . I have been having it a lot more lately I think it is because I am so stressed out and I am in a bad flare right now. I know if I told my Dr. about it he would not believe me no one can understand unless they have what we have. Last night I thought I would never get to sleep. I was in so much pain so I took a Lorcet7.5 and that seemed to make me worse and so I got up and took an Ambien which did not work So finally I got up and took my Klonopin and I finally went to sleep. I wish I could explain the feeling in my head when I can't sleep Does any one else get this spacey feeling in their head?

  11. kerrymygirl

    kerrymygirl New Member

    This had lessened that shocking stuff at night, Sometimes I felt I went to bed with 1 finger in an electical outlet.

    Did not help heart that still comes and goes when I lay down.

    Take Care Hugggggssss
  12. kredca4

    kredca4 New Member

    MYOCLONUS. It's considered both a disease and a syndrome, it means muscle jerks.

    I get these at night when I am going through Stressful times, like now, and it seems like the last few night's I have been botherd by them.

    "Myoclonus is activated by an electrical discharge originating in the central nervous system, which is transmitted through the peripheral nerves to produce the sudden muscle contractions."

    Since I have been having other Electrical problem's, it stands to reason that I would be having these now, along with the other oddities,

    Just this week I thought that a lamp had blown another bulb, for 2 day's I kept putting off changing it, then I would forget and by Habit, turn on the lightswitch and nothing would happen.

    Hubby was home so I mentioned it to him, and Yes sir reeee, it Worked just fine when He turned on the light. GRRRRRR!!!

    lol, he say's he just need's to replace the Electrical switch and socket's, and that'll take care of it. Made sense to me, if they aren't working right, and I'm not working right,lol then Weird things are bound to happen.

    Anyway check out that MYOCLONUS, it's rather interesting, I use google search engine the most.


    remember the song the JerK? lol the dance was a natural for my body,
  13. lou2

    lou2 New Member

    If its any consolation, i used to get similar things. I think it is part of the nervous system. Everything is just too sensitive. I used to have all sorts of weird things happen when i was trying to sleep, sometimes part paralysis and always muscle spasms and jolts like you describe. I alwasy thought aswell it si somehting to do with how the brain chemicals change when you are going to sleep?

    The good news is, that since i have become healthier again and almost have beaten this thing, all those have gone! So hang in there!
    love lou x
  14. Joyce1

    Joyce1 New Member

    i put in earplugs to help filter. i feel more relaxed with them in -even in day time.
    watch tv that way :) can watch french channel now.

  15. Lanie

    Lanie New Member

    It used to happen to me all the time before I started taking my Trazedone!
    Those along with the racing brain kept me from sleeping. Thank god for trazedone.