Brain MRI tomorrow Ugh (updated)

Discussion in 'Fibromyalgia Main Forum' started by ephemera, Apr 17, 2007.

  1. ephemera

    ephemera New Member

    I am really dreading tomorrow's MRI. I have severe sensory overload & the experience of the noise & vibrations will put me over the moon.

    The neurologist gave me a prescription for 2 Valium. One an hour before the test, one on arrival.

    between this test & an upcoming sigmoidoscopy for blood in my rectum that my GI doc found, I'm a real mess again.

    Phooey!

    As an aside, I don't usually remember my dreams. But 2 nights ago when I was in that limbo land between sleep & awake I had an image of me walking into a huge warehouse or storeroom with industrial metal shelving. All the shelves were empty & I was alone in the room. I kept wondering what was on the shelves & where did it all go?

    I'm guessing this is a vision caused by my anxiety about the MRI test. Is the empty warehouse my FM/CFIDS brain?
    [This Message was Edited on 04/25/2007]
  2. makes sense...I don't know if it 'holds much weight' with some people...but, I could easily see the empty warehouse, you in it, it's alll emtpy, and you're ALONE, searching...

    I think that clearly (JUST MY Opinion..) could* be representing the way your mind* is feeling with 'all this' stuff going on around you (or..TO you, more accurately)..I think the dream is totally your mind trying to unload the stress you're feeling, and the empty shelves & searching? Of course...I* get, that it would seem to represent you feeling confused, lost, ALONE, looking for something (answers)... Could even say that, yeah, in a way* the 'warehouse could be your FM/CFIDS brain'...

    you're absolutely correct, in my opinion to assume it represented something of that nature...makes perfect sense to me, as I explained the 'possibility'/ my interpretation of the dream..

    Actually...I have a LOT of dreams like this...I have...forever.. I'm almost always alone, walking, sometimes labrynth styled stairways, or a castle-type... (full of water!)...and, I DO know, for me.,, my brain is 'nudging' me to get into counseling..which, for me, yes, after being ill for almost 7 yrs..so many doctors, surgeons, ER's, Specialists,,, my brain is saying it desperately needs to unload stress,,, and I do recognize, for me, that these dreams, when I have them, ARE telling me, that, I'm feeling alone (I am really really in the worst 'self-isolation' mode, and have been for the past 2 yrs or so..)

    Just too many.....everythings! LOL (MRI's, CT/CAT scans, X-rays, barium, barium, barium, radiation, etc!!! all that lovely stuff those of us who go through that junk for additional illness, or the ruling out of..

    I hope everything goes well for you, with both things...

    (I've had similar tests, around the same times, many times before...lol and...with my sick sense of humor, I'd joke with my mom & hubby & say the *gastro* was trying to find my head...if that* didn't work, the neuro was gonna take a shot with an MRI & EEG, etc.. LOL I'm a nut. Have to be to survive..)


    Best of luck,

    OH!, and...I have sensory overload, of noise, but..it's kind of.....??? specific... or??? finicky? I guess, but, my lights* and sun*light sensitivity is ALWAYS there, and I can't tolerate the (? FOG!) halogen? lights that many/most buildings have...they have them in most schools, as well, and it would absolutely trigger my *FATIGUE* as young as 14 yrs old..I absolutely get exhausted by them, sleepy, and the buzzing...drives me INSANE...seems sooo loud..while other people hardly noticed.. for heat, cold, MORNING, and sensory overload/ etc...often caused me to be labeled as...class clown.....a slacker...or just a nobody that slept in class ALL THE TIME...and then, "druggie"...because, I DRAGGED from the time I got up for school...to the time I climbed in bed sometimes. Schools lights, though, definitely along with the sun, were my earliest extreme intolerance/sensitivity.. also misunderstood/mislabeled, due to blood sugar probs & others..

    Suprisingly, though...but, I have to say, I've had a TON of brain MRI's, (MS)..as well as 1 c spine, & 1 or 2 of the lumbar, as well as CT scans..

    The last MRI (Jan 07) though.. they put headphones on, to play music for me, through an MRI/MRA...and...I could not tolerate the *headphones* and the music--particularly, DJ's talking, and radio commercial breaks/ads...omg, I would've taken the squeaky-barber-jackhammer-chirpy-bird-chisel MRI machine over the music AND the mri 'drilling' and buzzing..

    You have my sympathies...the actual machine, doesn't even bother me anymore..which is suprising..but, as I said.. my sensory overload, as far as *noise*...is....odd. Some*what, inconsistant on *SOME* things.. others, definitely constant. I hate...that the one thing that absolutely destroys my brain, body, ears, head, etc...is my sweet nieces & nephews...playing...they get soo excited though (and the oldest nephew has ADHD), normally at holidays, stuff like that, or BIRTHDAYS.. just fries my brain, with kids screaming, playing, and 30 adults, just yelling right over it..in 10 different convos! UGH.

    I hope the (?xanax) your neuro gave you, can get you through it ok... they normally have ear plugs also, that you can wear. Won't hurt to ask the tech for some..


    Take care,

    Laura
  3. lynnintn

    lynnintn New Member

    Brain MRIs suck. At least you will be sedated a little and they will give you earplugs. I had one about 5 weeks ago and then a brain arteriogram about 3 weeks ago. The MRI lasted longer and it is so hard not to move, but the arteriogram made me sick for 2 days. None of these tests are fun.

    Your brain is NOT empty. I am not much into dream interpretation but it is probably just from being anxious.

    I hope your test comes out okay,
    Lynn in TN
  4. Cinderbug

    Cinderbug New Member

    If you don't mind sharing the results of your brain MRI, I would be very interested to hear the results. That goes for you to lynnintn .
    My doctor wants me to get one to rule out M.S. Unfortunately , I no longer have health insurance so I am trying to decide if it is worth borrowing the money for.
    I would be interested to hear about anyone's Brain MRI results for CFS.

    Thank you all and good luck tomorrow ephemera

    Cindy
  5. blkkat

    blkkat New Member

    yes every time i think i won't get another i have to get one. I've had 9 so far , maybe that's whats wrong with me LOL!!

    yes i also have to have a diff. kind this next time, where i have to stay calm on the couch for 24hr after, weird huh. you'll be fine , yes at least you'll be on drugs and now that's the only way they get me to do them.

    our prayers will be with you.

    HUGS- GOD BLESS--BLKKAT
  6. lynnintn

    lynnintn New Member

    My MRI was pretty much normal, as my neuro was suspecting MS and I had no MS lesions. I do have a benign pineal cyst which I have to have checked by MRI every 2 years, but it is small and not pressing on any structures.

    My brain arteriogram was also normal. He ordered this as I have been diagnosed with antiphosholipid antibody syndrome which causes abnormal clotting and strokes, aneurysms. I had a blood clot in my lung at 22 and have a family history of sudden strokes and aneurysms on my dad's side of the family, even relatives in their early 50s. He says I probably have the beginning of Lupus, based on labwork and symptoms.

    I am so thankful I do not have MS. Although APLS and Lupus are not good things to have either, but it is nice to finally have a dx. after 5-6 years of running from doc to doc.

    Lynn in TN
  7. lynnintn

    lynnintn New Member

    My MRI was pretty much normal, as my neuro was suspecting MS and I had no MS lesions. I do have a benign pineal cyst which I have to have checked by MRI every 2 years, but it is small and not pressing on any structures.

    My brain arteriogram was also normal. He ordered this as I have been diagnosed with antiphosholipid antibody syndrome which causes abnormal clotting and strokes, aneurysms. I had a blood clot in my lung at 22 and have a family history of sudden strokes and aneurysms on my dad's side of the family, even relatives in their early 50s. He says I probably have the beginning of Lupus, based on labwork and symptoms.

    I am so thankful I do not have MS. Although APLS and Lupus are not good things to have either, but it is nice to finally have a dx. after 5-6 years of running from doc to doc.

    Lynn in TN
  8. lynnintn

    lynnintn New Member

    My MRI was pretty much normal, as my neuro was suspecting MS and I had no MS lesions. I do have a benign pineal cyst which I have to have checked by MRI every 2 years, but it is small and not pressing on any structures.

    My brain arteriogram was also normal. He ordered this as I have been diagnosed with antiphosholipid antibody syndrome which causes abnormal clotting and strokes, aneurysms. I had a blood clot in my lung at 22 and have a family history of sudden strokes and aneurysms on my dad's side of the family, even relatives in their early 50s. He says I probably have the beginning of Lupus, based on labwork and symptoms.

    I am so thankful I do not have MS. Although APLS and Lupus are not good things to have either, but it is nice to finally have a dx. after 5-6 years of running from doc to doc.

    Lynn in TN
  9. Cinderbug

    Cinderbug New Member

    I appreciate it. I keep putting it off ...mostly because I would hate to borrow the money and find nothing....or is it because they might find something???? LOL
    I am glad yours was ok.
    Take care,
    Cindy
  10. jmq

    jmq New Member

    to wish you luck. I did not mind the two brain MRI's I have had but I do not suffer with the sensitivities you have.

    Hope you have better dreams soon...
    jmq
  11. LaQuiet

    LaQuiet New Member

    I had a brain MRI last month and the docs say everything is ok. My problem is that the report says "Several tiny foci of microangiopathic white matter signal change are shown in the right frontal region." Does anyone KNOW what this means???????
  12. ephemera

    ephemera New Member

    Well, I'm furious that the testing place sent me my results before the doctor did. I've learned to always fill out any form to request a copy sent directly to me from any testing location. This is the 2nd time this kind of information has come to me via snail mail -- exactly a week after the MRI.

    I phoned the doc & left 2 messages wanting the results. I got a phone message left from an office assistant that I was OK. Phooey! Not the type of treatment I want after suffering through the MRI's sensory overload! I think all this does is rule out Alzheimer's & MS, which I never really anticipated anyway. I asked the neurologist to do a tilt table test, but he opted for the MRI to start with.

    Anyhow, for those who asked about sharing results.

    "The ventricles, cortical sulci & basilar cisterns are normal. The white & gray matter are unremarkabale. The diffusion-weighted images are negatiave. After gadolinium administration, there is no abnormal enhancement. There is no midline shift, mass, mass-effect, hydrocephalus, intraparenchymal hemorrhage, extr-axial collection or evicence of acute infration. The posterior fossa is normal. The cerebellopontine angles are normal. The visualized portions of the paranasal sinuses are clear bilaterally. Impression: no evidence of acute intracranial pathology."

    I'm hoping insurance will not fuss over payment. More later...
  13. Cinderbug

    Cinderbug New Member

    I am glad your MRI turned out ok. I finally bit the bullet and had mine done 2 days ago and mine was ok too. No lesions. I have no insurance so I shopped around and found one that cost 1/2 of what the hospital I worked for for 19 years was going to charge me. ..and it was open MRI, so it wasn't too bad.

    Thank you for sharing your results!
  14. ephemera

    ephemera New Member

    Thanks for your concern, but I've had 2 colonoscopies in past 5 years.

    This time the focus is on bleeding from hemmorhoids. This maybe related to my fissure surgery 2.5 years ago. Whatever, it's another quick look see with the sig, then maybe a referral to the surgeon I saw before.

    thanks & best thoughts to you!