Breaking News: Dr. De Meirleir on the True Nature of ME/CFS

Discussion in 'Fibromyalgia Main Forum' started by ProHealth, May 28, 2009.

  1. ProHealth

    ProHealth Member

    BREAKING NEWS: Dr. Kenny De Meirleir Announces He has Revealed the True Nature of ME/CFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome) in London Press Conference titled “ME: End of an Era of Medical Negation"
  2. mezombie

    mezombie Member

    If anyone is having trouble with the link, one can also get to this article by clicking on the "Research, News & Articles" tab at the top of the page.
  3. outofstep

    outofstep Member

    this is just amazing...
  4. ulala

    ulala New Member

    Prof. Meirleir said the mild and moderate types of ME could be treated with probiotics and antibiotics targeted at the Enterococcus bacteria.

    Patients with severe ME are more difficult to treat but it is possible to restore the normal balance of the gut and remove excess levels of chemicals from the body. Patients with severe ME are more difficult to treat but it is possible to restore the normal balance of the gut and remove excess levels of chemicals from the body.

    He said his patients had seen their urine and metal tests return to normal following treatment. He said his patients had seen their urine metal tests and return to normal following treatment.

    Antibiotics targeted at treating Enterococcus bacteria looks to be IV vancomycin. That's very difficult to get as it's the treatment for MRSA and is a last resort antibiotic.

  5. winsomme

    winsomme New Member

    there is an oral form of vancomycin.

    if the enterococcus bacteria are living in the intestinal tract, you might not need IV vancomycin.

    in fact, the oral might be better because it is not absorbed into the body.

    also used for intestinal C Diff infections....
  6. ladybugmandy

    ladybugmandy Member

    i don't know about demeirleir's reports. i had had CFS for over 15 years when i had my gut permeability and metal sensitivity testing. it was all normal and i was still very sick.
  7. ulala

    ulala New Member

    I think doctors will not easily write prescriptions for vancomycin since it's a last resort antibiotic unless it becomes a standard treatment. I don't think that'll happen in the near future.

    Vancomycin is a tricyclic glycopeptide antibiotic . [This Message was Edited on 05/28/2009]
  8. jole

    jole Member

    That is one scarey antibiotic! I would definitely think more than once (or twice) before using it I think. As far as I'm concerned, it's already being overused, and has many terrible side-effects...not to mention severe allergic reactions.

    It's one of the few high-powered antibiotics left to treat any drug-resistant infections, due to the infections becoming immune to antibiotics. When this one fails and we need something to save our life, what's there going to be to use?

    I do also understand that many with these DDs feel this may be the only thing to save our life...since we're not really living the way it is....but would ask that caution be used.
  9. misskoji

    misskoji Member

    I am soooooooooooo excited, I could pee myself! ;)
    Even if the treatment isn't available for a while, even if, well so many ifs, but I am optimistic about this! Yay!
  10. ulala

    ulala New Member


    To have IV vancomycin I think people would need to have a PICC line inserted because I doubt it's a one time treatment. It's not an easy treatment to go through. I know someone whose husband was treated with it for MRSA and it was a big deal and she's a nurse.
  11. cfsgeorge

    cfsgeorge New Member

    I would try not to take any medications for a severe disease with an unknown cause and unknown pathophysiology. But, I have no problems taking the correct medication/antibiotic to treat CFS now that the root cause(Enterococcus bacteria) and pathophysiology(H2S poisoning) are known.
  12. ulala

    ulala New Member

    research has shown that around 90% of patients with ME also have an excess of the bacteria enterococcus and streptococcus, which he believes interacts with exposure to metals to produce hydrogen sulphate.

    Some of the treatments for streptococcus are pennicillin and clindamycin There are different kinds of streptococcus.

    J Infect. 2005 Nov;51(4):e207-11. Links
    Clindamycin in the treatment of group G beta-haemolytic streptococcal infections.Pillai A, Thomas S, Williams C.
    Dumfries and Galloway Royal Infirmary, Dumfries, DG1 4AP, UK.

    We report a case of severe streptococcal cellulitis in a healthy 47 year old male, where the sole microbial isolate was a beta-haemolytic group G Streptococcus. Treatment failure with high dose penicillin was observed despite in vitro sensitivity. The addition of clindamycin resulted in dramatic clinical improvement. This may indicate an Eagle-type effect (whereby antibiotics exhibit paradoxically reduced bactericidal activities at high drug concentrations), in group G beta-haemolytic infections. Although well documented with group A streptococcal infections, this phenomenon has not been fully recognised with group G beta-haemolytic streptococcal infections. This may have important implications for clinical management.

    A[This Message was Edited on 05/28/2009]
  13. cfsgeorge

    cfsgeorge New Member

    an infectious disease specialist can easily help us treat these bacterium in our G.I.
  14. spacee

    spacee Member

    Gave me terrible, terrible constipation. Which was not the result I expected.

    I have taken the Vanco for C-diff infection of the colon. If you want the Vanco to stay in the colon, you take it orally. If you want it to get into the bloodstream, it has to be given IV. I don't think that it HAS to be a picc line for the bacteria Dr. D. mentions but it does have to be a picc line for MRSA. My sis in law had that in the lungs last year. Bad stuff.

    I do highly respect Dr. D. I know he did the research for Ampligen in Brussels but seems to be leaning other ways. I heard him speak once and he does very thorough testing of his patients and custom tailors the treatment to the results. At least he did two years ago. Things sometimes change.

  15. ulala

    ulala New Member

    Do you know what kind of probiotics he recommends? I hope it's not VSL3. I know that is one of the best probiotics, but it is very expensive and not covered by my insurance.

    Also you said if you want the Vanco to stay in the colon take it orally and IV for the bloodstream. How about for the stomach?

    Interesting that he's now leaning away from Ampligen. Thanks!
  16. cfsgeorge

    cfsgeorge New Member

    Last i heard he was recommending the VSL3. It is the "best" probiotic. I think he's leaning away from ampligen because he's done so much more since his days with ampligen that better treatments is here now. A/V's and ampligen may still be valuable for those who have very high viral titers. But the main therapy now must be to kill enterococcus in the G.I. and to detox the H2S.

    The body systems should theoretically go back to normal(ie: mitochondria, immune system, viral infections, hormonal deficientcies/imbalances, heart, cognitive)

    I feel like the future is so bright now! i'm so happy!
  17. I think this may solve the problem for one subset of ME/CFS patients. In the article here on ProHealth, it keeps mentioning the terribly ill patients, which is who I think this will help. I've left antivirals and antibiotics for later in my search for a ME/CFS cure, closer to last ditch efforts. I have ME/CFS just bad enough to keep me from joining the normal work force... not the real bad kind that leaves you bed-ridden. I've tried detoxing, since I've read that that works well for some major fatigue sufferers, but nothing happened.

    I'm kinda assuming that it would help slow down the hydrogen sulfate production if you got rid of the toxins. Therefore, this type of treatment probably wouldn't help me. Then again, should I go ahead and try the strong antibiotics? Would detoxing first be the right move? Would that help to indicate that I need to use the antibiotics? Which detoxing methods should I try? Do those Japanese foot pads work well?

    Is there a good list of things to try out there? The best I've seen so far is from Dr. Teitelbaum in his From Fatigued to Fantastic book and his web site.

    What do you guys think?
    [This Message was Edited on 05/28/2009]
  18. outofstep

    outofstep Member

    The article says that EBV, HHV6 and Borna virus titers were not different in the three groups-so we don't really know who he's looking at-were they all high? all normal? all low? We'll have to wait and see. There are other studies going on right now that specifically explain the role of HHV-6 and EBV in CFS, like the HERV-K18 study.

    What I think is so awesome about this DeMeirleir one is that this is another biomarker that will aid in diagnosis and legitimacy, and it's an inexpensive test that you can do at home. And if it's positive you can get treated. I mean, how amazing is that?

    We need all the diagnostic tests that we can get right now-even if they just diagnose a subset of CFS patients that would be great. Reeves is trying to kick out everyone w/a biomarker so that he can justify adopting the NHS CFS treatment plan. This test can only help us.
  19. outofstep

    outofstep Member

    I recommend seeing a CFS specialist and having every test done that they could think of. That way you know what you're dealing with (and much of it is treatable), plus you'll be able to rule things out. Doing this new urine test is also a good idea-it will give more information and at best it could provide you with a diagnosis.

    To find a reputable dr. you can check the "good doctors list" on this board or you can just put up a post asking for a recommendation for a dr. in your area.