C-PAP Problems

Discussion in 'Fibromyalgia Main Forum' started by petemora, Mar 4, 2009.

  1. petemora

    petemora Member

    I started a C-PAP machine a few weeks ago and have felt lousy ever since.

    It really seemed to aggravate my sinuses so I kept turning down the humidifier until I finally turned it off. Now, with the humidifier off, it seems like there's not as much air flowing through my lungs.

    I would appreciate any tips on C-PAP use and experience.


    Janice P.
  2. Jayna

    Jayna New Member

    My humidifier has a temperature control but not a flow control. The forced air just flows through a chamber in which the water sits. I found that I soon turned off the temperature control completely because breathing warm, moist air aggravated my sinuses. But I still let the air flow through the water chamber because otherwise the dry air causes mucus to thicken and dry in my nose and lungs and I feel like I'm straining for air.

    Another thing I vaguely remember from my first month with the machine is that, after a few weeks of regular use, I suddenly couldn't feel the pressure as much. My technician came over and tested the machine and said it was still working at the prescribed pressure but my body had simply adapted to expect it and didn't register it as 'different' any more.

    That was 2 years ago and I would absolutely not give up my CPAP now. Getting used to it was really hard, and just when I was at a really low point where even my normal routine was a struggle. But once I was used to the mask and everything, my sleep improved so much that my energy went up about 20% without a single other change. And my pain went way down too. So it's worth persevering.

    I hope either my or someone else's experience helps you.
  3. petemora

    petemora Member

    Thanks for responding.

    I think I will set the humidifier level to one, so that it's on, and see if that helps.

    I am going to see my "sleep doctor" next week and he will check me over, as well as the machine, to see how we're doing.

    One of my problems is, I can't remember how things work, what I'm supposed to do, etc.

    Janice P.
  4. Debra49659

    Debra49659 New Member

    your doctor will check you setting next week at your visit and will adjust the flow if needed. Keep in mind it may be your mask as well, are you having any leaks??

    Can you print out this post so you can show your questions to your doctor...or write your questions down that you posted here.

    Hope this helped,
  5. bobbycat

    bobbycat New Member

    Is your automatic or manual. And yes take your machine to your respitory specialist and if it is manua you may need the settings changed. I alos am having a hard time with mine. Also what kind of mask to you wear is it full or nasal. That could make a difference.