Can we all put together a list of lab tests??!!

Discussion in 'Fibromyalgia Main Forum' started by 2BPainfree, Feb 26, 2003.

  1. 2BPainfree

    2BPainfree New Member

    I know labs are discussed daily on the board...but I was thinking wouldn't it be a valuable tool to have a virtual list of ALL (or as many as possible) potential labs that could or should be done for diagnosing!

    Of course this list would not mean that each person should run out and have everyone of them done, but I think a list like this would be helpful to take to physicians who are willing to try to help, but aren't sure what to request...(they can pick and choose what they deem appropriate)
    it would also be helpful for those of us who don't have anyone who really takes an interest.

    I know research here would be good, but there are many of us who are too sick to do back-log research (including myself), trying to pick out all the wonderful "Pearls" in the archives, and many who for whatever reason can't be on the board daily. People like Jelly have given such great info, reseaching for those of us who can't...my hope is that a list like this may prove to be an extremely helpful
    tool that can be a referance when neccesary.

    What do you all think??? If this sounds like a good idea... Let's try puttin one together!! Starting with this post!!

    Please list as many as you can think of. I will condense the list when we are done, so don't worry about repeats.


    LIST OF LABS FOR FM & CFS:
    (To detect a variety of "potential" causes/etiology)

    1.
    [This Message was Edited on 02/26/2003]
  2. kellbear

    kellbear New Member

    I agree with this one. It would surely help me. I am sometimes too ill to even look at everything, also it is overwhelming. One of the previous doctors I saw believed CFS exsisted but had no idea what to test for to elimate everything else.
  3. poultrygeist

    poultrygeist New Member

    I would think:

    cortisol
    thyroid panel
    adrenal panel
    stool culture
    blood pressure in different body positions
    Stress questionnaire (life change units)
    even a histimine response.

    of course this is additive to basic blood workup like:
    cyte counts
    ESR
    etc.
  4. 2BPainfree

    2BPainfree New Member

    Also:

    1.EBV testing: VCA, EBV, EA
    2.CMV
    3.Teichoic Acid Antibody test. (Detects some Bacteria. Example: Staphylococcus aureus. gram pos bacteria give off teichoic acid as an element of cell walls)

    4.Lyme Disease
    5.IgG,IGM,
    6.Platelet testing and bleeding time.
    7.RA Factor and the level/titer (not just Pos or Neg)
    8.ANA (Antinuclear Antibody)
    9.HHV-6[This Message was Edited on 02/26/2003]
  5. 2BPainfree

    2BPainfree New Member

    Does anyone have any full workups by a specialist? There would be alot of good labs on there! (Mine were done so long ago I don't have a clue where they are, LOL)

    We also need all the different types of mycoplasmas, I can't remember what they are off the top of my head...
    [This Message was Edited on 02/26/2003]
  6. 2BPainfree

    2BPainfree New Member

    Anyone interested?
  7. dolphinmk

    dolphinmk New Member

    As someone who was newly diagnosed, I think this is a great idea.

    I know that some of these tests were done.

    I would like to know not only the tests, but what #'s etc. for each one makes the test...positive, negative, normal, abnormal.

    I had the EBV test done and I can not understand how to compare the results on the lab work to what the SSR 99-2 ruling for CFS says the EBV ranges are.

    Thank you, I know i can not be the only one who is trying to figure out how they compare.

    dolphin
  8. 2BPainfree

    2BPainfree New Member

    CFS, FM, GWI,RA other rheumatic conditions and autoimmune pts, also for other chronic conditions.

    1. Mycoplasma (m. fermentans, M.penumoniae, M.hominis,
    M. penetrans) by PCR (NOTE: Specimens need to arrive within 24 hours before DNA damage begins.)

    2. Chlamydia pneumoniae by PCR

    3.HHV-6 (Human Herpes Virus-6) by PCR

    4.CMV (cytomeglovirus) by PCR

    5.Borrelia burgdorferi (Lyme Disease)

    These labs have been mentioned many times before at this site, however for new people reading the boards, I hope this helps.
  9. 2BPainfree

    2BPainfree New Member

    For anyone who is looking to have blood work done at the Institute for molecular medicine in Huntington Beach, Ca...
    They are going out of business as of March first and are already no longer accepting ANY new specimens....what a Bummer, HUH?!

    I agree with Jelly...for this bloodwork (mycoplasma especially) it is best, if possible, to go directly to a lab who will run the tests there. This will insure the tests are run in a timely manor for accurate results.
  10. LeLeHpr

    LeLeHpr New Member

    I was tested by an infectious disease doc.. OH JOY! You can only imagine how much fun I had..LOL I certainly know what it feels like to be a human pin cushion.

    She tested for all the ones already listed on previous posts along with:

    1. cpr
    2. sedimentation rate
    3. Cat scratch fever
    4. Rhuematic fever
    5. Scarlet fever
    6. T-helper cells
    7. Full CBC
    8. MRI to test for MS (That one was scary!)

    I will tell you what she said to me on my last visit. My inflamation markers were 43, normal is under 20. She suggested I start having cancer screens...She advised she had never seen such a young person with such high inflamation markers like I had. She was baffled that all of the test came back negative. (Needless to say I never had any of the cancer screens done, as my insurance company will not pay until I am 35, which will not be for another 9 years.....GGRRRRRRRRRR

    Hope this helps?!

    LeAnn AKA lelehpr