Can You Walk Every Day?

Discussion in 'Fibromyalgia Main Forum' started by mary01, Jan 19, 2011.

  1. mary01

    mary01 New Member

    When I developed FM, I tried several things that I found helpful. I agree that the slow stretching is a very good way was very helpful. I had an FM book that chronicled Yoga poses. The other thing that helped me immensely was cranial-sacral massage done by a exhiropractor. Third, I recommend Corvalen which is D-Ribose, Malic Acid and Magnesium (sold at ProHealth). I also suggest extra Magnesium. Heartily recommend your diet adjustments. Have done all this myself. My problem is I later developed CFS and I really cannot walk more than a short distance without triggering post-exertional malaise.

    I agree with everyone else. Very healthy folk come to understand these illnesses VERY slowly, if ever. Focus your energy and time on yourself--exploring different treatments.

    One last thing. My very dear friend suffered terribly with FM for years. She recently underwent 3 intensive weeks of myofascial therapy. Helped her immensely.

    My best to you.

  2. roge

    roge Member

    I have FM and cant walk every day. In fact I cant even walk 500 meters/day. 2.5 years of plantar faciitis has led now to flexor hallicus tenonditis (big toe flexor) and now tibialis posterior and peroneal tendonitis of the ankles and throw in some tarsal tunnel syndrome as a side dish - fun stuff.

    Doesnt surpirse me myofacial therapy helped your friend as I have believed for a long time that a major component of FM is dysfunctional muscles and facia and low and behold a study in 2010 confirms it, see below



    Fascia: A missing link in our understanding of the pathology of fibromyalgia – Source: Journal of bodywork and Movement Therapies, Jan 2010
    by Ginevra L Liptan
    June 13, 2010

    Significant evidence exists for central sensitization in fibromyalgia. However the cause of this process in fibromyalgia - and how it relates to other known abnormalities in fibromyalgia - remains unclear. Central sensitization occurs when persistent nociceptive input leads to increased excitability in the dorsal horn neurons of the spinal cord. In this hyperexcited state, spinal cord neurons produce an enhanced responsiveness to noxious stimulation, and even to formerly innocuous stimulation.

    • No definite evidence of muscle pathology in fibromyalgia has been found. However, there is some evidence for dysfunction of the intramuscular connective tissue, or fascia, in fibromyalgia.

    • This paper proposes that inflammation of the fascia is the source of peripheral nociceptive input that leads to central sensitization in fibromyalgia.

    • The fascial dysfunction is proposed to be due to inadequate growth hormone production and HPA axis dysfunction in fibromyalgia. Fascia is richly innervated, and the major cell of the fascia, the fibroblast, has been shown to secrete pro-inflammatory cytokines, particularly IL-6, in response to strain.

    • Recent biopsy studies using immuno-histochemical staining techniques have found increased levels of collagen and inflammatory mediators in the connective tissue [fascia] surrounding the muscle cells in fibromyalgia patients.

    • The inflammation of the fascia is similar to that described in conditions such as plantar fasciitis and lateral epicondylitis, and may be better described as a dysfunctional healing response. This may explain why NSAIDs and oral steroids have not been found effective in fibromyalgia.

    • Inflammation and dysfunction of the fascia may lead to central sensitization in fibromyalgia.

    If this hypothesis is confirmed, it could significantly expand treatment options to include manual therapies directed at the fascia such as Rolfing and myofascial release, and direct further research on the peripheral pathology in fibromyalgia to the fascia.

    Source: Journal of Bodywork and Movement Therapy, Jan 2010;14(1):3-12. PMID: 20006283, by Liptan GL. Dept. of Medicine, Oregon Health & Science University, Portland, Oregon, USA. [E-mail:

    [This Message was Edited on 01/22/2011]
  3. roge

    roge Member

    I would further add and to support the above hypothesis of inadequate growth hormone production that I have the IGF-1 levels of a man nearly twice my age and I am 40. IGF-1 is made from growth hormone so no wonder my bones (i have osteopenia, t score of -2) and soft tissues are like a man in his 70's. Been dealing with insurance for 3 years now and they are not budging on helping me to fund a 1 year trial of growth hormone that is deemed essential by my endocrinolgist, just rediculous.

    People with FM do not heal well , it is like we have plantar faciitis all over our body. of course it isnt as simple as we are just GH deficient as FM is a neuroimmunendocrine disease and a dysfuntuional hypothalamus -pituitary-adrenal axis is likely just a symptom of many.

    Our GH in our pituitary gland for many is not being released properly and the 2 main reasons likely are , lack or no stage3/4 sleep (deep sleep) where 80% of GH is released and an inability to secrete GH during and after intense exercise for those with Fm that can even get to that level of intensity. Dr. Robert Bennet did a study of females with FM and they exercised to anaerobic levels (quite intense) and they did not mount a GH response likely due to increased hypothalamic somatostatin tone. In the study of 500 female FM patients the average IGF-1 was 137 vs 216 for the controls of the same age so clearly there is something going on here as IGF-1 hormone is a very important systemic hormone that affects the whole body.