Carrabelle and Stormyskye

Discussion in 'Fibromyalgia Main Forum' started by Fibrotears, Jul 16, 2006.

  1. Fibrotears

    Fibrotears New Member

    I'm 21 and the rectal and vaginal spasms started in August 2002. It was a sudden onset. There after my FM symptoms really started to 'show'. I have 24/7 pain and it never gets better. Not even applying warmth helps.

    I went to numerous specialists and followed numerous treatments.

    I used almost every anti-inflammatory medicine on the market. Over 20.

    I used anti-depressants like Trepiline, Tofranol, Cilift and Cymbalta. None helped. It only made the spasms even worse.

    I also used Adalat, Catapress and Tegretol. Again it made my pain worse.

    I also used muscle relaxers: Robaxin, Lioresal, Spasmend, Buscopan, Bevispas, Librax, norflex etc.

    Botox was injected twice intra-vaginally into the triggerpoints. It didn't help.

    Last year I had 4 pudendal nerve decompression surgeries. It worsened the pain.

    This year a I used a combination of very high doses of Tegretol 600mg a day , Pur-Bloka 60mg a day and Trepiline 20 mg a day. Only AGAIN made the pain worse.

    Lignocaine and DepoMedrol was injected intra-vaginally over 25 times into the triggerpoints. It helps but is not permanent and hurts too much to do it often!

    The pain is a spastic pain and sometimes accompanied with a sharp stabbing pain.

    I've considered biofeed back but the physical therapists in South Africa are not trained to work on a tense/spastic pelvic floor. Only trained to work with weak pelvic floor muscles. So thats not an option.

    FM symptoms: Chronic fatigue, muscle aches, several TP's, low back pain, chemical sensitivities, insomnia and then the vaginal and recatal triggerpoints.

    I use Valoron 50mg 4 times a day. DicloHexal 50mg T one twice a day. Dormanoct at night to sleep. USN Multivite one a day. Caltrate Plus two a day.

    Yes, I used magnesium for a very long time. Didn't help either.


    <br>[<i>This Message was Edited on 07/16/2006</i>]
  2. carynparyn

    carynparyn New Member

    I am suffering from similar pain and I live in Johannesburg South Africa. Please can you let me know who gave you botox in the vagina as my gyne recommended that I do that to but she does not know of anyone who offers the service.&lt;BR&gt;
    Thank you!!! &lt;BR&gt;
    My email is (e-mail address removed by moderator)