(From Co-Cure) I wonder would it be possible for people to send in Freedom of Information Act (FOIA) requests to find out who the CDC have been inviting to the meetings below. And also with the first one, who attended. I don't live in the US so I think it should be done by somebody from there. With a management workshop, people are unlikely to change their opinions at it: if you support a Graded Exercise Therapy (GET) approach (or CBT based on graded exercise therapy), you are unlikely to change your mind (people like Peter White are unlikely to "budge an inch" I think). While the Leonard Jason et al study in 2007 found that a programme based around pacing of activity did better than the exercise arm and the CBT arm of the trial. Also in another paper, the envelope theory was found to be useful. These are different approaches. Ellen Goudsmit has published papers and a trial on pacing. So it's very important to see who is being invited to the workshops. We may be able to influence who attends at future meetings organised by the CDC if enough fuss is made about say the management workshop. We have seen that Peter White, when he was a peer reviewer, criticised the empirical definition (Reeves, 2005) http://www.biomedcentral.com/imedia/1083914155124266_comment.pdf but then he signed the 4-man external review of the CDC program which actually praised the empirical definition (Reeves, 2005). So at the workshop on the definition we need people who are willing to challenge the empirical definition (Reeves, 2005). If this could be done before the CFSAC meeting at the end of October, it'd be great. If not, if the CFSAC members could ask for this information, it'd be great. But the best situation is if people have the names in advance and it can be circulated in advance of this meeting where the CDC's 5-year plan will be presented. In the last 8 years, the only person from the UK the CDC has been inviting has been Peter White who is not representative of all opinions there. Similarly Gijs Bleijenberg from the Netherlands. Regards, Tom Kindlon http://www.hhs.gov/advcomcfs/meetings/index.html Comments from Bill Reeves at CFSAC May 2009 meeting Workshops and International Research Networks - International Workshop - Clinical Management of CFS. I haven't sent the emails yet, but we're hoping to do it by September or October. Comments from this committee discussing such a workshop would be appreciated. - International Workshop - Research, Clinical, and Pediatric Definitions of CFS - I would like to try to get together by the winter of 2009. I know the IACFS/ME is interested in this. We want to include countries such as UK that have CFS care completely integrated into their healthcare system. - International CFS Study Group - Identify Research Priorities. We need people from countries that have successfully done it to help identify research priorities.