Celiac Disease

Discussion in 'Fibromyalgia Main Forum' started by mary124, Apr 21, 2006.

  1. mary124

    mary124 New Member

    I just been dx with Celiac Disease. Anyone know what this is? Apparently I am allergic to Wheat, grain, oats, barley. (anything with Gluten in it--another words, everything or so it seems like it). It runs in families, but no one in my family has it, or bad enough to go to the doctors. I had to go to the doctors in February because I started to have really bad pains on my left side, then diarrhea, lost 12 pounds in about 1 month (haven't weighed what I weigh now since my youngest was born and that was 18 years ago!!) After my family doctor did a few tests on me, he sent me to a GI doctor and he did more lab work, including more blood test, I go next week for a EDG and also a Colonscopy. ( doing both, this way, he says so that I do not have to get off my coumadin later on). Its depressing, because with my IC, I follow a diet,but this one is more strict. (whats more depressing, is that I looked in my pantry and refrig and everything I have in them, has all of these ingred. in it that I can't eat!!)
    My husband wanted to take me out to dinner last night, I told him we can't because where he wanted to take me, there was nothing that I could eat. So we did go to a bookstore and I bought a cookbook for Gluten free receipes. Now, all I have to do is to buy the ingred.
    Will let you know when I get the results back, of course, that will probably be in a few weeks.
  2. Theresa

    Theresa New Member

    I requested this test from the Gastro doctor. I feel better
    when I eliminate gluten. But I'd like to know for sure whether or not I can have a little now and then. No one in my family has it either. I'll let you know what my results are.
    I know it's hard to give up all of those foods, but at least you know what to treat now.
    Take care, Theresa
  3. Bet2

    Bet2 New Member

    There's no reason you cannot go out to dinner with your husband. I too, have to eliminate gluten, sugar, caffeiene, alcohol and not much dairy from my diet.

    I know that sounds overwhelming at first, but you would be surprised and what you can still eat.

    Like tonight I am going out for crab dinner at the casino. Mmmmm. Veggies, fruit and protein in abundance.

    At your healthfood store or on the internet you can find so many wonderful gluten free products. Even cakes and cookies sweetened with honey, not sugar. You can't have those things when you eat out, but when you go out just be selective.

    If you want to make a sandwich, use Ezickiel Bread. You will find it in the frozen section at your local healthfood store. They only use the wheat sprouts and that won't hurt you. You can also use rice flour bread, but that is alot heavier and I don't like it as well

    Research hon, you will be surprised that there are alot of us that cannot tolerate gluten and it's not that bad.

    I felt like you did at first too but there is light at the end of the tunnel regarding a gluten free existance.

    Good luck!

  4. ncats

    ncats New Member

    There is a great glutenfree fourum with lots of information.



    ANNXYZ New Member

    There are others here whose " CFS" improved BUNCHES by adhering to a gluten free diet after being diagnosed celiac ( one member who is MUCH better was
    "Advancewithcourage" ) . Also , many other CFS'ers and lyme folks feel better on a celiac diet . I DO!

    I also tried to cut down on the gluten/ flour products and lost 12 lbs with NO effort !

    You may really start feeling better now - maybe not a cure , but you will improve significantly , because the gluten REALLY makes you feel sick if you are a celiac .
  6. mary124

    mary124 New Member

    Thanks I will check out the forum. I did go on the internet and found a few things. Basically, I just have to read the food labels!! There was a long list that I printed out - had both foods that I can eat and that I can't eat. ( I know Walmart already has on their labels if there food is Gluten Free).
  7. tonakay

    tonakay New Member

    Saw this and just wanted to say howdy!

  8. bunnyfluff

    bunnyfluff Member

    I have been a diagnosed Celiac for 5 yrs. At first it seems like there is nothing you can eat, but that is simply not true. It will take some label reading, and some education, but once you have it down, it's easy!

    Here is a great site to help get you started on the right path:

    Eating out is not too bad. You just need to request your meat or fish grilled plain without sauce, get a baked potato, you can do most any salad without croutons, vinegar & oil is always safe, but so is most ranch dressing (not blue cheese!!), or get steamed veggies. You can get a fruit cup & omlette, any burger minus the bun, most Mexican food as long as it's a corn tortilla.....it reall has gotten so much easier now, too with the frozen dinners, etc., since the labeling has had to change!

    Anyway, Yoplait yogurt is GF, so is natural sour cream, and just thicken home made gravy with corn starch. You'll be an old pro before you know it!!

    I do not buy hardly any expensive GF foods, I have managed to buy most everything I eat from standard grocery store shelves. I do endulge in a few items from time to time, like Lara Bars, and I use Healthy Valley Rice Bran graham crackers to make home made graham craker crusts for pies. you can add cocoa and make a "fake" Oreo crust that way, too. I get lots of compliments @ Thanksgiving, and my pies are the first to go!

    Don't despair! You'll do great! Oh, and Tinkyada is the best GF pasta- it tastes just like regular, so you can make all of your regular pasta dishes @ home, or take your own pre-cooked pasta with you!

    Also, check your hair products. I had to switch to Pantene or Herbal Essence. Most others contain wheat.

    Gluten almost killed me. So much of my small intestine got destroyed that I was cannibalizing my bone marrow to stay alive. It is very serious, and can lead to serious cancers, so don't mess around.

    Hope this helps!
  9. mary124

    mary124 New Member


    I already found the sight you were referring to. Found some food in my cabinets as well. The hard part is going out, I did go to Wendys and had a hamburger (minus the bun) the other day. My husband and I like Mexican food, so I'm going to have to watch it there.
  10. bunnyfluff

    bunnyfluff Member

    Glad you found the Celiac site. That is the best of all. There is a good book they recommend for eating out. I always just sort of wing it. Wendy's is good because you can get the chili, baked potato, & the frosty, too. I like the one where you can add the butterfingers' sprinkles :)

    Thank God for Mexican food! LOL! I love it so much! I do miss Olive Garden, tho! No more Soup, Salad & Breadsticks ***sigh***

    Oh, I'm from Texas, and BBQ places are usually okay, too. I always just tell people i can't eat "cheap" food anymore. The cheaper the food, the more crap they put in it, and usually wheat as a filler.

    Yeah, I'm expensive, but worth it!! LOL!

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