Center for disease control

Discussion in 'Fibromyalgia Main Forum' started by krisinkansas41, Feb 7, 2003.

  1. krisinkansas41

    krisinkansas41 New Member

    How come there is nothing on the CDC site about Fibromyalgia? There is everything you can think of on the site but not Fibro........kind of makes me feel they don't even recongnize it. Any answers?
  2. bluebirder

    bluebirder New Member

    I just started the process with a disability specialist lawyer who came to our pain support group. He held up a big fat book of 'criteria' for disability qualifications. He said Fibromyalgia was not listed. That is something they really don't recognize as of yet. It is becoming more accepted as a valid disabling disease though.For now we have to go at it from a different route. Not just the Fibromyalgia but from the "symptoms that prevent regualr gainful work activity" and that sometimes he can get it on the grounds of the chronic pain and depression caused by the daily dealings with illness and family and work..

    Since I did work 7 of the last ten years I paid into SS and had income above a certain $ amount if my Dr says I can not do ..... then I should eventually win if I go at it first with a lawyer.

    So technically they don't accept Fibromyalgia yet as a qualifying condition. It is the effect and quality of life at the moment of application.People with Fibro sometimes have to qualify through co-existing conditions.Many people with Fibro continue to work, just on a lower work load or a change in careers.

    They may well deny me and make me take classes or something for training for something else. All I know is child development and preschool child management. I can't get up and down on the floor anymore. At least not to the level needed in a preschool setting with Head Start children. I miss the kids so much too! I felt like I was making a differnce. But could no longer ensure I wouldn't fall on one if I tried to step over something or be fast enough to get nearby to deter and redirect one childs anger to prevent another from harm. Their well being was in my hands and I couldn't perform appropriately. But Social Security would probably just say I needed to change jobs. At that point I didn't know it was Fibromyalgia. Thought it was a weak back and the plantar fasciitis.

    I want so much now to go back up there and visit the classrooms. But I know I would come away depressed.

    For now I have to look at the limitations of my many different medical problems.

    1. leaking bladder with quick movement, lifting or coughing.

    2. instability from plantar fasciitis

    3. dropping things with left hand

    4. sometimes can't pick up coffee pot with left hand

    5. tail bone pain & back pain sitting

    6. Leg and foot pains standing

    7. overall fatigue

    8. allergies triggering asthma which triggers bladder leakage

    9. inability to squat and stand back up

    10. irritable bowel

    11. sensitivities to medications

    12. medication for one thing irritates another thing
    asprin>>asthma inducer
    motrin, advil, valumn >> excessive bleeding
    muscle relaxants >> aggrivates acid reflux
    asthma medications > increase dizziness & shakiness
    asthma attacks increase bladder incontenence
    medications in general cause "dopey head syndromne"
    medications decrease alertness and classroom safeness
    medications cause instability (loss legg control)

    13. muscle spasms, insomnia

    14. unable to lift without hurting back

    15. simply hitting pot holes in roads causes back spasms

    16. diverticulosis & abdomen pain

    I don't suppose any of them alone would qualify me but what about putting them all together? I am already 47 so not too many jobs I could get and perform well where they wouldn't really prefer a younger person.
  3. Mikie

    Mikie Moderator

    While Listing 1.02 is specific to Fibromyalgia, my attorney uses it for disability. He has the docs fill our a questionnaire stating that you are disabled according to SS's own Listing 1.02.

    SS isn't as interested in what you have as how it affects your ability to work.

    Love, Mikie