***CFIDS/FM/ME == OTHER DIAGNOSES to INVESTIGATE==Please add any!

Discussion in 'Fibromyalgia Main Forum' started by victoria, Feb 13, 2008.

  1. victoria

    victoria New Member

    There was a thread started a few years ago with the many diagnoses, ie, DISTINCT diseases, that one could have if diagnosed with CFIDS/FM/ME, but can't find it. It may have disappeared... so I'm starting a new one.

    PLEASE don't add arguments... this is just a list for people to check out and consider

    Hope everyone will add to it, not only with the name of a diagnoses, but maybe also with appropriate website (see guidelines & rules above) for more info (orgs, etc) if there's one for it...

    So, as a start, I'll naturally start with these as they've touched my life and those of my loved ones and played their parts:

    -Hemochromatosis (americanhs.org/)

    -anemia (just saw a segment on TV, woman suffered for 10 years before being dx'd, had a lot of symptoms I've seen mentioned here) - read more at:
    http://www.emedicine.com/MED/topic1799.htm
    http://www.diagnose-me.com/glossary/G31.html
    (last one has a lot of reasons given for it occurring in a user-friendly matter)

    -Lyme (ilads.org canlyme.com lyme.org)
    ALSO, Nov. 26, 2008, Dr. Oz will be featuring 'Under Our Skin' and talking to people with lyme on his radio show - see the end post to this thread for details!)

    -Chlamydia Pneumonia (cpnhelp.org)

    -Mycoplasma
    ( mycoplasmasupport.org/ )

    -Babesia (see lyme sites)

    -Bartonella(" " ")

    -ehrlichiosis (" " ")

    -HHV6 & other HHVs (Human Herpes Viruses includes epstein-barr)

    -Hypoglycemia (hypoglycemia.org/)

    -Candida (alternativementalhealth.com/articles/candida.htm + candidapage.com)

    -Leaky gut

    -adrenal insufficiency (look up 'low dose cortisol' 'Dr. W Jeffries')

    -MCS/Multiple Chemical Insensitivities

    --gluten intolerance (http://www.gluten.net/) (http://www.celiac.org/)

    -Lack of 'vitamin' D

    -Too much 'vitamin' D (marshallprotocol.com)

    -Sick Building Syndrome

    -Mold Sensitivity

    -Food Sensitivities (commonly corn, milk, many others eaten daily)

    -Reflex Sympathetic Dystrophy/RSD (rsds.org)

    -Parvo B-19 and others


    AND REMEMBER:

    "Be kinder than necessary because everyone you meet is fighting some kind of battle."





    <br>[<i>This Message was Edited on 04/13/2008</i>]
    <br>[<i>This Message was Edited on 05/03/2008</i>]
    <br><br>[<i>This Message was Edited on 11/20/2008</i>]
  2. tansy

    tansy New Member

    hypermobility syndromes

    POTS

    thyroid disorders: clinical or sub clinical

    hughes syndrome

    heavy metal/mercury toxicity

    chiari type 2

    atlas misalignment

    organo phoshpate poisoning

    ms

    auto immune disorders like lupus

    parasitic infections

    hepatitis c

    specfic immune deficiencies

    behcet's disease

    vascular disorders

    cardiac disorders

    the methylation pathways

    electrosensitivity<br>[<i>This Message was Edited on 02/16/2008</i>]
  3. victoria

    victoria New Member

    -Cytomegalovirus
    CMV used to be hard to differentiate from EBV/mono, by the way...

    -hormonal imbalances

    -deficiency of Human Growth Hormone/HGH

    -'Thick blood" (?) (meaning what Guiafenesin protocol helps, not sure what causes it specifically)










    <br>[<i>This Message was Edited on 03/25/2008</i>]
  4. SweetieLF

    SweetieLF New Member

    -Enteroviruses
    -Coxsackie
    -Echo
    -Stealth

    -Stealth infections for all of the aforementioned diseases, as well

    -Heavy Metals (google DMPS 24 hour urine challenge)
  5. Summerbreeze

    Summerbreeze Member

    Hyperparathyroidism

    Check the excellent site by James Norman, MD. Easy to find by googling his name.
  6. victoria

    victoria New Member



    -secondary porphyria (cpnhelp.org/?q=secondaryporphyria)

  7. floridagrl

    floridagrl New Member

    polymyalgia rheumatica, neuropathies, lupus, multiple sclerosis and rheumatoid arthritis.
  8. sweetbeatlvr

    sweetbeatlvr New Member

    chronic persistant mono
  9. justlooking

    justlooking New Member

    and a great idea to keep adding all the possibilites.

    If you are new to FM and/or CFS this is a great starting point and if you are an oldie to this then a great reminder of places to keep looking.

    Thanks!
    Sincerely
    JL
  10. Cate41

    Cate41 New Member

    I have also been diagnosed with hyperparathyroidism. Hopefully in a few months, I can report that I have been cured!

    Cathy
  11. Ginner

    Ginner New Member

    thank you victoria
    ginner
  12. momof27

    momof27 New Member

    1934 ATYPICAL POLIOMYELITIS

    1936 ENCEPHALITIS

    1937 ABORTIVE POLIOMYELITIS

    1939 PERSISTENT MYALGIA

    1945 PLEURODYNIA W/ PROMINENT NEUROLOGICAL SYMPTOMS

    1946 AKUREYRI DISEASE

    1948 POLIOMYELITIS--ICE LAND

    1949 POLIOMYELITIS ---YEAR I WAS BORN---SOUTH AUSTRALIA

    1950 POLIOMYETIS--LOUISVILLE KENTUCKY

    1952 ENCEPHALOMYETITIS ASSOCIATED WITH POLIOMYELITIS VIRUS LONDON ENGLAND

    1952 EPIDEMIC MYOSITIS---COPENHAGEN, DENMARK

    1952 EPIDEMIC NEUROMYASTHENIA--LAKELAND FLORDIA

    1953 POLIOMYELITIS--COVENTRY DISTRICT, ENGLAND

    1953 ROCKVILLE, MARYLAND POLIOMYELITIS-LIKE EPIDEMIC NEUROMYASTHENIA

    1953 EPIDEMIC ENCEPHALITIS W/ VERTIGO

    1954 MYALGIC ENCEPHALOMYELITIS IN TALLAHASSEE,FLORDIA AND SEWARD, ALASKA

    1954 OUTBREAKE OF POLIOMYELITIS- BERLINE, GERMANY--LIVERPOOL , ENGLAND--JOHNNESBURG,SOUTH AFRICA

    1955 MYALGIC ENCEPHALOMYELITIS--DALSTON,CUMBRIA,ENGLAND,LONDON,ENGLAND,PERTH,WESTERN AUSTRALIA,GILFACH GOCH,WALES,DURBAN CITY SOUTH AFRICA ,SEGBWEMA,SIERRA LEONE ,PATREKSFORDUR AND THORSHOFN,ICELAND ((((UNUSUAL RESPONSE TO POLIO VACCINATIONS)))

    NORTHWEST LONDON,ENGLAND --"ACUTE INFECTIVE ENCEPHALOMYELITIS STIMULATING POLIOMYELITIS"

    1956 RIDGEFIELD,CONNECTICUT,UNITED STATES--REFERRED TO AS NEUROMYASTHENIA

    1956 NEWTON-LE-WILLOWS,LANCASHIRE, ENGLAND--LYMPHOCYTIC MENINGO- ENCEPHALITIS W/ MYALGIA AND RASH

    1956 PITTSFIELD, AND WILLIAMSTOWN,MASSACHUSETTS USA--EOIDEMIC NEUROMYASTHENIA, COVENTRY ,ENGLAND ALSO

    1957 BRIGHTON,SOUTH AUSTRALIA--REFERRED TO AS BEGIGN MYALGIC ENCEPHALOMYELITIS, COXSACKIE,EHCO VIRUS MENINGITIS,EPIDEMIC MYALGIC ENCEPHALOMYELITIS AND MYALGIC ENCEPHALOMTELITIS

    1958 TAKING A BREAK I'LL BE BACK WITH THE REST TONIGHT

    MOM






    <br>[<i>This Message was Edited on 04/10/2008</i>]
  13. Catseye

    Catseye Member

    liver congestion

    mitochondrial malfunction

    stomach acid deficiency (technically, is part of leaky gut problem)

    digestive enzyme deficiencies (also part of leaky gut problem)

    rouleaux effect (clumping) of RBCs causing low oxygen transport and low oxygen in the body

    deficiencies of body's antioxidant enzymes causing PEM

    overall nutritional deficiencies





    karen
  14. doxygirl

    doxygirl New Member

  15. victoria_dragon

    victoria_dragon New Member

    Leukemia.

    BTW, the "thick" blood sometimes (not always) is due to chronic dehydration. The PWC/FM thinks s/he's drinking enough water because s/he drinks when she feels thirsty, but the person's sense of thirst is messed up.

    Common TCM (Traditional Chinese Medicine) diagnoses of people who may or may not have CFIDS:

    Kidney Yang Deficiency and/or Kidney Yin Deficiency

    The following info is taken from the textbook The Practice of Chinese Medicine, Giovanni Maciocia in the chapter on ME (cfids) (also includes post-viral syndrome and chronic EBV disease):

    1. Residual pathogenic factor. The term "pathogenic factor" includes the long-lasting effects of the body being exposed to Heat, Cold, Dampness, Wind, or Dryness. "Antibiotics are one of the most commom causes of residual pathogenic factor in our society. Whilst they do destroy bacteria, from the point of view of Chinese Medicine they tend to 'lock' the pathogenic factor in the Interior and do not release the Exterior in the beginning stages of an exterior invasion, nor clear Heat or resolve Phloegm in the later stages." (p. 632.) State of the art treatment for infection in modern China includes both antibiotics and clearing any residual pathogenic factor.

    2. Latent Heat - Translated into allopathic terms, this can mean a disordered immune system response.

    3. Lesser Yang pattern - Translated into allopathic terms, this is an infection that never quite seems to go away. One of the most prominent characteristics of this is frequent alternation between feeling too hot and feeling too cold.

    Victoria D.
  16. msbsgblue

    msbsgblue Member

    Oh my how would anyone get a doctor to test for all of these without thinking one was crazy.

  17. victoria

    victoria New Member

    Here's one more, from a post today by painpaingoaway...

    Borna Virus
    http://www.medscape.com/viewarticle/418438
    ------
    "Tick-Borne and Other Emerging Infectious Diseases
    Viruses and Idiopathic Neurologic Diseases

    "Intriguing associations that have been ascribed to Borna virus include
    -multiple sclerosis,
    -amyotrophic lateral sclerosis,
    -major depression disorder,
    -bipolar disorder (where this organism has already been identified in select cases),
    -schizophrenia,
    -chronic fatigue syndrome,
    -panic disorder..."
    -------

    It's amazing how many have so many overlapping symptoms... I guess because these things can go anywhere we're genetically susceptible...

  18. mompain

    mompain Guest

    Sjogren's Syndrome
    Thyroid Nodules (Non-Cancerous)
    Reyanuld's Syndrome (Not sure about the spelling on this one.)
    Lymphoma

    I have the first 3 listed above and know that a lot of people with Sjogren's can develop Lymphoma.
  19. victoria

    victoria New Member

    where your hands/feet can get so cold/little to no circulation --

    I just read an interesting study that h. pylori (the bacteria that can be responsible for ulcers) can also cause some cases of Raynaud's...

  20. victoria

    victoria New Member

    she's been diagnosed with Chronic Lymphocytic Leukemia, many overlapping symptomsm including fatigue, and may be relatively inactive for years, according to:

    http://www.cancer.gov/cancertopics/pdq/treatment/CLL/patient
    ------------
    Possible signs of chronic lymphocytic leukemia include swollen lymph nodes and tiredness.

    Usually CLL does not cause any symptoms and is found during a routine blood test. Sometimes symptoms occur that may be caused by CLL or by other conditions. A doctor should be consulted if any of the following problems occur:

    * Painless swelling of the lymph nodes in the neck, underarm, stomach, or groin.
    * Feeling very tired.
    * Pain or fullness below the ribs.
    * Fever and infection.
    * Weight loss for no known reason.

    Factors:
    * Being middle-aged or older, male, or white.
    * A family history of CLL or cancer of the lymph system.
    * Having relatives who are Russian Jews or Eastern European Jews.