CFS and a Rheumy

Discussion in 'Fibromyalgia Main Forum' started by jennaggie12, Mar 6, 2007.

  1. jennaggie12

    jennaggie12 New Member

    Has anyone had any luck going to a rheumatologist for CFS treatment? I understand how it would be beneficial for someone with FM but I am unsure if this benefits someone with CFS and no FM symptoms. My family doctor has suggested that I see one but I am unsure.
    [This Message was Edited on 03/06/2007]
  2. TerryS

    TerryS Member

    My rheumy (actually, ex-rheumy now) told me on Friday that he doesn't know anything about CFS. He told me to go see infectious disease.

    Saw infectious disease today (a doc I saw back in October and also back in 2002). He confirmed I have CFS (as far as what he knows), but said "why come to infectious disease? can't your PCP take care of this?" He claims he doesn't know any more about it than anyone else.

    By the way, my LTD company is REQUIRING me to follow with a "specialist" or else they are cutting me off!!!

    By the time I left there today, my I.D. doc told me he'd follow me both for the CFS and the FM!!! (After following with him for six months, my rheumy told me that he "doesn't do disability", that's why he's now my ex-rheumy).

    TerryS
  3. natrlvr2

    natrlvr2 New Member

    He is the one who diagnosed me with CFS and FMS.(among other things) But I do not get any treatment for CFS,I just live with it.
  4. KMD90603

    KMD90603 New Member

    I'm still unsure about what type of doctor to see for my ME/CFS. I tried a rheumy who tried telling me that I had FM. While I do get muscle aches and joint paint, it's usually secondary to the fevers or the debilitating fatigue. So, I ended up seeing an infectious disease doctor who diagnosed me with ME/CFS. However, since he first diagnosed me 3 years ago, he hasn't done a thing for me. So, now I'm trying to decide what my next step should be. Some people recommend an immunologist, since it seems to be a problem with the immune system gone haywire. While others say to go see a neurologist. I think I may end up switching PCP's altogether, and hope to find a good doctor.

    I'm actually at the point where I think I'm giving up on the medical community. I think I may hide out a bit and only see the doctor for acute infections, such as the bronchitis I'm fighting now. Other than that, I'm kind of frustrated with doctors. It's either that or spend $650 to go see a notable ME/CFS specialist such as Dr. Enlander.

    Hugs,
    Kim
  5. Shalala

    Shalala New Member

    Good for you! I am not going back to KID NEURO. What a dipstick punk. I guess we all need to get tough with these usless DRs or FIRE THEM. The problem is ... none would be left to write our scrpts ... lol.
  6. springrose22

    springrose22 New Member

    They are useless for CFS. Marie