CFS and Eye Pain

Discussion in 'Fibromyalgia Main Forum' started by MsE, Nov 19, 2006.

  1. MsE

    MsE New Member

    Here's my story: I have CFS. I am extremely near-sighted. I also have glaucoma and cataracts. Three doctors have insisted that the pain in my eye is not due to glaucoma and not due to cataracts. I have dry eye, which they think explains it. However, this isn't the burning of dry eye. I recognize it when it flares. This is a deep ache.

    The glaucoma I have is pseudofoliation glaucoma, not the narrow angle stuff that can hurt. I don't know what to think. My question is if you know of eye pain associated with CFS. Anyone?
  2. lenasvn

    lenasvn New Member

    I've had this pain too, but it is usually triggered by light (summer sun, office lights). It is a deep pain, like the eye is too big for the socket, behind the eye pain. It is deep, and makes me look like a drugged. I wonder what it is. I have read that deep eye pain can be a sign in FM, maybe also CFS (Canadian diagnostics).

    However, if you have those problems, glaucoma and cataracts they should never assume that any pain you have is from CFS. It's obviously not getting thru to them how severe this pain is. Eye pain should put a fire in their behinds, if they don't check it and you,lets say, loose your vision (drastic) they are liable.

    I have dry eye pain too, totally different and absolutely bareable. I have Imitrex for Migraines,and for some reason it helps this severe eye pain. makes me wonder if there is something happening in the blood vessels (like in migraine). I saw a photo taken of both my eyes once (never got to ask about it) where the eye that hurts the most often had twice as many blood vessels as the right one. There have obviously been pressure there, maybe from my high BP.

    Have you gotten tested and looked at in your eyes before they assumed it was "just" CFS?
  3. MsE

    MsE New Member

    The doctors are being very careful about taking pictures, testing, etc. I am the one who wonders if it is CFS because the doctors don't seem to see anything to explain the eye pain.

    You're exactly right in your description of the pain: Like the eyeball is too large for the socket and a deep, deep ache. If I had to guess, I would say it is nerve related. Really bad toothache of the eye. :) You are also right that some lighting makes it worse. That's why I'm lax in my email these days and don't spend as much time on the computer--not even at this Board.

    My vision is going downhill fast, and I've told the specialist this. Their response is that when it gets bad enough they'll do cataract surgery. As in, "Come back in February." I'm sure this is a Medicare and supplemental insurance thing.

    If anyone else out there knows about this eye pain/CFS/Fibro/whatever business, please let me know.

  4. abcanada

    abcanada New Member

    I have gone to several docs; neurologist/Eye Surgeon/Family Doc, and have mentioned it to more unrelated specialties. I have not recieved an official diagnosis for anything yet and am awaiting an MRI result. None of these docs can explain why I have pain. I also have terrible floaters/shimmering lights/loss of vision in small areas for short periods. When my eyes hurt it feels like they are badly bruised! had been squeezed. When I get this it tends too last several weeks. Today I could feel it again. My doc said eye specialist should have been able to see floaters and tell me thats what they were...I don't think that's what it is. My doc feels something neurological may be causing this???? So do I. I need some answers soon, and intend to go back to eye specialist as soon as I get another episode. Will let you know what my MRI results are. Take Care, Laura
  5. MsE

    MsE New Member

    Thanks for the input, and please keep it coming.

    I didn't know Lyme's disease caused this. Can you explain, Stormyskye?
  6. MsE

    MsE New Member

    It was kind of you to post the article on Lyme. Thanks so much. I made a copy of your post, and I'll take this up with my doc when I see him. Thank you.
  7. balletdancer74

    balletdancer74 New Member


    I have FM/MPS and CFIDS/M.E. amongst other things. I, too, have experienced eye pain. As someone else said, it's like a deep tooth ache. My eye (eyes) start to tear as well, and all I can do is lie down with my eyes closed until the pain passes. The first time it happened, I freaked out. I have 24/7, incessant head pain (rare for most), so to start feeling the eye pain worried me. It doesn't happen often, though. Phew!

    Have you tried ice or just "resting" the eye?

    Just know that you're not alone. I am also near sighted. I only wear glasses for distance.

  8. MsE

    MsE New Member

    Yes, both resting the eye and ice help. Thank you. I have just been concerned that the doctors were missing something more than CFS/Fibro, but maybe not. All the notes have been reassuring.

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