CFS and severe heart palpitations

Discussion in 'Fibromyalgia Main Forum' started by LongStruggle, Dec 8, 2006.

  1. LongStruggle

    LongStruggle Guest

    I'm wondering if there are others out there who struggle with severe heart palpitations in addition to their CFS. I'm having a hard time treating both my extreme fatigue and calming down my heart. I'm currently on some heavy duty beta blockers and will be seeing next week a cardiologist who specializes in electrophysiology. My palpitations are unusual in that my heart rate is not irregular nor fast. It just pounds so hard, it hurts immensely. I have extreme heaviness in my chest and it feels like a knife through my back. My nuclear stress test was picture perfect. Any advice/help would be much appreciated.
  2. danaC

    danaC New Member

    I too have CFS and tachycardia. It is important your cardiologist know all your diagnosis. I had the doctor who diagonosed my CFS fax information to the cardiologist on how the two are related. I could not take beta blockers. I now take Rythmol. Best of luck to you.
  3. LongStruggle

    LongStruggle Guest

    What is rythmol? I have never heard of this. Unfortunately, I haven't been officially diagnosed with CFS. My cousin who is a chiropractor and kinesiologist has been treating me for years. I have found it difficult to find a doctor who has any knowledge of CFS. I am also hypothyroid.
  4. nightngale

    nightngale New Member

    I have a problem called POTS and this site may interest you. I do not know if you have this but I always thought there was "something" else wrong with me. http://www.potsplace.com/ May be of some help...I will check back later, I am so tired.

    That doctor sounds like a good start!

    good luck
  5. LongStruggle

    LongStruggle Guest

    Thank you both for the info you shared. This gives me some leads.

    Any more replies from anyone would be much appreciated. I'm really having a tough time. I haven't worked since Mid-September and at this point I'm not sure when I can make it back to work.
  6. ladude

    ladude New Member

    LongStruggle

    I can relate, am going thru it now, or just coming out of it again, each time it seems to be getting worse.

    Checked out by cardio docs, everything tests "normal" only mild diastolic dysfunction, using the old technology. Going to keep trying to find a doc will use the GE vivid 7 Doppler machine.

    My whole chest feels like it is going to explode but my heart rate was only 88. It was bad, the worse ever, just started happening maybe a month ago.

    Got real bad tonight after dinner, maybe too much salt? Don't know just guessing.

    I sure as all get out don't know what is going on, but know how you feel, it is terrible. My hands were like ice cubes and I had on wool gloves and was bundled up under down comforters while it was 72 degrees inside.

    Skipped my CoQ10 today....I think beta blockers destroy the CoQ10 in the bod which the heart needs BIG TIME.

    Took lots of C, grape seed extract and 1mg klonopin and one aspirin and prayed.

    If I find out anything I will post for you.

    Take care bro
    LAdude

    ps: Laying down with the feet on a pillow and the head w/o a pillow is all I can suggest for now.

    [This Message was Edited on 12/08/2006]
  7. Gothbubbles

    Gothbubbles New Member

    I have a really bad heart palpitation scenario like yours.

    My episodes sometimes last 2-6 hours, and have made me pass out.

    My doc put me on atenolol which I didn't tolerate well, so I was switched to a calcium channel blocker called Verapamil.

    Initially it messed me up a bit (fatigue, low blood pressure) but that has normalized. I recommend trying something else if the beta blocker is too harsh for you like it was for me.

    There are dozens of drugs to treat palpitations. Try a different one, if you want my opinion.

    My palpitations still happen, but they feel weak and don't cause me problems now. I'm happy there was FINALLY something my doc could help me with lol.

    Also try and get a stress echo and have them check you for Mitral Valve Prolapse. You may have to wear a holter monitor, which is an ekg machine you wear for 24 or 48 hours. Please get tests if you can they can save your life!

    CFS 6 1/2 years --- 25 years old.
  8. maggiemae55

    maggiemae55 New Member

    Didn't have if you are female. When my ferritin level gets low, I have a ton of palpatations. I've had these for many, many years. I had a cardiac cath done, with beautiful veins.

    I just had IV iron and my heart has settled back down. You might check to see if your iron levels are wnl, and ask to have a ferritin level drawn too.

    Hope this helps,
    maggie
  9. Catseye

    Catseye Member

    I got rid of it with a chelated mineral supplement and electrolyte solution twice a day. If you don't eat alot of veggies, you could be low in minerals, especially calcium, magnesium and potassium, which all help the heart.

    karen
  10. LongStruggle

    LongStruggle Guest

    Need all the help I can get. I have been diagnosed with mitral valve prolapse several years ago. My palpitations only present when medications trigger it. The first time I had problems my allergy meds caused it, but my sinus infections were all too chronic and I needed those meds. Initially my doctor started me on verapamil; that actually produced more palpitations. Then he put me on nadolol 80 mg. That dose took away the palpitations for several years. They recently got aggravated when my thyroid med needed to be increased. I've been doing changes with thyroid meds since mid-September; the palpitations have been non-stop since that time. Recently a doctor prescribed toprol xl 200 mg. that helped with some of the pain, but I continued to have break thru symptoms. I have been experimenting -- taking toprol plus nadolol and more recently 300 mg of toprol alone. The 300 mg of toprol seems to calm my heart down but leaves underlying tiredness and orthostatic symptoms which I don't know if it is coming from toprol or CFS or my thyroid. Anybody have any further suggestions.

  11. LongStruggle

    LongStruggle Guest

    Has anybody had an electrophysiology study?
  12. LongStruggle

    LongStruggle Guest

    The pounding palpitations are almost constant. The toprol does give a few hours relief, but then it comes back again. I'm also taking a lot of natural supplements: vitamins, minerals, amino acids, etc. Fortunately, I have a kinesiologist who can guide me as to what my body does and doesn't want, but this changes constantly.
  13. LongStruggle

    LongStruggle Guest

    Have you tried acetyl L-carnitine, thiamine, magnesium? These are some supplements that can aid palpitations if taken in high dosages.
  14. ladude

    ladude New Member

    Yes indeed, usually 2,000mg acetyl l crnitine but skipped yesterday, today I did 3000 when I woke up feeling the thumpa thumpa thumpa.

    Do magnesium in powder and capsule and injections.(plus b12, folic acid) The injections are getting to be a pain in the A##. Did one cc straight of mag sulfate without any taurine mixed in or procaine - WOW - the pain was so bad it made me forget the pain I took it for, back a month or so ago when I was crashing multi mega big time!

    I do 100mg of B complex so guess I get plenty thiamine.

    May yet agree to a myoview or thialum stress test. They did a complete blood test, plus the vapor test thing, all my work came back beautiful, who knows guess I could have one little artery plugged somewhere. doing one aspirin when I think of it.

    thanks for asking.

    take care
    LAdude

    “I Would Run Away From Home, But I Have To Take My Body With Me,” ~ Marie Vidal


  15. LongStruggle

    LongStruggle Guest

    I've been taking Teitlebaum's Daily Energy Enfusion, plus many other supplements: niacin, calcium, magnesium, B3, B6, B1, B-12. Currently, my kinesiologist says I'm not testing for Acetyl L-Carnitine or CoQ10.

    Do you struggle with orthostatic symptoms? I may relatively ok sitting or lying down, but the minute I stand up I struggle with feeling lightheaded, weak, brain fog, etc. I'm hoping to get answers soon for these symptoms as well.
  16. lease79

    lease79 New Member

    Another one here that suffers from heart palpitations.
    I get them on & off. Both thumping/irregular heart beats & sinus tachycardia.
    A while back they were almost unbearable.
    I take multi-vitamins & pro-biotics daily, which has made a difference. I still have trouble with palps just before/during my period & when I am sick & run down, but thankfully nowhere near as bad as it was.
  17. AllWXRider

    AllWXRider New Member

    I went to the ER over weird heart sensations. Two different heart specialists ran all kinds of tests. I passed everything. Heart catheter showed very little build up of cholesterol.

    They ran a "tilt-table test", I failed this one, but it was considered minor as my heart couldn't beat hard enough to keep up with the changing tilt angles. I basically got a shoulder shrug from the cardiologist.

    For a year now, I've noticed a correlation between virus flare-ups and heart palpitations. If I spike sugar snacks or let myself get too cold...oh my, there goes the heart feelings too.

    If I take my anti-viral herbs, low sugar diet, hot bath or shower, stay warm. Then my heart feels fine.
  18. cordy250

    cordy250 Member

    I suffered for many decades with an extremely rapid heartbeat that would last for a very short time, but was rather devastating in its effects. I also had many episodes of the pounding you describe, that were of much longer duration.I also have mvp.

    Of course, it eluded diagnosis because it was so unpredictable and never happened when I was wearing a holter monitor. Technology finally improved to the point of the development of event monitors, and I was able to capture the svt event. After years of trying various drugs, I finally had a low level radio frequency ablation, which took care of it for good and all. The rapid arrythmyia was gone, the perceived heartbeat episodes of pounding even though the pulse rate was slow also mostly disappeared, even though that was not anticipated. I was left with a remnant arrythmyia, called wenkebach, which is a periodic skipped beat. Although unnerving at first, once you get used to it and realize it is a benign arrythmyia, it is not hard to deal with.

    Mostly what I am getting at is to persist in trying to capture the episodes. Except for the mvp, all my tests were excellent. It took the event monitor to finally bring this to light, even though I had been complaining about it for decades. Interestingly enough, it was usually worse at my period time, but as I got older and then had a hysterectomy at 45, it became more frequent and harder to control.
  19. LongStruggle

    LongStruggle Guest

    I wish I found other connections to why the palpitations are present, but nothing is apparent except for increased thyroid med. My palpitations are constant. I rarely am free of symptoms. At most I might be free for 2 hours a day; the rest of the time I am in pain and the more pain I'm in, the more fatigued I am.
  20. LongStruggle

    LongStruggle Guest

    I'm so glad to hear that your ablation solved the problem for you; that is encouraging for me. I'm going to see an electrophysiologist Wednesday and I'm guessing he is going to order an EP study. I sure hope that I too can get some relief. I've had an event monitor several years ago; unfortunately, it really didn't identify anything. I didn't pursue an EP study at that time because we found a beta blocker that controlled the palpitations. Now my palpitations are so much worse and I'm taking lots more beta blocker with little to no relief. My palpitations appear to be wierd; most people seem to have some degree of irregularity and/or fast pace. Mine are consistent, regular, slow, but pounding so hard.