CFS and Sleep Apnea

Discussion in 'Fibromyalgia Main Forum' started by AllWXRider, Feb 23, 2010.

  1. AllWXRider

    AllWXRider New Member

    I tested positive for Obstructive Sleep Apnea. I was mild Apnea for sleep stages 1&2 and moderate for REM sleep. Last night, I repeated the test but with a CPAP machine and got 5 hours of solid normal sleep. Even though I slept "less", I felt more refreshed.

    My wife heard me snore but never stop breathing.

    I had been using the SHINE protocol and recovered somewhat but his this threshold or plateau. Now, I'm convinced that this will make for a full recovery.

    Hope someone else will discover and recover too.

    "Life is a hard teacher, giving the experience first and the lesson later" Confusious
  2. Juloo

    Juloo Member

    It's always good news to get a diagnosis that comes with a definite treatment. I am so happy for you that you have had a good experience with the CPAP testing night and are positive for continuing treatment. I'm sending good thoughts and hope that you make a great recovery!
  3. LC64

    LC64 New Member

    I have seen a sleep specialist and had to cancel my first appt for the sleep study. I'm trying to get over this sinus crud I've had since January. Anyway, you have encouraged me that maybe I won't be wasting my time!
  4. AllWXRider

    AllWXRider New Member

    The best treatment that I've found was invented by an ENT doc: the NielMed Nasal Wash system. It uses Baking soda and salt! I found it at Target, CVS and Walgreens. Baking soda breaks up mucus and the salt won't burn unless you have an active sinus infection.

    In 5 minutes, you can experience drug free relief. It works better than a Netti Pot, since you gently squeeze the bottle it goes up higher into the sinus cavity.

    I also found that you can add your own baking soda and salt, the ratio is not important.

    It rinses out allergens too.

    There is a great support group if you do have sleep Apnea: Lots of great tips, guidance and info...and of course the Allwxrider is there too.

    I had 40 apnea events recorded during my REM sleep. That was called moderate apnea. I had no idea it was that bad. Pls get the Sleep Study.
  5. LC64

    LC64 New Member

    Thanks for the info. My daughter has a netti pot. I will check out the NielMed Wash system.
    I have to travel almost three hours to the place to get the study done. So, I have to get all that coordinated.
    Did you go the first night, stay for your results from dr. next morning, then stay the next night using the CPAP? That's what my dr. said, if my results show that I need to.
    Also is the CPAP machine covered by Medicare? Important question, that I forgot to ask at the dr.
  6. AllWXRider

    AllWXRider New Member

    but there is a ton of data to pour over. A nurse highlights the significant events for the doc. Then the doc looks it over. A nurse called me 2 business days later to tell me that I was positive for Sleep Apnea.

    The nurse is not allowed to tell you any data until the doc has reviewed it. Not even the CPAP number.

    Does your daughter have an overbite? A lengthy jaw will push back on the throat and encourage choking, strangly, a dentist has more experience in this area and may be able to supply a dental applicance to wear at night. A jaw surgeon can take out a few mm of length, my mom had this done.

    Dont ask the doc about Medicare, ask for the person in charge of billing. They are the insurance experts. Find how much is covered, then check out . It might be cheaper to buy direct and then send the bill to insurance. I have my options open.