CFS and the Russian Royal Family?

Discussion in 'Fibromyalgia Main Forum' started by sparrowshell, Aug 13, 2006.

  1. sparrowshell

    sparrowshell New Member

    Hi everyone,

    This is an odd topic probably, but I was wondering if any of you have ever read about the lives of Nicholas and Alexandra Romanov: The Last Imperial Family of Tsarist Russia? The whole family were assasinated in 1918.

    Well ... I had a major CFS crash over the weekend, so spent most of my time in bed just reading. And I was reading about the last Tsar and his family.

    The Royal couple had 5 children - 4 girls, and 1 boy. It is well known that their son was born a haemophiliac (a person whose blood doesn't clot properly, so there is the danger that they can bleed internally to death).

    Seeing the son was the heir of the throne, both mother and father would sit by his bed night and day when he was sick. Even if he just bumped his knee, that could cause internal bleeding and he'd be in bed for months.

    Nevertheless, all that to say - it took a toll on his mother's - Alexandra's -health too. And the book goes on to say that it affected her health in such a way, but Dr's didn't know what her problem was. They sent her to health spas etc. but never knew what was wrong. She had to spend hours in bed each day, couldn't walk, couldn't go out, couldn't socialise much, and even had to be wheeled around in a wheelchair sometimes!!! And I was lying in bed wondering "could she have possibly had CFS????"

    Something interesting to think about!
    Bye for now!

    PS - Here's a place where you can see their photos ...
  2. sues1

    sues1 New Member

    I have always found this family to be interesting. Thanks for sharing your thoughts. Blessings Susan
  3. Rosiebud

    Rosiebud New Member

    well, it's not a new illness so she may very well have suffered from it.

    Florence Nightingale did and I think Charles Dickens did too or it could have been Charles's been around a long time.

    It's a shame what happened to them but they were very tyrannical and the Russian people suffered a lot under them.....only to go on to suffer under Lenin, Stalin etc.too.

  4. sleepyinlalaland

    sleepyinlalaland New Member

    history of the condition also. I'm sure folks had no expectations of nailing down the reasons for their less-than-robust condition. A lot just fell under the label of "bad health". According to the old novels I used to read invalids abounded! I used to envy them as at least they seemed to be allowed to rest without being judged and psycho-analyzed.

    I've always been intrigued by John F. Kennedy's health. He spent much of his youth in hospitals with mysterious and never-explained problems of one kind and another. As President, he admitted to taking pain killers, "uppers" (of some sort), and sleeping pills. Said he could not function as President without them.

    Then there's Judy Garland whose health problems and breakdowns are legend. After all, she died just trying to get a night's sleep! (accidental overdose)
  5. Sandyz

    Sandyz New Member

    Another one I have wondered about is Elvis Presley. His daughter was supposed to have CFS maybe he did to. Maybe that what was behind all his weight gain and all the pills he took for pain and to sleep. He also really isolated himself at the end but maybe he was just to sick to go out
  6. mrdad

    mrdad New Member

    Thanks for the info. on Alexandra! Sounds as if FM could
    have been the problem with CFS also. (??) Interesting
    historical footnote! You don't suppose they could have
    had lead poisoning from all those lead crystal antiques
    they used around the bungalo to drink from?

    Have a great day!
  7. mrdad

    mrdad New Member

    I tend to think JFK was on pain killers for his well
    documented back injuries from the PT-109 wartime
    incident. After a while, addictions can set in as very
    well could have been the case with Kennedy. But then
    again, I'm one of those that still believes Lee Harvey
    Oswald acted alone!! Who would have conspired with that
    loser to do even a gum machine heist!!

    MRDAD P.S.
    Have a great day!!
  8. kholmes

    kholmes New Member

    I've been reading an excellent new book on CFS, ENCOUNTERS WITH THE INVISIBLE: CONTROVERSY, ILLNESS, AND CHRONIC FATIGUE SYNDROME, by Dorothy Wall. It has a lot about the history of CFS/ME.

    In the 19th century, around the turn of the century, and shortly after, there were a number of illnesses that were virtually identical to CFS and were very likely the same thing.

    Florence Nightingale, Charles Darwin, Charlotte Perkins Gilman, and many others, have suffered from this illness. As you can imagine, they were seen as "depressed" or "hysterical." Things haven't changed much, have they?

    It wouldn't surprise me at all if an early version of CFS/ME reared its ugly head in the Tsar's family.

    [This Message was Edited on 08/14/2006]
  9. alaska3355

    alaska3355 New Member

    Kennedy also had Addison's disease, low cortisol output. I think he took more drugs than needed, but I suppose he didn't want to appear ill. (Like FDR).
  10. sparrowshell

    sparrowshell New Member

    The more I read of this book - "Nicholas & Alexandra" by Robert K Massie, the more I am convinced that the Tsar's wife, Alexandra, had CFS, or at least something similar to it.

    As I said earlier, there are a number of different accounts, coming from even people outside of the family who talked about her and her health troubles: having to lie down very often, always exhausted, fainting spells, tiredness, even sensitive to sounds etc. etc. ... and one man - I think the President of France at the time - gave the following account:

    "I found myself alone with the Tsaritsa, who asked me to take a chair on her left. The poor lady seemed worn out ... suddenly she put her hands to her ears. Then with a pained and pleading glance she timidly pointed to the ship's band quite near to us which had just started on a furious allegro with a full battery of brass and big drums.
    " ' Couldn't you?' ... she murmured.
    "I signalled sharply to the conductor ... the young Grand Duchess Olga (eldest daughter) had been observing us for some minutes with an anxious eye. She suddenly rose, glided towards her mother with graceful ease and whispered two or three words in her ear. Then addressing me, she continued, 'The Empress is rather tired, but she asks you to stay, Monsieur l' Ambassadeur, and to go on talking to her.' "

    It is interesting, considering that Dr's could never find what was wrong with her. But just looking through a lot of old photos from the Romanov Family Albums, of her available on a website:

    there's many of her lying down, with family, friends around her, there's even one of her in her wheelchair, being wheeled through the garden by a soldier!

    Who knows ... I could be looking for a needle in a haystack! It's just that it would be nice to know that other people suffered with CFS years ago (even though it's not nice to have), and to be able to prove that CFS is not a "new" disorder!

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