CFS AWARENESS: Send video info to "unbelievers"

Discussion in 'Fibromyalgia Main Forum' started by mezombie, Oct 23, 2006.

  1. mezombie

    mezombie Member

    Please check out my post "Videos of a Caretaker & Person with Severe CFS/ME". These are part of a video diary put on by a caretaker. The videos can be found at:

    They are heartbreaking. I am taking a break from watching them because they are hard to watch, emotionally.

    My heart goes out to both of these people.

    This guy has done such a great job of telling it like it is. I really think he deserves our help.

    Let's send the website's URL to government agencies, organizations, and individuals who have the power to do something but refuse to believe it can get this bad.

    I've e-mailed the CDC and a phyisicans' organization.

    I hope others will do the same!
    [This Message was Edited on 10/23/2006]
  2. karinaxx

    karinaxx New Member

    i believe darude just posted a link about this video too;
    said it was heart braking,(will watch it later).
    good idea to mail it to the cdc.
    wonder if they will watch it........
    thanks karina

    posting it many docs, maybe another good idea.
    many of the docs dont see us at its worst, rather when we are feeling good enough to come to their practice.

  3. darude

    darude New Member

    Just posted to everyone I know!!!!!!!!! Also list of agencies for disability etc.
  4. apl

    apl New Member


    I will try to send this to people, as you wisely suggested, mezombie!

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