CFS Book Review (book by Martha E. Kilcoyne)

Discussion in 'Chit Chat' started by Marta608, Jun 30, 2008.

  1. Marta608

    Marta608 Member

    For a change, this book review isn't about the latest thriller or anything a normal book club would be delighted to read. It's about a little book recently advertised for sale by ProHealth called DEFEAT Chronic Fatigue Syndrome: You Don't Have to Live With It. Furthermore: An Eight Step Protocol.

    OK, yes, it was one of those days I have every now and then when I'm so doggoned tired of being tired and watching my life float on by that I could scream! While the title of this book reminded me a bit of Teitelbaum's dauntingly optimistic From Fatigued to Fantasic that I read many years ago (and still am not feeling Fantastic), I bought it. For under $10, maybe it would give me some insight I'd missed. Hope springs eternal, as we know.

    Overall, Ms. Kilcoyne did a good job of "getting it" since she'd had CFS and lived to climb a literal mountain. And if a person suspected they had CFS or, better yet, was newly diagnosed, this would be a good, easy, helpful book to read. Even I, after 14 years, was nodding my head in agreement after the first few chapters.

    .....And then she got to the importance of having a personal advocate..... Her advocate was her loving husband, there by her side through it all, BELIEVING. Incredible! I thought. What a wonderful thing that would be!

    She professes that having an advocate is one of the most important things - along with a support network; that is, people to call on when you need help. So I admit to becoming a bit daunted at that point, since I have neither in the flesh. If it gets done, I must do it, no getting around it and no putting it off will make it go away.

    But I was pleased to see that I had fumbled my way into the same types of realizations that Ms. Klcoyne did - only she did it quicker. Advocate at work, perhaps. Unlike many of us, she was also fortunate to be able to quit work quickly and Be A Patient (her words) for as long as it took. I also like her phrase "Understand YOUR Version of CFS". YES! We all have our own version - which is why we drive the doctors nuts and why what works for you may not do one little good thing for me.

    While this book hasn't given me any big new ideas - and has certainly not gotten me closer to a personal advocate -it did confirm some things I know about this disease. And by the way, blissfully, nowhere does she condescend.

    One thing she promotes is to keep a Daily Record - for a long time. "How tedious", thought I, "I can figure things out without all the work", but I'm doing it anyway. And she's right. I can see the pattern of causal effects of my fatigue. Don't yet know what I'll DO about them, but I can see them more clearly. I'm thinking it's ammunition for a good doctor whom I have yet to find. (Another tip from Ms. Kilcoyne: Find A Doctor Who Will Work With You. Like the advocate, easier said than done, Martha.)

    It's certainly uplifting to know that CFS can be beaten, at least by some, and to think it might include us. After all, the last chapter is entitled: Be Well Again! Life After CFS.


    [This Message was Edited on 06/30/2008]
  2. morningsonshine

    morningsonshine New Member

    Really, i CAN'T imagine. I thought i was well once, and when i tried to live it, i crashed BIG time, majorally!!

    Almost worse than the first time i got ill. We get to the point of acceptance, and hoping for life after CFS is to painful to contemplate anymore.

    But, yes, amazingly Hope does spring eternal, and the little embers are still down there somewhere.

    Thanks for sharing.
  3. rockgor

    rockgor Well-Known Member

    for the report, Marta.

    Can't say that Teitelbaum's book was any help to me. Somebody on this board posted a couple years ago that he charges more than the average bear for a visit.

    I looked it up. Kilcoyne is an Irish name. I have Irish authors on the brain as I am still reading "Tis" by Frank McCourt. I must say I'm a little disappointed to find out what a heavy drinker he was. (Is?)

  4. Marta608

    Marta608 Member

    I know! It's almost too good to be true - and I think her "formula" is best used for the newbies. Still, it's always good to hear a success story. We need hope.

    Rock, so how is 'Tis? Teilbaum's protocol scared me off. Too many things to take at once for someone who reacts so extrememly. But I've heard that many have had success with him...... OK, some. Maybe the shotgun approach means that something will stick to the target.

    [This Message was Edited on 06/30/2008]
  5. kholmes

    kholmes New Member

    I've read a lot of books on CFS. Hope does spring eternal. Will have to see if I can get ahold of this one.