CFS Could Have Been a Vaccine For ME

Discussion in 'Fibromyalgia Main Forum' started by jasminetee, Oct 16, 2009.

  1. jasminetee

    jasminetee Member

    Hi All,

    I just asked my mom what my poops were like as a baby and she replied: "No, you didn't have any digestive problems when you were little. As a baby you never had colic and you
    didn't cry much at all so we knew that you were pretty comfortable."

    When I was a little kid I thought everyone had the same kind of pooping issues that I did. I recall having lots of diarrhea all the time and having to wait forever for it to come out. I also had a lot of normal poops with major constipation though. I had a lot of abdominal pain and major digestive problems and I've always had tons of gas.

    I couldn't handle sugar well and spent many b-day parties sitting on the toilet shaking. I also got nausea all the time especially when I was on the toilet. I often was afraid I would throw up. The strange thing is once I pooped and came out of the bathroom I'd feel normal again and relieved. This has continued all my life.

    Lucky for me, my mom was into health and we always ate good food every day. In fact it's the same diet I have to be on now. Lean meats and lots of steamed vegetables and bread without junk in it and only wholesome peanut butter and we also had fruit for dessert. No junk food was allowed at our house. We drank water and milk and some juice. Our cereals were not the sugary kind. I really couldn't design a better diet for a child.

    Whenever I would go to camp, I would get really sick after a week because of the food. That happened many times as I went to camp most summers. I didn't realize it was the food at the time but looking back I know it was. I also used to wonder why I would come home with a stomach ache after going to the roller skating rink with my friends. Sugar! duh! I would ask my friends, "Do you have a stomach ache? Why am I in so much pain?" and they wouldn't have a clue. We didn't eat much sugar either but with all that exercise I would usually visit the snack bar.

    I also had major fatigue starting at the age of 13. I didn't know what to make of it. That was when my cycle started and I've had horrendous cramps with both my period and ovulation ever since. I also would get a painful stiff neck that would last for days where I often couldn't turn my head starting at the age of 8.

    Doctors have always told me I would just have to live with this and they're right. I do. Every day now. I am able to control it somewhat with diet and psyllium but it's still very bad. I also had all those dizzy spells which have come back these last 9 years if I don't eat enough meat protein every few hours. Those dizzy spells when I was little, from 3 up, were the scariest thing in the world. It felt like I was dying every time and still does when they're really bad.

    Well, that sure points to a vaccination as a possibility for my illness.

    I just sent this info off to the WPI too. What the heck.

    [This Message was Edited on 10/17/2009]
  2. jole

    jole Member

    I didn't have all your digestive problems, but I too have been sick since childhood. Constant sore throats, strep, earaches, tonsillitis...had my tonsils out at 5, but it didn't stop. The sore throats, swollen glands, fevers, constant body aches continued. I was anemic, had no appetite and would pass out.

    I was constantly fatigued and couldn't keep up with my younger brother and sister. Slept so much my parents took me to a specialist 'cause they thought I had rheumatic fever. After all the tests, the specialist was totally baffled. Said I had all the symptoms, but none of the labs confirmed it.....hmmmmm.

    Then I felt enough better from age 18-40 that my life was "fairly" normal, just never could keep up with what other people could do, and I always felt guilty for not being able to do more. I raised my family, worked, etc. but spent a lot of time in bed or on the couch whenever I could find the time.

    Overnight, FM hit with a vengance and totally knocked me down to the point of being nearly bedridden, and now housebound. No one will ever convince me that I didn't have this as a child. Why? I don't know the one else in my family of 7 brothers/sisters were ever ill.......but something sure as heck caused me to be.

    I also come from a very abusive family, and have wondered at times if that was what caused it, but I guess I'll never know..............Jole
  3. jasminetee

    jasminetee Member

    You wrote this: " just never could keep up with what other people could do, and I always felt guilty for not being able to do more. I raised my family, worked, etc. but spent a lot of time in bed or on the couch whenever I could find the time."

    I didn't have kids but otherwise me too! Omg. We were sick little kids. Awww. Poor us. Did you look well too? My doctors always said, "You're really healthy" to me, did yours?

    I wanna start a club for people who've been sick all their lives but didn't know it. lol My whole family, brother, sister and parents and others all would just look at me when I would tell them I felt really sick. Out of the blue, starting from my earliest memories around age four I would suddenly feel really sick then later, it would pass. It was so frightening.

    You could email your post to the WPI if you want too.

    I'm so sorry for all of your pain and suffering.


    [This Message was Edited on 10/16/2009]
  4. jasminetee

    jasminetee Member

    Wow glen, your story is intense! I'm so glad that at least you had that good psych who was like a guardian angel for you and then that you got a good doctor.

    Well, in both cases besides mine so far, I think vaccines could be possible. Do you both know if you were sick as babies?
  5. jole

    jole Member

    Hi tee...that's the only thing different about me...I was a "blue baby" at birth. The doc thought something was wrong with my heart, but then I did fine and yes, had a mild heart murmur. But later echo's, EKGs, etc. showed nothing! So....what is a "blue baby"? I doubt that it meant anything significant since there was never any long-term effects that showed up.

    Glen, you mentioned the sun...I also had trouble seeing and playing ball! It was more than just not being able to run the bases, I literally couldn't focus on the ball to hit it. But then nothing seemed to be in "focus" for me.

    I was extremely shy, introverted, couldn't deal with crowds even back then. Were either of you outgoing? I think I always knew, even as a child, that I just didn't measure up to others and it was easier to keep to myself than to feel like a failure............Jole

  6. gb66

    gb66 Well-Known Member

    So many of the things you mentioned were issues for me as well. My health changed dramatically when I was 13 and had my first period. I always had fever, bowel and stomach problems and severe cramps. This never ended. Had to go bed every month.

    I started catching every virus that came along when I was about 15. I had two types of flu, German measles, and mono during the next 2 years. Was diagnosed with hypoglygemia at age 14. I had to have protein snacks to stop shaking.

    I don't know the connection to CFS/FM but I've wondered about this. I came down with this at age 38 while in the hospital for an unrelated problem. Who knows what's going on with us. This is an add-on after reading the other posts. I also had major problems with the sun. I couldn't stand the glare, even as a child and would get sick to my stomach and have bad headaches when we went to the beach(lived in Fla.). I did not look healthy though. I was always, as a child, extremely underweight even though I ate more than anyone in my family at meals and would cry with hunger pangs sometimes before the next meal. I lived with my grandma so I ate really well! GB66
    [This Message was Edited on 10/16/2009]
  7. jole

    jole Member

    Wow! No, my echocardiogram was just the normal air injected..actually, I hadn't even heard of that being done until you said it. That's kind of a shock to me, 'cause I was a nurse for years. Yes, he must have been a very special doctor who understood a lot, and checked things further than most docs even dream of doing. Too bad more of them won't give us that much of their time.

    gb66, I forgot to mention that I too was always very thin. I remember even being on some kind of tablets that were suppose to give me an appetite........I had none. But they didn't work. (I was also on antibiotics for years to fight off all the infections that I constantly had.)

    I was also suppose to eat more meat, but just couldn't do it. My mom too was a very good cook. We lived on a farm, raised our own meat and grew all our own vegetables, so everything was organic. I just had no appetite.

    It's funny that the sun played a part with all of us though, that's just not something very many kids complain about.
  8. simonedb

    simonedb Member

    say dr cheney has referred people for that air bubble heart test for disability cases. He thinks that a lot of people have small hole in their hearts related to the fatigue, a diastolic problem and the bubble test I think one sure way to prove it.
    So what has helped the most with your heart problem? what did they recommend after the test?
    you guys have an interesting post here as I have been thinking more and more that a lot of health problems are related either to viruses or vaccines etc and that some people are just unlucky to get a bad combination of environmental and genetic and random factors conspire together at right time to put us over the edge of no return....
  9. AuntTammie

    AuntTammie New Member

    When you say the air bubble test, are you talking about the impedance cardiography?
  10. simonedb

    simonedb Member

    saline bubble test I believe

    all about heart stuff per bell & cheney:
  11. Svette_Palme

    Svette_Palme New Member

    Jole wrote: "So....what is a "blue baby"? I doubt that it meant anything significant since there was never any long-term effects that showed up."

    Hi Jole - I wonder if that could have been something to do with the "type A-B blood" where your mother was negative and you are positive blood types... nope, I cannot remember how that goes now [brain fog, duh].

    I was that way, and there is something about needing a transfusion right away because the baby isn't getting O2 into the blood. Apparently there was a scary moment there with me, obviously with you too, when we were born.

    That blood thing isn't much of an issue anymore, they can tell in utero and take care of it somehow before birth now.

    But I have often wondered if that was the start of my health problems... maybe not.

    What I do feel strongly WAS the start of my health problems is at about age 30 I had flu or colds one after another, for a few years. Then I developed the Fibro pains [esp. neck pains] and terrible fatigue. Viral onset, uh huh.

    By the way, I have not had a cold or a flu for the 20 years, since that time, not one.
  12. jasminetee

    jasminetee Member

    It's very interesting to hear everyone's stories so far.

    ((((((((((((((Group Hug))))))))))))))))))


  13. AuntTammie

    AuntTammie New Member

    thanks....I think the impedance one actually uses electricity - I have been overtaken by major brain fog the last few days & some of the things that have come out of my online "mouth" lately are embarrassing in their apparent lack of understanding......I do actually know this stuff, though, and will be able to make more sense of it all when my brain clears a little
  14. simonedb

    simonedb Member

    hope you feel better soon
  15. spacee

    spacee Member

    I wonder if we are all "collateral damage" for vaccines. By that I mean, the vaccines have saved a lot of lives but they possibly have cause us to be really sick...collateral damage. Sigh.

    Glad you sent it.
  16. jasminetee

    jasminetee Member

    Good point.