CFS doc in Western Los Angeles or Ventura County?

Discussion in 'Fibromyalgia Main Forum' started by kaths, Dec 3, 2002.

  1. kaths

    kaths New Member

    After seeing two infectious disease specialists and two neurologists, I'm back to my family practitioner who finally made the CFS diagnosis. However, no one in my HMO specializes in chronic fatigue. I'm looking for a referral to someone in my part of Southern California. Got any suggestions?

    Thanks,
    Kathy
  2. kaths

    kaths New Member

    After seeing two infectious disease specialists and two neurologists, I'm back to my family practitioner who finally made the CFS diagnosis. However, no one in my HMO specializes in chronic fatigue. I'm looking for a referral to someone in my part of Southern California. Got any suggestions?

    Thanks,
    Kathy
  3. kaths

    kaths New Member

    I live in Malibu and am looking for someone in the Woodland Hills, Calabasas, Agoura, TO area. I'm with Kaiser, but my family practitioner is willing to try to push my request to see a CFS specialist through the channels. He needs a fax of the doctor's protocol for treatment to begin the process.

    With three children in college, I need Kaiser to pay for the specialist. I see a chiro in Agoura covered by my American Specialty Plan and an acupuncturist in Malibu whom I pay without insurance coverage.
    Got any names for me?

    I appreciate how much of your expertise you share with the members of this board.

    Thanks,
    Kathy
  4. surfjuice

    surfjuice Guest

    I live in Woodland Hills, CFS 18 years/Incline Village. Dr. Galpin (infectious disease) doesn't take new patients, I tried. I went to see Dr. Melvin Khaw instead in Encino last month. He's very knowledgable about CFS, spends lots of time, listens well. He found out I didn't also have Lyme as previous tests showed. He basically eliminates and then gives you direction. Might have my pituatary gland checked but other than that...? Very glad I have him though...recommended highly. He said possibly I'd want to see the top Oriental doctor, Dao Shing Ni in Santa Monica. Not sure if I'll go, already go that route with Dr. Randy Martin in Encino...well maybe. My insurance covers or else very expensive. The BEST thing I've found recently is ImmunePro, 6 months now, I triple the dose otherwise it doesn't help me! May even start back to work (out of home, still need mid-day sleep.) I also have a great OBGYN in Santa Monica who understands CFS, Dr. Susan Tritt/Women's Healthcare Associates is great to have since hormones are involved, (take progesterone at night, helps sleep)
    understands our body's respond differently than other patients. And...in emergency (he'll always fit you in, works most Sat.)a very understanding, pretty knowledgable, offbeat (which is good) doctor is Dr. David Vesco, M.D. in Calabasas on Las Virgenes Rd. The other 20 doctors I've seen through all these years were useless and a waste of time. Meditation's a must, make yourself do it. My New Years resolution this year is: less doctor time, more meditation time...GOOD HEALTH TO YOU!
  5. surfjuice

    surfjuice Guest

    I hope my post above wasn't in violation by naming doctors...I noticed someone elses post with Dr. name was eliminated. Please have Kathy contact my e-mail, if so, I apologize!
  6. kaths

    kaths New Member

    You've given me some great ideas. Sunny, I can't get the Doctor Referral link to give me names, just How to Choose and Educate a Doctor, etc.

    Surfjuice, thank you for the many names. Also, I ordered ImmmunePro, but because of my nausea have trouble getting it down first thing in the morning. I will approach it with renewed vigor on your recommendation. Do you take three scoops once a day? Is that what you mean by triple dose? Progesterone at night is also a great idea. Dr. Vesco would be very convenient for me, being at the end of Malibu Canyon. (I live near Malibu Canyon and PCH.) I'll contact him.

    Marla, I would love to see you. American Specialty Plan accepting you would be incredible for me! Let me know what happens. At the moment, I'm not driving outside of Malibu and would have to get my husband or a daughter to get me to North Hollywood.

    Jellybelly, thanks too for your recommendation.

    THIS MESSAGE BOARD IS INCREDIBLE. I FEEL SO CARED FOR!

    Kathy
  7. surfjuice

    surfjuice Guest

    Hi,
    Sorry you have nausea, mine comes and goes. I take 3 scoops of ImmunePro at once. You might have to gradually build up. (I jumped from 1 to 3 scoops when I read the findings that improvements were dose related.) Hey, if you ever saw the surf game at Becker's in '97 & '98 @ Christmastime, that was the proudest of my living with CFIDS accomplishments...if you see someone that looks 48 w/hair past her butt at Coogies, and it's not 2-6 in the afternoon,zzzzzz! ~say hi...
  8. kaths

    kaths New Member

    I'm not sure what the surf game was, but I've spent plenty of the past 20 years at Becker's buying clothes, Reefs, Rainbows and one surfboard. I'll look for you at Coogie's.
    Kathy
  9. kaths

    kaths New Member

    I appreciate the doctor's name, and I found the website.
  10. kaths

    kaths New Member

    Thanks for talking to Dr. Goldberg. I'll call him tomorrow.
    Kathy
  11. malibu805

    malibu805 New Member

    Kathy, Just a note of caution. My children and I have been to both Drs Goldberg and Galpin. My experience is that these doctors will not renew prescriptions without an office visit (translate $200). So long as you pay the steep price tag, they will see you. I sat in Galpin's office once for 3 hours with many other sick people before I could see him (although I arrved on time for the appointment) and spent about 3 frustrating minutes with him. He has no answers you don't already know. Goldberg treated my children and I found him to be frustrated, angry and abusive if you question any of the drugs he uses in his protocol. Since the trigger for the CFS varies, the appropriate drugs may also vary. But Goldberg is not open to such discussion. Gunnar Heuser in Agoura is excellent as is Gary Ordog in Valencia. Boh are expensive also and most insurance companies don't want to pay. Other than rx for infections, the best help we have received is from other folks online. I am going to look into Dr Vesco. Best of luck to you. Your pal, Mal (also in Ventura County).