CFS fatigue help on local news

Discussion in 'Fibromyalgia Main Forum' started by judywhit, Jul 19, 2003.

  1. judywhit

    judywhit New Member

    Hi,
    Just got back from a 7day camp trip with the horses....I am pooped! Wonderful sceanery and it was well worth the effort. Anyway was watching the news last night on my first night home and a segment was on "help for CFS fatigue". I stayed up to watch it and they are suggesting that the drug "procrit" (used to treat anemia in cancer patients) is being used with great success for those who suffer from CFS. They interviewed a doctor who was treating his patients and he said "85-90% of his cfs patients are stating a remarkable improvement in their energy levels while taking Procrit".
    Thought I would share this.
    Judy
    [This Message was Edited on 07/19/2003]
  2. Jen F

    Jen F New Member

    thanks for sharing that info.

    Lovely pic on your profile. I live in Toronto, but have been in your lovely state near Mt. Rainier and it is one of my favourite places on Earth.

    Jen F.
  3. Mikie

    Mikie Moderator

    Last I heard, it was being studied for CFIDS. It would be nice if we could find something for the horrible fatigue and cognitive problems.

    Love, Mikie
  4. rentuc

    rentuc New Member

    I heard that too and am wondering if and where the research is published. I'd like to read it and talk to my dr about it.

    Renee
  5. judywhit

    judywhit New Member

    who was using this drug is in Florida if this is any help. I guess this is a very expensive drug so it might not be covered by ins.
    Judy
  6. emallen

    emallen New Member

    do you know the name of the doc in florida. thanks. I would like to try.
  7. elaine_p

    elaine_p New Member

    in case someone wants to go to their web site. They might list the doctor.
  8. dobrydy

    dobrydy New Member

    The procrit study is by Dr. Nancy Climas, I believe, in Maiami. It is a clinical trail and they recrut participants now. They will send you some forms to fill out and questions, and take it from there.
  9. Jinx69

    Jinx69 New Member

    Hope I don't break any rules here:

    PROCIT STUDY BEING CONDUCTED BY NANCY KLIMAS, MD AND BARRY HURWITZ, PhD.

    "The Behavioral Medicine Research Center at the University of Miami
    is conducting a study funded by the National Heart, Lung, and Blood
    Institute of the National Institutes of Health . Dr. Barry Hurwitz, Ph.D.
    and Dr. Nancy Klimas, M.D. are the principal investigators of this study,
    which is investigating a very promising potential treatment for Chronic
    Fatigue Syndrome (CFS). The study is a placebo-controlled clinical trial
    in which Procrit is prescribed to the participants for 4 months. Procrit is a
    drug that has been used for over a decade to treat anemia. It increases
    the production of red blood cells, which we have discovered is low in
    many CFS patients. It is projected that this treatment will reduce the fatigue
    experienced by individuals with CFS."

    The study has been going for a year and it is funded for five years, so participants
    are still being sought. There are participants from all over the state of Florida,
    and if someone lives out of state and can travel to Miami twice per month
    they are more than welcomed to participate

    The research team can be contacted at CFSresearch@miami.edu for further
    information