CFS in childhood (UK)

Discussion in 'Fibromyalgia Main Forum' started by tansy, Oct 24, 2005.

  1. tansy

    tansy New Member

    Elena Garralda is Simon Wessely's Wife, Trudi Chalder is a leading figure of the the Wessely School.

    The Wessely School insist ME, CFS, FM, GWS/I, MCS etc are merely functional somatic disorders.

    Practitioner Review: Chronic fatigue syndrome in childhood.

    Journal: J Child Psychol Psychiatry. 2005 Nov;46(11):1143-51.

    Authors: Elena Garralda M, Chalder T.

    [1] Imperial College, London, UK
    [2] Institute of Psychiatry, London, UK

    M. Elena Garralda, Academic Unit of Child and Adolescent Psychiatry,
    Imperial College London, St Mary's Campus, Norfolk Place, London W2 1PG,

    NLM Citation: PMID: 16238661

    Background: Chronic fatigue syndrome (CFS) is being increasingly recognized
    in children and adolescents. Yet comparatively little attention has been
    given in the literature to management.

    Methods: Description of the main features of the disorder, precipitating
    and maintaining factors and diagnostic assessment. Outline of different
    views on the nature and treatment of CFS in childhood. Description of a
    rehabilitation program based on cognitive behavior therapy and graded

    Results: Using adult research criteria, CFS can be diagnosed in children
    and adolescents. In its severe form it is often triggered by infectious
    illness episodes. It is commonly associated with mood disorders in the
    child and with mental distress and high levels of emotional involvement in

    A number of patient support groups hold the view that CFS is a
    medical disorder, contest a psychiatric contribution and advocate 'pacing'
    as an approach to rehabilitation which includes avoiding activities. To
    date there is no empirical evidence for the efficacy of this approach.

    Research in adults, open and clinical reports in children support the use
    of graded activity and family cognitive behavior therapy. The main aim is
    to enable children, with the help of their family, to carry out their own
    rehabilitation with some support and guidance from a health professional.

    Engaging the child and family in treatment and forming a therapeutic
    alliance is a continual process and a crucial aspect of management, as many
    families view the condition as a medical disorder and are initially
    ambivalent towards this approach.

    Conclusions: There is controversy about the nature and management of CFS in
    childhood but a rehabilitation program based on family cognitive behavior
    therapy can be implemented and seems to hold most promise in the management
    of children with CFS. Family engagement is a crucial aspect of management.[This Message was Edited on 10/24/2005]
  2. elsa

    elsa New Member

    Tansy, This breaks my heart. I could cry over this if I let myself. These people scare me and it doesn't seem to matter what is learned on a daily basis. They seem to always have an answer for everything. ... Or to ignore what is staring them in the face.

    There are so many areas of treatment that are effective in gaining some form of remission. Many different names, but the most successful all deal with the pathogens, address the sleep, and work in some manner on the HPA axis.

    How do these individuals get around that ... or explain it?

    I'm scared the most by their ability to control what happens to an idividual with CFS and the patient doesn't get a say in it. Worse, they are condescended to by power hungry psych's more interested in maintaining control no matter the cost to the individual being lied to.

    My God ... how is a child going to have a prayer against this when adults too weakened to fight back can't protect themselves from the Wessley's of UK. ... Sounds like a horror movie title.

    Thank you for keeping me up to date on this issue. I have followed it with interest and compassion, wishing there was something proactive I could do.

    Take care,

  3. Rosiebud

    Rosiebud New Member

    this is a disgrace, I shudder to think what some poor children and unsuspecting families are going to have to go through.

    If they had intervened when my daughter got CFS at 15 and I didnt have a clue as to what was going on (14 years ago) they would have put us through hell and not helped one bit.

    It's a shameful thing for our government to actively encourage and financially reward these people.


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