CFS/ME? Fibro? Both? The same?

Discussion in 'Fibromyalgia Main Forum' started by Marta608, May 7, 2011.

  1. Marta608

    Marta608 Member

    I haven't posted on the board for some time. Lately I've notice that CFS/ME is now often just called Fibromyalgia. Has anyone noticed this? Has it been decided that it's the same thing or is it done since FM is more "acceptable"?

    I also heard that CFS/ME is always accompanied by FM. I have had CFS/ME for 17 years, but don't have the kind of pain friends have with FM. Comments please.

    Thanks so much.

  2. Marta608

    Marta608 Member

    I'll check it out.

  3. ellikers

    ellikers New Member

    They are not the same, there are somewhat different criteria for both, although sometimes people have both at the same time.
  4. TigerLilea

    TigerLilea Active Member

    Hi Marta - CFS/ME and FM are two different illnesses. I have CFS, however, I don't have FM. My sister-in-law has FM but doesn't have CFS. Some people have both.
  5. Marta608

    Marta608 Member

    Poor you and poor sister!

    I always thought that FM and CFS were different - although people can have both - but recent articles seem to lump them into the same FM category. Probably because more drugs are sold for FM than CFS. Maybe.

  6. Marta608

    Marta608 Member

    Perfect timing! Thanks again.

  7. Aberlaine

    Aberlaine Member

    These two confuse me terribly. I scour the Internet and don't seem to be able to find out the difference. They do seem to overlap. Fibro fog? (Do people with ME suffer from brain fog?)

    I've been diagnosed with fibromyalgia, but I don't have pain - I have severe exhaustion. But I don't have swollen lymph nodes. I do have post-exertional malaise.

    Last week I worked feverishly to get my back yard and patio in good shape for a Mother's Day picnic. I felt great for three days. Then, on Monday I came down with such exhaustion, I could hardly move. It finally quit yesterday.

    I seem to rotate between the symptoms of FM and ME, but don't know how to intelligently ask a doctor if I have ME. They don't seem to know anyway.

    This is very frustrating for me.
  8. Marta608

    Marta608 Member


    This is what caused me to ask the question here. More doctors seem to be using the FM dx instead of CFS. You have the symptoms I have - although I can no longer work "feverishly" on anything and do not often have "fibro fog", "just" fatigue that clouds my brain.

    I was dxed with CFS 17 years ago at University of Michigan Hospital by a specialist there. He checked the same trigger-points that are checked for FM. Told me to find a good internist and said "Good luck!"

    Susan2009 left some good links above. I've checked them out and, while written info draws a line between the two, doctors that don't specialize in either illness are cloudy with the dx.

    I wonder if it has anything to do with insurance? Since FM is more recognized, maybe insurance pays for things it won't pay for with the CFS dx. As for abbreviation, ME, no doctor I know of has heard of that name. It makes us sound even more like hypochondriacs!

    Dr. Sarah Myhill of the UK is doing some very good work with CFS - and she calls it CFS.

    The other thing to remember is that some people do have both.

    "Good luck!" ;~)


  9. Marta608

    Marta608 Member

    Thanks again, Susan.

    Well, according to that, I have ME with a depression chaser. Huh. No wonder the doctors are confused.

    I guess we have whatever we have and have to work with the symptoms as best we can.

  10. jennieja

    jennieja New Member

    I have had CFS for 12 yes. Last week I was diagnosed with RLS (restless legs syndrome) and FMS. Have a brilliant Dr. He gave me gabapenten for FMS and the pain is now well managed. I can assure you Marta that CFS and FMS are indeed different conditions.
  11. Marta608

    Marta608 Member

    I guess some doctors don't know that or it's simpler to dx with FM.

    So sorry to hear that you're adding letters to your condition but it's good to hear there are good doctors out there.