CFS or Lyme?

Discussion in 'Fibromyalgia Main Forum' started by jarjar, Oct 31, 2006.

  1. jarjar

    jarjar New Member

    This was on the immunne support email today.


    Journal: Journal of Chronic Fatigue Syndrome. Vol. 13(4) 2006 pp. 73-82. [Published online ahead of print. Article copies are available for a fee from The Haworth Document Delivery Service: 1-800-HAWORTH. E-mail address: ; Website:]
    Author and affiliation: Samuel Shor. George Washington University Health Care Sciences, Reston, VA. [E-mail:

    DOI: 10.1300/J092v13n04_06

    Objective: Chronic Fatigue Syndrome (CFS) by definition represents a diagnosis of exclusion. Late stage or "Chronic Lyme" infection with or without "co-infections" is a difficult diagnosis to establish. The symptom complex of both conditions can be very similar. This case study represents an attempt to support serious consideration for a subpopulation of patients otherwise diagnosed with "CFS," as actually representing chronic Lyme disease.

    Method: A case study is presented of a 33-year-old man, who for two years, was being managed as having CFS. However, after ~2 years of utilizing multiple modalities of management with limited success, the diagnosis of Lyme was reconsidered. Historical exposure risks to Lyme in this individual were high. He had prolonged exposure in the highly tick-infested mountains of North Carolina for 18 months, several years prior to becoming ill. More aggressive investigation confirmed the diagnosis of Lyme.

    Appropriate changes in management were associated with an improved level of functioning that was far in excess of what maximal management of CFS was able to achieve. The features of CFS and chronic Lyme can be very similar and include the following: Profound fatigue often associated with cognitive impairment. Other common symptoms related to both of these conditions include sleep disturbances, fibromyalgia, and dysautonomias. In pursuing clarification of this diagnosis, the author was exposed to a contrast in medical opinion regarding diagnostic tools and criteria that were perceived as creating potential barriers to the management of patients presenting with these symptoms.

    Conclusion: Acceptance and awareness of the possibility that Lyme disease can present as CFS has important therapeutic and prognostic implications.

    Keywords: Lyme disease, chronic Lyme, chronic fatigue syndrome, CFS, fatigue.
  2. mollystwin

    mollystwin New Member

    Very interesting article. I have two confirmed relatives with lyme and two more that we suspect have lyme. The two confirmed cases don't remember ever being bitten by a tick. The two we suspect have both been bitten, one of them works with horses and has been repeatedly bitten too many times to count.

    I think I will insist on a retest. This time an Ingenix test.
  3. jarjar

    jarjar New Member

    Over 50% of people that have lyme don't even remember a tick bite. I was bitten many times as a child growing up but did not become ill till my 30's came around.

    My immune system was able to hold it at bay for many years.

    Spent too many years to think about with a misdiagnosis of cfs.

  4. victoria

    victoria New Member


    For those who don't know, my son, who was positive for chronic Lyme according to CDC standards twice in 6 months, had all the symptoms of CF/FM.

    All his regular lab work came up normal even tho he was in pain, extremely fatigued, mental fog, had lost 10 much needed pounds, & had abnormally low pulse and BP. His internist didn't have a clue even where to send him.

    I'm sure if I hadn't 'cut corners' and taken him to an appropriate doctor for a Lyme test and evaluation, that's what he'd have been dx'd with.

    all the best,

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