CFS Specialists: Do they exist?

Discussion in 'Fibromyalgia Main Forum' started by kierkegaardsson, Aug 27, 2005.

  1. kierkegaardsson

    kierkegaardsson New Member

    I have seen a few references here and there to CFS specialists - where can one find a specialist like this? My current physician doesn't believe in CFS, but I do, and I want to know if I have it or not. What should I do?
  2. JenniferAnn539

    JenniferAnn539 New Member

    Welcome to the board.

    Yes, CFS Specialists do exist. If you post the approximate area in which you live, asking for a referral, there is a very good chance someone will have a doctor to share with you.

    Wishing you the best.
  3. kbak

    kbak Member

    They are out there, but it take's a little work to find them. You might want to put FFC in the search here and read about the fibro and fatigue center's. They work with CFS too. That's what I have. There are other docs out there that work with CFS too. There's not many tho. It's not an area many docs want to mess with.
  4. bioman85

    bioman85 New Member

    If you go to, they have a "good doctors" list.
  5. Mikie

    Mikie Moderator

    Go up to the purple stripe at the top of this page and click on Doctor Referral.

    There are some CFIDS specialists. Dr. Cheney no longer sees new patients but his old partner Dr. Peterson may take new ones. I'm not sure. I know there is one in NY but his name escapes me. There is another near Flint, Mich. Hopefully, some of our other members with better memory than I have right now can help you out.

    The new Fibro & Fatigue Clinics cropping up all over are for both FMS and CFIDS.

    What I have done is research treatments and my docs and I have replicated what is being done through the specialists. It has helped.

    Love, Mikie

    ANNXYZ New Member

    You might want to take some CDC info to your doc . CFS was
    declared a priority number one infectious disease in 1996 !
    His ignorance and personal prejudice would send me looking for a new doc .

    I did not think doctors as ignorant as this one still existed . There are also lots of books written by docs who treat patients with the disease who share their experiences
    and the abnormalities observed with sufferers .
  7. kierkegaardsson

    kierkegaardsson New Member

    I think it is crazy my doc doesn't really give creedence to CFS. I live in Florida, but go to school in Rhode Island... Unfortunately neither state has a FFC yet. Also, I'd like to be positive I have CFS before going to one of those places, which is why I was interested in seeing a specialist. Thanks for the help,


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