CFS TO ARDS

Discussion in 'Fibromyalgia Main Forum' started by robram4, Nov 25, 2002.

  1. robram4

    robram4 New Member

    HI MY NAME IS ROB. FIRST POSTING ON THIS SIGHT, BEEN ON ALOT OF HEALTH RELATED SIGHTS. I HAD CFS AND WAS WORKING 60+ HOURS A WEEK AND PUSHING MYSELF. THEN ALL HELL BROKE LOOSE AND I GOT A CORTISONE INJECTION FOR A ROTATOR CUFF INJURY AND ENDED UP IN THE HOSPITAL FOR 3 MONTHS FIGHTING FOR MY LIFE AND SURVIVED.. I WENT INTO ARDS FROM THE STAPH AUREOUS INFECTION THAT PUT ME ON LIFE SUPPORT, LUNGS COLLASPED, AND COMA, DIALYSIS, TRACH AND ETC. I BEEN OUT OF THE HOSPITAL ABOUT A YEAR AND HALF AND UNABLE TO RESUME WORK BECAUSE OF MY EXCERTION LEVEL IS LOW AND LUCKILY I GOT SSDI ON THE FIRST TRY. I HAVE A NUMBER OF HEALTH PROBLEMS LUNGS 60%, KIDNEYS 60%. NERVE DAMAGE THROUGHOUT MY BODY, NEURO PROBLEMS, BLOOD CLOTS IN THE LEGS AND ETC... I TAKE ALOT OF PILLS ADAY AND STILL SEE MANY DIFFERENT SPECIALISTS, BUT NOT AS OFTEN HAS BEFORE. THE LESSON I LEARNED STAY AWAY FROM A CORTISONE INJECTION UNLESS THE DOCTOR KNOWS WHAT THE PROPER WAY TO DO INJECTIONS. I AWAYS SAY THERE IS ALWAYS SOMEONE OUT THERE THAT IS WORSE OFF THEN ME. I ALSO LEARNED THE HARD WAY ,THAT ONCE YOU ARE NO LONGER HAVE ANY USE TO YOUR PLACE OF WORK YOU ARE FORGOTEN AND REPLACED. WILL I GUESS I BETTER FINISH. TAKE CARE TO ALL AND STAY HEALTHY ROB,.
  2. robram4

    robram4 New Member

    HI MY NAME IS ROB. FIRST POSTING ON THIS SIGHT, BEEN ON ALOT OF HEALTH RELATED SIGHTS. I HAD CFS AND WAS WORKING 60+ HOURS A WEEK AND PUSHING MYSELF. THEN ALL HELL BROKE LOOSE AND I GOT A CORTISONE INJECTION FOR A ROTATOR CUFF INJURY AND ENDED UP IN THE HOSPITAL FOR 3 MONTHS FIGHTING FOR MY LIFE AND SURVIVED.. I WENT INTO ARDS FROM THE STAPH AUREOUS INFECTION THAT PUT ME ON LIFE SUPPORT, LUNGS COLLASPED, AND COMA, DIALYSIS, TRACH AND ETC. I BEEN OUT OF THE HOSPITAL ABOUT A YEAR AND HALF AND UNABLE TO RESUME WORK BECAUSE OF MY EXCERTION LEVEL IS LOW AND LUCKILY I GOT SSDI ON THE FIRST TRY. I HAVE A NUMBER OF HEALTH PROBLEMS LUNGS 60%, KIDNEYS 60%. NERVE DAMAGE THROUGHOUT MY BODY, NEURO PROBLEMS, BLOOD CLOTS IN THE LEGS AND ETC... I TAKE ALOT OF PILLS ADAY AND STILL SEE MANY DIFFERENT SPECIALISTS, BUT NOT AS OFTEN HAS BEFORE. THE LESSON I LEARNED STAY AWAY FROM A CORTISONE INJECTION UNLESS THE DOCTOR KNOWS WHAT THE PROPER WAY TO DO INJECTIONS. I AWAYS SAY THERE IS ALWAYS SOMEONE OUT THERE THAT IS WORSE OFF THEN ME. I ALSO LEARNED THE HARD WAY ,THAT ONCE YOU ARE NO LONGER HAVE ANY USE TO YOUR PLACE OF WORK YOU ARE FORGOTEN AND REPLACED. WILL I GUESS I BETTER FINISH. TAKE CARE TO ALL AND STAY HEALTHY ROB,.
  3. teach6

    teach6 New Member

    Wow! You've really been through the wringer. I want to welcome you to the board. It's a great place for support and information. In the 11 months I've been posting I've made lots of friends here and learned more than I ever imagined. I also have CFS with NMH and FM. What is ARDS?

    Barbara
  4. Grams

    Grams New Member

    Rob, welcome to the board! You will find lots of friendly people and much support here. I don't post often, but I wanted to welcome you. I had ARDS several years ago after I had the flu, complicated by pneumonia. Although very sick, I didn't have all the complications that you have had. I hope you will continue on your road to recovery. I agree with your comment about being replaced and forgotten in workplace. That happened to my husband when he became sick. Gentle hugs and blessings. . .

    Grams

    PS Barbara, ARDS is acute respiratory distress syndrome.
  5. kadywill

    kadywill New Member

    I understand......I have worked while ill for many years and my physician took me out of work a week ago due to spinal stenosis, but this was just one of the problems that have made it impossible for me to continue working. I was silly to make all of my friendships at work and I have none outside of my job. Now that I am gone, I'll be forgotten, too. Sad..........
    I'm glad you've come here. We'll be your friends and you'll have support from people who understand what you're going through.
    God Bless You!
    Kady
  6. robram4

    robram4 New Member

    I FEEL GREAT ALREADY FROM YOUR REPLYS, THANKS GRAMS FOR THE ARDS MEANING.. I AM ASK MANY TIME WHAT IS ARDS, I DIDN"T KNOW MYSELF UNTIL I GOT IT. I DO NOW I FIND AS MUCH INFORMATION I CAN ON THE SUBJECT, AND THE WEB HAS BEEN GREAT. THE SURVIVER RATE HAS GOTTEN BETTER AS THE DOCTOR LEARN MORE AND MORE ON HOW TO TREAT EACH CASE. I WAS VERY LUCKY THEY SAY AND I HAD A GREAT TEAM OF SPECIALIST WORKING ON ME. I WAS IN GREAT HEALTH BEFORE THIS EXCEPT THE CFS WHICH I WAS DEALING WITH AND I NEVER SMOKE AND WAS VERY ACTIVE AND ALL THAT WAS A PLUS FOR ME, PLUS MY WIFE WORKED MIRCLES AT THE HOSPITAL KEEPING EVERYBODY ON THERE TOES AND SPIRITS UP. I HAVE A SECOND CHANCE IN LIFE AND I WANT TO TOUCH AS MANY PEOPLE AS I CAN IN ANYWAY POSSIBLE. I DEFINATELY HAVE A DIFFERENT FEELING FOR LIFE AND AT TIMES, IT IS HARD TO EXPLAIN BUT NOT THE SAME PERSON IN THIS BODY OF MINE. I AM GETTING SOME OF MY MEMORY AND SPELLING BACK EACH DAY, AND WE ALL HAVE OUR GOOD AND BAD DAYS, BUT THE GOOD ONES I WANT TO REMEMBER. I HAVE TROUBLE WRITING SHORT STORIES, SO TAKE CARE AND STAY HEALTHY ROB........
  7. Shirl

    Shirl New Member

    Hi Rob, wecome to our world. Glad you have stopped by, and hope you stay with us too.

    We are a bit short of men around here, and do appreciate the ones we do have to share with us.

    I am so glad to hear you are now doing so well. You sure have had a horrific time of it.

    Its wonderful to hear you also have such a great lady for a wife, my husband is the same way. He is right there for me.

    AGain, welcome, and will be looking forward to hearing from you often.

    Shalom, Shirl
    [This Message was Edited on 11/26/2002]