Chronic Ehrlichiosis?

Discussion in 'Lyme Disease Archives' started by Yawning, Dec 12, 2008.

  1. Yawning

    Yawning New Member

    Hi everyone. Is there anyone here who has or had a diagnosis of chronic ehrlichiosis? I was just DXed with it today, and looking for any information or resources folks can share. I've been struggling with fatigue and many other symptoms for a decade, and I'm glad there is now at least some indication of a possible cause. But have never heard of this and the research by and large seems focused on the canine variety...so would love to hear from you..

    Thanks,
    Yawning (and I am!)
  2. Shalome1990

    Shalome1990 New Member

    Hey, I am finding so many posts that relate to me on this board today it is just unreal!!! I have Lyme and Erichilosis. I was just diagnosed in Novemeber. The health department called me about the Erichilosis, but not the Lyme...I thought that was strange. Who tested you? Where are you from? How long have you been exhibiting symptoms? I would say look at this board, and go to the Lyme links....these bacteria are very hard to treat and many people have Lyme and a co-infection, which in our case is the Erichilosis. I have found most of my information on this board. I copy and paste things I want to look into further below...but again, look at the Lyme information:

    Things to try:
    http://www.healthline.cc nutritional program
    Grape Seed Extract
    A couple of good general books are "Coping with Lyme Disease" by Denise Lang and "Cure Unknown" by Pamela Weintraub.

    The movie "Under Our Skin" is also very good, and is shown by a lot of local support groups. You can also order a copy from their web site: www.underourskin.com.
    "Coping with Lyme Disease"
    "Everything You Need to Know about Lyme Disease"
    "Bull's Eye": Unraveling the Medical Mystery of Lyme Disease
    "Cure Unknown"
    "Lyme Disease" (Easily Understandable even 4-Me!) by Len Yannielli less than 100 pages
    The Lyme Disease Solution by Dr. Kenneth Singleton - Dr. Singleton is a doctor who actually came down with Lyme Disease himself. He went undiagnosed for almost 8 years before he finally found out he had Lyme. He is now recovered and treats Lyme patients. He has compiled a treatment that worked for him and seems to work well for his patients also. He talks about all this and the treatment in his book. I am currently reading this one and I do think it is a very good book so far.

    -Healing Lyme by Stephen Harrod Buhner - This is another popular Lyme book that many have read and followed treatment from. I haven't started reading this one yet.
    Based on my current understanding of CFS and my experience with it so far (and I have been researching it for over 12 years), I would say that the most important test to get is the methylation panel. In the U.S. it is offered by Vitamin Diagnostics, Inc., and in Europe it is offered by the European Laboratory of Nutrients in the Netherlands. I am not affiliated with these laboratories. Here is the contact information for Vitamin Diagnostics: by Rich Van Konynenburg, Ph.D.

    Dr. Burrascano listed the ways to wellness - rules to live by at the Hope to Heal Conference in '06 as folllows:
    General Lifestyle for CLD (Chronic Lyme Disease)
    • Do NOT overdo
    • Rest is enforced
    • No caffeine - impacts sleep even at small amounts - sleep is CRITICAL
    • Balance, balance
    • No alcohol - more toxicity
    • Stay hydrated - drink lots of water
    • No smoking - one cigarette every 3-4 months can impact your recovery
    • Vitamins do NOT feed spirochetes
    • Exercise is critical
    • No steroids

    PLEASE NEVER EVER USE STEROIDS WITH LYME!Vitamin Diagnostics, Inc.
    Rt. 35 & Industrial Drive
    Cliffwood Beach, NJ 07735
    USA
    Phone:+1 (732) 583-7773
    Fax: +1 (732) 583-7774)

    Fruit Shake:
    1 apple, cored w/peel on, cut into pieces (I like Gala apples)
    ½ banana, cut into pieces
    1 T. molasses (I use Grandma’s)
    water
    BLEND until smooth
    frozen fruit (I use strawberries, cherries, pineapple, blueberries)
    BLEND until smooth, adding more water if needed
    2 T ground flax seed
    1 T whey protein powder
    BLEND until everything is mixed together

    Hello,
    I regularly receive information and updates on the latest information in regards to this dd from Dominie Bush.... I just got his today and wanted to share it with you all...when your done reading it please let me know what you think ok? :)

    Hugs
    Doxy
    New Brain Research of Fibromyalgia Pain at University of Florida (Gainesville)

    The Musculoskeletal Pain Lab at UF is dedicated to identify the mechanisms of
    fibromyalgia (FM) pain. Accumulating evidence suggests that FM is
    associated with brain dysfunction. The FM Lab at the University of
    Florida is currently investigating brain changes associated with FM.

    Using a new technique of magnetic resonance brain imaging (MRI)
    called "voxel-based morphometry or VBM", we will examine the brains
    of FM patients and healthy controls. This will allow us to determine
    whether important structures of the brain (gray and white matter)
    shrink faster in FM than expected by aging.

    So far we have found that FM patients have significantly less total gray
    matter brain volume than healthy age-matched individuals.
    Other investigators have shown that FM patients have a 3.3 times
    greater age-associated decrease in gray matter than healthy controls.
    The longer FM individuals seem to have chronic widespread pain,
    the greater the gray matter loss.

    Importantly, each year of FM was equivalent to 9.5 times the loss in
    normal aging. This loss of gray matter occurred in several brain
    regions related to memory, mood, and pain, including the cingulate,
    insular and medial frontal cortices. These neuroanatomical changes in
    FM patients provide evidence of CNS involvement in this illness. In
    particular, FM appears to be associated with an acceleration of age-
    related volume loss in the brain.

    If you would like to receive more information, please don't hesitate to
    contact us at 352-265-8901 or email us at painresearch@medicine.ufl.edu

    Sabrina G. Khan
    Laboratory Technician
    University of Florida, Dept. of Medicine
    Div. of Rheumatology
    Center for Musculoskeletal Pain Research
    1600 S.W. Archer Road, Room G-056
    Gainesville, FL 32610
    (352) 265 - 8901