Chronic Epstein Barr Virus....Need Help Reading Results

Discussion in 'Fibromyalgia Main Forum' started by futurehope, Mar 29, 2006.

  1. futurehope

    futurehope New Member

    Hi everyone,

    I think that my Infectious Disease Specialist might have found something that may be causing some of my problems.

    If anyone has been reading any of my previous posts or would like to read them, I would appreciate your input.

    The RN at the office told me to call her today for results on the four tests that then ran for me. By the way, I was not impressed with him, because he ran so few tests, which really made me upset!!!!

    Anyway the RN told me that I was in the Chronic Stage of EPV. I asked her for the numbers, which can be so confusing reading thru some of the posts here. I would like some of you input as to these readings are really indicitive and indicate Chronic Stage or that I do have EPV right now.

    Here they are:
    IGM - Negative
    EPV Early Antigen (IGG) - Positive
    EPV VCA - (IGG) - Range is 0-19 - Mine was 170
    EPV Nuclear Antigen - (IGG) - Range is 0-19 - Mine was 200

    I have a history of high White Blood Cell Counts, infection/inflammation of lymph nodes (different from just a lymph node that swells and has WBCs in it) this is ACTUAL infection in the node, which is worse, and tissues in mouth are inflammed, have had the crud, Strep Throat, chills sometimes, and weakness, lots of fatigue.

    Are these symptoms of EPV?

    One more thing, she told me that there is nothing that they can do for it, just plenty of rest and fluids, good diet, stuff like that.

    She did say the EPV can lower your immune system.

    I believe that I have more problems than just EPV, any advice there would be appreciated too. Look at my posts if you wish too.

    Thanks for your input.

    Love and prayers,
    Brenda
  2. Cromwell

    Cromwell New Member

    Well I get high titer readings too and have been told when they are active that I have reemergent mono.

    I understand that most of us have EBV present.

    Others here will advise you, as they know more.

    Don't worry I think this is common amonst us.


    LOve Anne C
  3. bunnyfluff

    bunnyfluff Member

    What they told me was that is showed a previous EBV had been recently reactivated, within a month or so.

    Meaning, that I had EBV when I was 16 (I am now 45), and I reactivated an old disease that was in my system.

    Yes, you have EBV active right now.

    I was given a months worth of anti-virals, which didn't help too awful much, I am still sick and just went yesterday to get re-checked. I am still running a low grade fever and have swollen lymph nodes in my neck. My fatigue is unrelenting.

    My Dr said I have "crossed over" from FMS to CFS. If that makes you feel any better. Not sure it made me feel better.

    There isn't much you can do. Just try to rest as much as possible.
  4. Mikie

    Mikie Moderator

    Are having really good results with antiviral meds. Also, there are several transferfactors which target EBV. I can't believe this doc told you there is nothing you can do.

    Love, Mikie
  5. futurehope

    futurehope New Member

    In the middle 1990's, I had active EBV. I do know that.

    My thoughts are this is just a small piece of the whole puzzle though.

    I think we have to work on finding some way to treat our immune systems to get rid of all of these problems. Does anyone agree??

    Does anyone have any answers here?

    I truly believe that stress plays a role, but how can we make our immune systems stronger??

    I don't know, I just know that I keep getting sick and have even been sent to an Oncologist and am still seeing him because of high WBCs. This is one of the most scariest times I have ever had in my life.

    Any thoughts?

    Love and prayers,
    Brenda
  6. iggyangel

    iggyangel New Member

    I know what the tests are:
    VCA-IgM appears early in infection and disappears w/in 4-5 weeks.
    VCA-IgG appears during the acute phase and peaks at 2-4 weeks, then declines slightly, and may persist for life.
    EBNA antibody appears 2-6 months after onset of infection and may persist for life.
    this will help you w/your readings.
    I would write them down but Im having a bad day and cannot type,
    God Bless,
    Iggyangel
  7. iggyangel

    iggyangel New Member

    I know what the tests are:
    VCA-IgM appears early in infection and disappears w/in 4-5 weeks.
    VCA-IgG appears during the acute phase and peaks at 2-4 weeks, then declines slightly, and may persist for life.
    EBNA antibody appears 2-6 months after onset of infection and may persist for life.
    this will help you w/your readings.
    I would write them down but Im having a bad day and cannot type,
    God Bless,
    Iggyangel
    heres the reference range
    <25.0 negative
    25.0-34.9 Equivocal
    35.0-99.9 weak positive
    100.0-200.0 Moderate positive
    >200.0 Strong positive
  8. springrose22

    springrose22 New Member

    Do you know which transfer factors target EBV? Thanks, Marie
  9. Mikie

    Mikie Moderator

    Of the TF's sold here, TF C and TF 100 target EBV. TF C also targets the B strain of HHV-6, CMV, Chlamydia, and Lyme Disease. TF 100 also targets CMV.

    Love, Mikie
  10. springrose22

    springrose22 New Member

    You're always so helpful & informed. Marie
  11. Mikie

    Mikie Moderator

    Love, Mikie