Chronic pain in hips, butt, thighs, affecting job

Discussion in 'Fibromyalgia Main Forum' started by Chelz, Jan 5, 2009.

  1. Chelz

    Chelz New Member

    I just came back from a rheumy appointment. I went in there because I had a large lipoma years ago in my right hip, buttock area. The lipoma was removed, but a year later pain in the same area and surrounding areas have returned.

    I had an X-ray, recent MRI, and both of these tests revealed nothing. My doctor was checking for bursitis, which I thought I had, recurrent lipoma, or scar tissue. At least I didn't have to argue with her to give me the MRI, she allowed one pretty quickly.

    I also had a Kennalog shot in my hip which did nothing. Now she wants me to try Ultrasound with physical therapy. I told her I would not attempt physical therapy without having at least the Ultrasound, massage, tens unit, any other modalities that I can get.

    I tried physical therapy before without ultrasound or other therapies, and I just couldn't do any of the exercises they wanted me to do. My hip, butt, and thigh areas were just too tender and sore.

    Now this is affecting my job at a local hospital. At an 8 hour a day job, half of it is sitting and the other half is constant walking to all the floors, lifting charts, pulling charts and carts. I basically like my job and can't afford to give it up. I work in the medical records department, which is stressful.

    My anxiety over this can be overwhelming and I'm not sure what to do. My doctor wants me to try everything I possibly can before referring me to a pain specialist because she said they will most likely just give me drugs, and my system is so sensitive to medications.

    I feel like my muscles are sore, tender, inflamed, but tests reveal nothing unusual. I should be used to this by now, tests coming back normal, nothing new. Of course, I wouldn't want it to be anything serious, but you all know what I mean, this just puts me at a dead end again. Thanks for listening. Hugs to all, Chelz.

  2. star273

    star273 New Member

    I know exactly how you feel, as a matter of fact, I have been thinking about this all day. I work part time in the mornings from 8 to 12 I dont know how you work all day?? I have the exact same pain with tests showing nothing. I mean what can it be, if it hurts that much shouldnt it be something, shouldnt it show something on the x-rays?? I dont get it either. As you said, I dont want it to be anything serious, but how can anyone believe you when tests show nothing. Anyway, I was thinking today.... I dont know how much longer I can go working, sitting down all the time. My hips hurt so bad and my lower back aches. My butt hurts and my legs too. Also, my pelvic and pubic bone hurt.. I had an ultrasound on that and it showed nothing. How can this be when I feel like this???? Here I am complaining about hurting and how I can make money but not work when so many people just need a job right now. I think about applying for SSD but how can I when the tests reveal nothing? Is yours tender to the touch??? Mine is and feels like a numb, inflamed feeling... Its hard to explain but I am sure you know what I am talking about. It is so frustrating and so hard to understand. What can we do??? Hang in there. I feel ths same way.

    Hugs.. :)
  3. Chelz

    Chelz New Member

    Hugs to you as well. You know you can believe me when I say I "feel your pain". Yes, mine is very tender to the touch and I also have the same pelvic/pelvic bone hurting as well which is just yet another problem. With the pelvic pain, I did discover that I had normal fluctuating cysts inside my left ovary, so maybe that is what is causing that pain, but I'm not sure completely.

    I have said the EXACT same thing you have. "How can this be when I feel like this" I was just telling that to my sister the other day when I got the test results and it revealed nothing. Even my MRI said "There is no clear cause of pain". Oh great, that sounds like I must be crazy or something, and I know what you mean by getting SSD, how in the world would they approve it, if your tests show NOTHING.

    My job is on my mind too like you, I feel guilty because so many people are out of work, and here I still have a job...............but how in the world am I going to go on with such severe pain? Today was extra hard on me at the hospital, my upper legs especially my thighs feel like they are inflamed and on fire. I literally come home from work and lay on the couch most of the night, unless I'm on this board, and nurse my hurting body just to get up tomorrow and do it all over again.........geeez this is one of the reasons why people get so desperate and depressed.

    I feel for you too Star, and if I can ever come up with an answer, or something to help relieve the pain, or anything to help get our lives will hear from me. Unfortunately, I just don't know and what is even more distressing is these doctors with medical degrees just don't know either.

    I almost had a panicky feeling when my doctor just shrugged off my MRI and acted like all will be better. MRI's are very revealing, expensive tests that doctors rely on a lot, this doc must think I'm overreacting since it came back normal. My doc also wrote in my medical records that I was "very well appearing" under most ciurcustances, this would be a great compliment, but not when your are feeling like crap it just make your appear like you are not credible. Thanks for writing. Hugs, Chelz.
  4. kinsie1

    kinsie1 New Member

    I have been a member here on this board for several years, but I quit posting for some reason. I was reading through the posts this evening, and yours just stuck in my mind since your symptoms sound so much like mine.

    I was wondering what a lipoma is. I have such bad pain in my right hip that it makes me walk with a limp most of the time. I just hate to give in to all the tests they would put me through if I go to the doctor. I know I have FM and osteoarthritis along with constant anxiety, but it seems funny to me that this terrible pain I've been experiencing for several months iis just on one side like this. Sometimes the pain is so bad that I wake up all night ( even though I take ambien!!)

    I know it's hard to work when your muscles feel so imflamed. I retired 2 years ago, and thought I would somehow actually get well ( although, I really knew better). Instead I've gotten worse. I had a desk job, and had to get up and walk around at least every 1/2 hour or so or I would get so stiff and sore I couldn't stand it. I don't know if I'm really worse, or I just don't have as much to distract me from the pain.

    I've been to a rheumatologist, a pain specialist.........all of the typical doctors we all go to. So, I have pain medication if I need it, but it sure doesn't do much.

    I just wanted to reply to your post, because I know just how you are feeling. Just like everyone says, we don't want to be diagnosed with anything serious, but how can we suffer so much, and the tests show nothing??!! What a strange disorder this is.


  5. loto

    loto Member

    So sorry for your pain and getting no help with it!! I went through a lot of what you are before my laminectomy. I also had the pain for a while chronically after that. I remember that massage therpay did wonders for it for at least a couple of weeks. It would hurt so badly during the massage, when my therapist would work on my left hip, and finally get the muscles to "release". I felt so much better afterward, that the pain during the massage was well worth it. That would be my advice to you, even though weekly massages are expensive. I only wish insurance would cover it. I need to go weeky for my fibro pain, but at this point can't afford it. And, to me, massage is much better than physical therapy. I've been through that, and in my opinion, it's a waste of time and money. No offense to any physical therapists out there! You are good for other conditions and people!!!! Anyway Chelz, maybe the weekly massage therapy, especially deep tissue massage, would work for you!
    Oh, yeah, do you take meds? It also sounds alot like it may be pain related to nerves. After my laminectomy, my doctor put me on Cymbalta for nerve pain, and it really helps. I've heard some people on the boards here can't tolerate Cymbalta, but it did wonders for my nerve pain then, and my pain now related to fibro. My doctor started me on the lowest dose of Cymbalta, and now since I've been diagnosed with fibro, I'm on 120 mg per day. It may be worth checking out, since I had that same kind of pain, and my neurologist knew it was from the sciatic nerve.
    good luck and hope you get some relief soon,
    [This Message was Edited on 01/17/2009]

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