Chronic Pain Truths...

Discussion in 'Fibromyalgia Main Forum' started by jeniwren, Jun 10, 2003.

  1. jeniwren

    jeniwren New Member

    Hi, I've posted this here as I thought it might help some of us communicating to those without pain in their lives.

    People with chronic pain don’t mean to be unreliable.

    When feeling better we promise things and mean it, when in serious pain, we may not even show up.

    An action or situation may result in pain several hours later, or even the next day. Delayed pain is confusing to people who have never experienced it.

    Pain can inhibit listening and other communication skills. It's like having someone shouting at you, or trying to talwith a fire alarm going off in the room.

    The effect of pain on the mind can seem like attention deficit disorder (ADD or ADHD). So you may have to repeat a request, or write things down for a person with chronic pain.

    Don't take it personally, or think that they are stupid.

    The senses can overload while in pain. For example, noises that wouldn't normally bother you, seem too much. Patience may seem short. We can't wait in a long line, we can't wait for a long drawn out conversation.

    It is normal to be depressed occasionally when you hurt.

    Knowing where a refuge is, such as a couch, a bed, or comfortable chair, is as important as knowing where the bathroom is. A visit is much more enjoyable if the chronic pain person knows there is a refuge if needed.

    Pain can sometimes trigger psychological disabilities (usually very temporary). When in pain, a small task, like hanging out the laundry, can seem like a huge wall, too high to climb over. An hour later the same job may be quite OK.

    Pain can come on fairly quickly and unexpectedly. Pain sometimes lessens after a short rest.

    Small acts of kindness can seem like huge acts of mercy to a person in pain. Your offer of a pillow or a cup of tea can be a really big thing to a person who is feeling temporarily helpless in the face of encroaching pain.

    Not all pain is easy to locate or describe. Sometimes there is a body-wide feeling of discomfort, with hard to describe pains in the entire back, or in both legs, but not in one particular spot you can point to.

    Our vocabulary for pain is very limited, compared to the body's ability to feel varieties of discomfort.

    We may not have a good "reason" for the pain. Medical science is still limited in its understanding of pain. Many people have pain that is not yet classified by doctors as an officially recognised "disease". That does not reduce the pain, it only reduces our ability to give it a label and to have you believe us.

    Have a great day...Jeni
  2. kadywill

    kadywill New Member

    I agree.
  3. debbiem31

    debbiem31 New Member

    I will be copying this to email to send to loved ones..
  4. JannyW

    JannyW New Member

    Hi Jeni,
    This is wonderful ... I'd like to print it on a t-shirt, but it'd take front, back & both sleeves!!

    Jan ^v^