Cleveland Clinic CFS

Discussion in 'Fibromyalgia Main Forum' started by SpecialK82, Oct 8, 2008.

  1. SpecialK82

    SpecialK82 New Member

    Has anyone gone to the Cleveland Clinic for diagnosis/treatment plan for CFS or for viral infections?

    I'm just wondering what their opinion is about the latest research.

    I went 11 years ago at the beginning when I was mainly having neurological symptoms. I saw a neurologist who agreed with my local doc that it wasn't MS. He came up with a few other things to test for (that came out negative) but basically didn't really have answers beyond that.

    I wonder how their approach has changed over the years - or if I would have gotten a different answer seeing a different specialist.

    It's sounds from the board that people aren't getting much help at the Mayo Clinic so I'm not expecting it to be much different there....

    Thanks, Kristina
    [This Message was Edited on 10/08/2008]
  2. kbak

    kbak Member

    I'd love to know too weather anyone has been to the Cleveland Clinic and what they thought.

  3. Elisa

    Elisa Member


    I was diagnosed at the Cleveland Clinic with chronic fatigue - unfortunately the Clinic still believes it is depression and prescribes exercise and high dose antidepressants.

    It is a horrific place - and change will be a long time coming. I have had a fever for 1.5 yrs, now over 100 degrees, and they believe that it, as well as, the heart problems are psychological. When I was sent to infectious disease they did not run one test on viruses or other infections and said "so you have chronic fatigue" wink, wink, nod, nod. So so sad and embaressing that these large health care systems don't even read up to date medical literature in their fields of speciality.

    There is only one doctor there that "treats it" and he is completely uninterested in exploring any new areas...again just antidepressants and no pain meds.

    So that's the scoop on the Clinic.

    They do have one doctor in the heart dept that works with POTs patients, like me, but she now only works one day a week and prescribes the standards - beta blockers, lots of salt/water, florinef, compression stockings etc.

    So TWO thumbs down for the Cleveland Clinic.

    God Bless,


    Keep in mind this is the same place that called mother's of autistic children - "refrigerator mothers" i.e., cold and uncaring mothers cause autism[This Message was Edited on 10/08/2008]
  4. SpecialK82

    SpecialK82 New Member

    Oh Elisa, what a terrible experience!

    I also have had unexplainable fevers but I have never heard that they can be pyschological. How humiliating! I can't believe a place that prides itself on figuring out difficult medical cases could have treated you that badly. I thought they are supposed to be up on the latest! Aargghh!

    The whole pyschological diagnosis is such a cop out because doctors and their egos can't admit that they don't know what is going on.

    My father-in-law who was healthy all his life, started to complain of acute abdominal pains. After some tests and finding no problems they told him he was depressed and gave him anti-depressants. A few painful weeks later he was diagnosed with terminal pancreatic cancer and died a few months afterwards. I'm certainly glad that he had anti-depressants to help him though it all - give me a break!

    Sorry for your experience - glad you are still fighting!

    Hugs, Kristina